Blood Cancers & Disorders Support Group

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Comments (697)

I came across an article that stated MDS can come from having stomach or intestinal surgery....

https://connect.mayoclinic.org/comment/1054259/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2024

Yes have results it’s MDS now lookin into treatments they feel I need at this juncture...

https://connect.mayoclinic.org/comment/819391/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

I’m so sorry to hear about your friend and the seriousness of his late stage MDS....

https://connect.mayoclinic.org/comment/1120623/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024

I have discussed this with my hematologist/oncologist. The problem is that I'm concerned about his comment...

https://connect.mayoclinic.org/comment/622086/

Discussion: Use of Neupogen (or similar) prior to minor surgery

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2021

Hi @desertjulie. There are other drugs used to treat MDS, but your husband's physician probably recommended...

https://connect.mayoclinic.org/comment/88394/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2017

That’s excellent news! There have been so many positive changes in the advancement for treating MDS...

https://connect.mayoclinic.org/comment/1250925/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 5 10:32am

I have MDS, Myelodysplastic syndrome, refractory anemia with ring sideroblast. SF3B1 mutation positive. I receive Epoetin...

https://connect.mayoclinic.org/comment/1255124/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 9:42pm

Thank you for the wonderful introduction and explanation for the End Game. As best I understand...

https://connect.mayoclinic.org/comment/1085092/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2024

I have MDS/MPN with Thrombocytosis which means I have very high platelets (over 1.2 million). I...

https://connect.mayoclinic.org/comment/918100/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

Ftom a MDS/AML patient...What a text. I just read comments from several warriors about other warriors....

https://connect.mayoclinic.org/comment/1183083/

Discussion: Saying Goodbye

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2024

Well had bone marrow biopsy today so waitin for results in few days will be lookin...

https://connect.mayoclinic.org/comment/815158/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2023

Hi @raetp. Oh golly, this isn’t news anyone expected to see, especially your brother on his...

https://connect.mayoclinic.org/comment/1117815/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2024

Just reading post. I am so glad to find this ! We have no idea what...

https://connect.mayoclinic.org/comment/1283908/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 17 10:10am

I have been dealing with the neuroendocrine for a year and a half...stable Just found out...

https://connect.mayoclinic.org/comment/1056257/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

I took Revlimid for my MDS. It brought my hemoglobin up to where it's suppose to...

https://connect.mayoclinic.org/comment/815745/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

Good morning @jelilien. Myelodysplastic syndromes (MDS) are a group of disorders caused by blood cells that...

https://connect.mayoclinic.org/comment/886413/

Discussion: Myelodysplasia Complications

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2023

Hello @loribmt, he is currently seeing an oncologist for his MDS diagnosis not a hemotologist, I...

https://connect.mayoclinic.org/comment/888221/

Discussion: Myelodysplasia Complications

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2023

cobb8 I was diagnosed with MDS. I had a bone marrow biopsy which showed any signs...

https://connect.mayoclinic.org/comment/1089425/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 18, 2024

I agree with fortunaeoldguy, as I was reminded that my bone marrow is the key to...

https://connect.mayoclinic.org/comment/1085790/

Discussion: Why is a new bone marrow biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2024

my wife has been diagnosed with mds and has two rounds of Vidazia. What is the...

https://connect.mayoclinic.org/comment/924396/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023