Blood Cancers & Disorders Support Group

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Comments (1,035)

Hello everyone so doc said mds pre leukemia an said due to past cancer I can’t...

https://connect.mayoclinic.org/comment/820615/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

How was your MDS diagnosed? Any CBC indicators? What symptoms did you experience?

https://connect.mayoclinic.org/comment/896563/

Discussion: Any survivors of Non-Hodgkin's lymphoma out there?

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2023

Welcome @helentickle. MDS can impact the production of healthy blood cells. In your case it looks...

https://connect.mayoclinic.org/comment/1251716/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

Good morning..has anyone taken this treatment for mds..that would be hopeful for me Thank you

https://connect.mayoclinic.org/comment/1058610/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2024

I am too waiting to have MDS confirmed. I have had two bone marrow biopsies and...

https://connect.mayoclinic.org/comment/1331906/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2025

Hello @jaylevel1. You may notice I moved your discussion and combined it with your original discussion...

https://connect.mayoclinic.org/comment/226236/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2019

I have myelodysplastic syndrome ( MDS). I will be starting on Lenalidomide hopefully next week. Caught...

https://connect.mayoclinic.org/comment/1359289/

Discussion: Just tired: Husband has colon cancer and I have MDS

Support Group: Caregivers

Posted: Jul 29, 2025

I have MDS/MPN with SF3B1 and ET. It's basically the same as MDS/MPN RS T -...

https://connect.mayoclinic.org/comment/970212/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2023

Thanks! Right now, we are still figuring all this out. My numbers are low, too, especially...

https://connect.mayoclinic.org/comment/1073246/

Discussion: Myelodysplastic Syndrome and Sjogren's

Support Group: Blood Cancers & Disorders

Posted: May 23, 2024

Diagnosed with MDS. I am very interested if there are other drugs than Vidaza? And if...

https://connect.mayoclinic.org/comment/1283488/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2025

My 77 yr. Old husband has been diagnosed with unclassified MDS for 5 yrs. In October...

https://connect.mayoclinic.org/comment/996211/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024

I was diagnosed last year. I have MDS with del(5q). The initial diagnosis was confirmed with...

https://connect.mayoclinic.org/comment/1031602/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2024

My prayers go out to the people who are struggling with MDS. May God bring you...

https://connect.mayoclinic.org/comment/1134458/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2024

@garyrp, I apologize for my delayed welcome to Connect. If you don't mind, are you comfortable...

https://connect.mayoclinic.org/comment/196818/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: May 7, 2018

Hi Brenda, As someone else who posted here said “Be your own advocate.” Since you are...

https://connect.mayoclinic.org/comment/963403/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

MDS 5q what happens now?I was diagnosed with Mds 5Q in 2019 did required blood tests...

https://connect.mayoclinic.org/comment/1080101/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

Dear Gemma, My first suggestion is a bone marrow biopsy. Don't stress over not knowing, find...

https://connect.mayoclinic.org/comment/1418189/

Discussion: Very worried about MDS. I am extremely anxious and feel very alone.

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2025

No tx yet. Fish analysis MDs extended: issues: Del5q, trisomy 8 and 19 all detected abnormal.

https://connect.mayoclinic.org/comment/1202390/

Discussion: Anyone living with MDS Extended diagnosis experience?

Support Group: Blood Cancers & Disorders

Posted: Jan 2, 2025

Hi Hollie, There are several different types of MDS that indicate whether you are low or...

https://connect.mayoclinic.org/comment/962436/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

By the way, check out the websites for Myleukemia.com, MyMPNteam, MPN Research Foundation, MDS-foundatio.org. They have...

https://connect.mayoclinic.org/comment/328595/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2021