Blood Cancers & Disorders Support Group

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Comments (525)

I have read your above posts in an attempt to find help for my husband who...

https://connect.mayoclinic.org/comment/872173/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Jun 4, 2023

If you are still itching quite a bit it's because your blood is still too high...

https://connect.mayoclinic.org/comment/895683/

Discussion: Polycythemia Vera (PV) and fatigue: What helps?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

For the itching I stopped taking showers in the winter. I wash my hair in the...

https://connect.mayoclinic.org/comment/1018657/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2024

@carolgk Oh gosh, Carol, my heart goes out to you with the relentless itching! @rogelling had...

https://connect.mayoclinic.org/comment/1510338/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 20 10:11am

I was diagnosed with cutaneous T-cell Lymphoma in November 2024 and now undergoing treatment with Valchlor...

https://connect.mayoclinic.org/comment/1251949/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

My husband recieves Arnesp injections every 2 weeks until his hgb ia 10 or above. He...

https://connect.mayoclinic.org/comment/996612/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

Oh, another help: ICE! I take an ice cube and slowly move it over the itchy...

https://connect.mayoclinic.org/comment/744254/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2022

@deb913 I’m 76 and have been on Jakafi for 1 year with no side effects. It...

https://connect.mayoclinic.org/comment/1443773/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2025

I was frantically looking for answers for 2 years for my itching as my blood counts...

https://connect.mayoclinic.org/comment/870291/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

I had the itching tesllly bad and took loratadine which eventually kicked in. I was on...

https://connect.mayoclinic.org/comment/1430231/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2025

Dear Dave, My mom took Revlimid last year and experienced severe itching on her body. What...

https://connect.mayoclinic.org/comment/1399086/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2025

Yes I too have had itching inside my ears and they were shedding. My fingers were...

https://connect.mayoclinic.org/comment/822904/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2023

You might try Aveeno lotion for the itching. I'm ET and was switching meds a few...

https://connect.mayoclinic.org/comment/857280/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: May 9, 2023

Would your CTCL be Sezary Syndrome or MF? I have SS, have asked about phototherapy but...

https://connect.mayoclinic.org/comment/1111393/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

I very seldom have a rash, but as my hematologist stated. When your blood thickens it...

https://connect.mayoclinic.org/comment/749800/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2022

Just yesterday, I read somewhere on this site about using Aveeno lotion to sooth itching. I'm...

https://connect.mayoclinic.org/comment/768171/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2022

Hi @niki101 and welcome to Mayo Clinic Connect. I found this article about lymphoma and itching:...

https://connect.mayoclinic.org/comment/312756/

Discussion: Hodgkin's lymphoma and itching and other side effects

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2020

@kellim, the article was very helpful. Were you able to determine whether the itching you're experiencing...

https://connect.mayoclinic.org/comment/962491/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

I am 75 years old and was diagnosed three years ago with PCV and Jak 2...

https://connect.mayoclinic.org/comment/985815/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

I take both 500 mg of HU capsules at night, just before bed. I periodically have...

https://connect.mayoclinic.org/comment/1307654/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 19, 2025

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