Blood Cancers & Disorders Support Group

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Comments (257)

Good morning, @taisaint. Welcome you to Mayo Connect. You’ve recently been diagnosed Essential thrombocythemia and Polycythemia...

https://connect.mayoclinic.org/comment/967884/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2023

Hi @lavender28 Welcome to Mayo Connect. It helps to know you’re not alone in a diagnosis....

https://connect.mayoclinic.org/comment/858668/

Discussion: Polycythemia vera (PV): Does altitude matter?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2023

I have posted before about having JAK2 mutation - I have been followed by Hemo-oncologist for...

https://connect.mayoclinic.org/comment/975372/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2023

Polycythemia vera (PV) is primarily classified as a blood disorder, but it has characteristics of a...

https://connect.mayoclinic.org/comment/1114380/

Discussion: Been struggling with Polycythemia Vera for 2 years

Support Group: Blood Cancers & Disorders

Posted: Jul 30 6:53am

Finally received the results of my BMB. Polycythemia Vera was confirmed. Additionally, my MGUS has progressed....

https://connect.mayoclinic.org/comment/714838/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2022

My doctor says platelets should be between 140 - 450. I have heard different ranges but...

https://connect.mayoclinic.org/comment/1029002/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Mar 7 4:23am

I have not heard about a link between JAK2 and the COVID-19 vaccinations. When my doctor...

https://connect.mayoclinic.org/comment/1032105/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Mar 12 4:39am

Hi Optimust, Thank you for your reply. I was aware that vitamin B12 is water soluble...

https://connect.mayoclinic.org/comment/198913/

Discussion: High Levels of Vitamin B12 and Ferritin: Any pointers?

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2019

Welcome to Connect, @lostmonk. High/borderline hemoglobin and hematocrit sometimes can be attributed to asleep apnea or...

https://connect.mayoclinic.org/comment/935997/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

I was diagnosed with Polycythemia Vera three years ago. I was experiencing symptoms akin to high...

https://connect.mayoclinic.org/comment/231775/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2018

Hi @ausableriver, Polycythemia Vera is a condition where the bone marrow makes too many red blood...

https://connect.mayoclinic.org/comment/1003392/

Discussion: Secondary polycythemia: What are the treatment options?

Support Group: Blood Cancers & Disorders

Posted: Jan 25 8:10am

Hi @nicolekapr, welcome. Sorry to hear you've had a particularly difficult day with fatigue and being...

https://connect.mayoclinic.org/comment/336626/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2021

Allow me to be the acronym buster (self-proclaimed :) MPN = Myeloproliferative neoplasms, a group of...

https://connect.mayoclinic.org/comment/328563/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

It’s unbelievably frustrating when our life takes such an abrupt turn for no reason…not that having...

https://connect.mayoclinic.org/comment/879788/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

So my DX has been identified as secondary Polycythemia. I was so damn excited it was...

https://connect.mayoclinic.org/comment/895407/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Hi, I have Essential Thrombocythemia with JAK 2 mutation and perhaps these folks looking for answers...

https://connect.mayoclinic.org/comment/194318/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2019

@nypara66 Most of the time persons with blood disorders such as polycythemia or hemochromatosis are disqualified...

https://connect.mayoclinic.org/comment/851485/

Discussion: Blood Donor: Is it safe to donate blood if you have a blood condition?

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2023

Hi @fishergramma Welcome to Mayo Connect and thank you for sharing your personal experience with MGUS,...

https://connect.mayoclinic.org/comment/746753/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022

I was diagnosed with polycythemia vera 10 years ago, at the beginning I was getting a...

https://connect.mayoclinic.org/comment/1010255/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 5 4:10pm

Hi @pennyhedgecoth and welcome to the Blood Cancers & Disorders group. I'm glad you found us....

https://connect.mayoclinic.org/comment/329372/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2020