Blood Cancers & Disorders Support Group

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Comments (140)

Welcome to Connect, @jessabell I see you’re newly diagnosed with WM. We have quite a few...

https://connect.mayoclinic.org/comment/994283/

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

Now having a diagnosis, I just filled out my Bio and will repost here, because it...

https://connect.mayoclinic.org/comment/981394/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

Hi @fyrizonly, I can understand the unsettling feeling of not knowing what to expect, especially when...

https://connect.mayoclinic.org/comment/970011/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023

I had low iron in 10s for 15 years, oral iron always brought it back up....

https://connect.mayoclinic.org/comment/796597/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2023

Thank you for the suggestions but my bad guys are headed towards a very rare form...

https://connect.mayoclinic.org/comment/731681/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2022

There are antibodies that the body makes to fight diseases. There are five kinds IgD &...

https://connect.mayoclinic.org/comment/729426/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2022

Well Jackie, if you’ve ever read about me and my various post, I must have the...

https://connect.mayoclinic.org/comment/728920/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2022

Linda, I was diagnosed with WM in 2014. I posted recently and included my connection with...

https://connect.mayoclinic.org/comment/663061/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

If only IgM is elevated, then Waldenstrom's Macroglobulinemia is possible. Rarer than MM, but much less...

https://connect.mayoclinic.org/comment/1448906/

Discussion: Do my blood tests results indicate MGUS or MM?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2025

@dcuste also all my blood tests results I Google searched point to Waldenström macroglobulinemia (WM) —...

https://connect.mayoclinic.org/comment/1435917/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2025

Hello @jswv Some links I have squirreled away: - Have you joined the Waldenstrom's Foundation --...

https://connect.mayoclinic.org/comment/1394891/

Discussion: WM / MZL

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2025

I'm 68 years young and diagnosed with Waldenstrom's Macroglobulinemia 8 months ago. My oncologists/hematologists started me...

https://connect.mayoclinic.org/comment/1385201/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2025

We have an update, although more diagnostic have to be run to fully confirm things, followed...

https://connect.mayoclinic.org/comment/1268759/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2025

Hi @katytx, if you use the group search function, you will find many discussions and members...

https://connect.mayoclinic.org/comment/1231574/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2025

I am sorry to read that your levels indicate the need for plasmapheresis due to hyperviscosity...

https://connect.mayoclinic.org/comment/1201340/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2024

I have been taking Brukinsa for 3 months as treatment for Waldenstrom's Macroglobulinemia and noticed some...

https://connect.mayoclinic.org/comment/1149136/

Discussion: Bruising unexplained

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

Thank you for the link. I was diagnosed in early 2014 with Stage IVA lymphoplasmacytic lymphoma/Waldenstrom's...

https://connect.mayoclinic.org/comment/70601/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2017

Yesterday I was diagnosed with Waldenstrom's macroglobulinemia; I have the MYD88 wild type. My primary symptom...

https://connect.mayoclinic.org/comment/1537473/

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: Mar 28 5:16pm

My husband has been diagnosed with an unusual variant of WM. I am not sure if...

https://connect.mayoclinic.org/comment/1538064/

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: Mar 29 1:21pm

I was recently diagnosed with a rare blood cancer called Waldenstrom's Macroglobulinemia (aka: Lymphoplasmacytic Lymphoma). I've...

https://connect.mayoclinic.org/comment/1062621/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024