Blood Cancers & Disorders Support Group

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Comments (892)

I was diagnosed with CLL in January so far just tire easily!

https://connect.mayoclinic.org/comment/1286185/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2025

Hi @newtothis57, I’d like to add my welcome to you along with @nana120 and @leslie2121 with...

https://connect.mayoclinic.org/comment/987773/

Discussion: Any ideas on how long someone lives with CLL / SLL?

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

I have CLL & on Brukinsa to treat it, one side effect is bruising. They are...

https://connect.mayoclinic.org/comment/1491572/

Discussion: I have CML Does anyone else suffer from major purple (blood) bruising?

Support Group: Blood Cancers & Disorders

Posted: Jan 27 7:04am

I have CLL, not smoldering CLL, and my WBC was never above 17 that I know...

https://connect.mayoclinic.org/comment/1026790/

Discussion: CLL: How do you evaluate well-meaning tips from friends?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024

Hi @markgventnor, it’s not unusual for people to experience itching when they have a blood cancer...

https://connect.mayoclinic.org/comment/992982/

Discussion: What should doctor look for when testing my blood to be CMML donor?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2024

Well. I have been diagnosed with CLL. Mine is rather benign/slow as far as my white...

https://connect.mayoclinic.org/comment/1025544/

Discussion: CLL: How do you evaluate well-meaning tips from friends?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2024

Those labs overall look good. The elevated leukocytes did bump up the WBC which is expected....

https://connect.mayoclinic.org/comment/829076/

Discussion: What are Smudge Cells? Do they indicate CLL?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

Good morning, @tatayababa, it’s my understand that imagining scans alone are not conclusive for diagnosing CLL...

https://connect.mayoclinic.org/comment/815368/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

With CLL lymphoma yes. They also started after my Covid vaccine too.

https://connect.mayoclinic.org/comment/848451/

Discussion: CLL with lambda monoclonal gammopathy

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

Go see a CLL specialist immediately! You may need treatment.

https://connect.mayoclinic.org/comment/812299/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2023

@colleenyoung I was reading another post re: CLL and dizziness ; i have had new dizziness...

https://connect.mayoclinic.org/comment/819086/

Discussion: Diagnosis of low grade lymphoma leukemia

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

Venetoclax is used for CLL according to 2 web cites I have checked.

https://connect.mayoclinic.org/comment/211081/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2019

Have you looked it up in the search bar above? I needed to look up CLL...

https://connect.mayoclinic.org/comment/1233292/

Discussion: Anyone else experiencing these symptoms with CLL diagnosis....?

Support Group: Blood Cancers & Disorders

Posted: Feb 9, 2025

Has anyone with CLL tried Vitamin D3 supplements? Thoughts/ reactions/ recommendations? Thanks

https://connect.mayoclinic.org/comment/1286766/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2025

@glueski The initial trial was very small at Mayo--Mayo only was allotted six slots and included...

https://connect.mayoclinic.org/comment/1525285/

Discussion: How are you managing Brukinsa side effects?

Support Group: Blood Cancers & Disorders

Posted: Mar 12 10:52am

My husband was diagnosed with CLL more than ten years ago. We are facing a secondary...

https://connect.mayoclinic.org/comment/1011809/

Discussion: CLL - Blood work Completed IGVA Mutation Analysis

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2024

Welcome to Connect, @triclonal. Thank you for sharing your positive experience taking Brukinsa. Messages like yours...

https://connect.mayoclinic.org/comment/1439842/

Discussion: Is anyone dealing with CLL, Chronic Lymphoma Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2025

@hikerny, I hope you've been following all the responses to your call for finding others who...

https://connect.mayoclinic.org/comment/1282525/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2025

Hello @54321kl, I thought I would share a search link of Connect that lists related discussions...

https://connect.mayoclinic.org/comment/1126844/

Discussion: CLL and immunization experience

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2024

Hi @david09 and welcome Mayo Connect. There are quite a few members in the forum who...

https://connect.mayoclinic.org/comment/1114765/

Discussion: Lymphoma fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2024