Blood Cancers & Disorders Support Group

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Comments (486)

@deb913 I’m 76 and have been on Jakafi for 1 year with no side effects. It...

https://connect.mayoclinic.org/comment/1443773/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2025

I was frantically looking for answers for 2 years for my itching as my blood counts...

https://connect.mayoclinic.org/comment/870291/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

I had the itching tesllly bad and took loratadine which eventually kicked in. I was on...

https://connect.mayoclinic.org/comment/1430231/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2025

Dear Dave, My mom took Revlimid last year and experienced severe itching on her body. What...

https://connect.mayoclinic.org/comment/1399086/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2025

Yes I too have had itching inside my ears and they were shedding. My fingers were...

https://connect.mayoclinic.org/comment/822904/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2023

You might try Aveeno lotion for the itching. I'm ET and was switching meds a few...

https://connect.mayoclinic.org/comment/857280/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: May 9, 2023

Would your CTCL be Sezary Syndrome or MF? I have SS, have asked about phototherapy but...

https://connect.mayoclinic.org/comment/1111393/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

I very seldom have a rash, but as my hematologist stated. When your blood thickens it...

https://connect.mayoclinic.org/comment/749800/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2022

@kellim, the article was very helpful. Were you able to determine whether the itching you're experiencing...

https://connect.mayoclinic.org/comment/962491/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

Just yesterday, I read somewhere on this site about using Aveeno lotion to sooth itching. I'm...

https://connect.mayoclinic.org/comment/768171/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2022

Hi @niki101 and welcome to Mayo Clinic Connect. I found this article about lymphoma and itching:...

https://connect.mayoclinic.org/comment/312756/

Discussion: Hodgkin's lymphoma and itching and other side effects

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2020

Yes, I have a chronic fatigue--which is what prompted me to see my doctor 3 years...

https://connect.mayoclinic.org/comment/806066/

Discussion: Newly Diagnosed CLL Patients: Do you struggle with symptoms?

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2023

Oddly enough, since my numbers are good now, I only have itching where clothing seams are...

https://connect.mayoclinic.org/comment/750195/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2022

I am 75 years old and was diagnosed three years ago with PCV and Jak 2...

https://connect.mayoclinic.org/comment/985815/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

I take both 500 mg of HU capsules at night, just before bed. I periodically have...

https://connect.mayoclinic.org/comment/1307654/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 19, 2025

Hi @emaddox Relentless itching is the worst, isn’t it? I can tolerate pain over itching any...

https://connect.mayoclinic.org/comment/923860/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

I was 75 and noticed severe itching after swim/bath. PC was uninterested in elevated hematocrit(57), but...

https://connect.mayoclinic.org/comment/885884/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

Hi again! If you read other comments about help with itching/burning , patients are taking JAKAFI...

https://connect.mayoclinic.org/comment/1363700/

Discussion: Severe itching with PV

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2025

I was diagnosed with T Cell Lymphoma (Sezary Syndrome) in 01/23. My understanding is that it’s...

https://connect.mayoclinic.org/comment/1108336/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2024

I’ve had ET for several years with a lot of itching like you. I was prescribed...

https://connect.mayoclinic.org/comment/817021/

Discussion: Essential thrombocythemia (ET) and breaking out in hives: What helps?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2023