Blood Cancers & Disorders Support Group

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Comments (491)

If you don't want to take a chemo drug, you could ask about Pegasys (interferon). I...

https://connect.mayoclinic.org/comment/764406/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2022

I understand that itching too well, when I first got diagnosed with PV I went through...

https://connect.mayoclinic.org/comment/895517/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

Does anyone else have severe itching and tingling all over really bad at night I have...

https://connect.mayoclinic.org/comment/1088584/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

I’m 78, diagnosed in 2021 with pv. On hydroxyurea 1000mg and hematocrit stays at 45. Itching...

https://connect.mayoclinic.org/comment/833829/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2023

I had horrible itching, especially after showering. We lowered the water hardness and I used a...

https://connect.mayoclinic.org/comment/1293855/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2025

This what I found Many researchers believe it is caused cytokines; chemicals released into the blood...

https://connect.mayoclinic.org/comment/959412/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2023

@loribmt Having been on imatinib for 16 years, multiple oncologists have suggested not to change anything...

https://connect.mayoclinic.org/comment/1552726/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

Thank you for the explanation about the histamine. I do better when I know the reason...

https://connect.mayoclinic.org/comment/1259431/

Discussion: ET Jak2 mutation itching

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2025

@billy70, you mention that you have leukemia. Is this itching and burning something new since your...

https://connect.mayoclinic.org/comment/1181880/

Discussion: High Eosinophils with pain in left side under ribs and very itchy

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2024

I was diagnosed with MF. I have itching on my buttocks and upper legs. I also...

https://connect.mayoclinic.org/comment/1111433/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

I talked to my oncologist and she said that because our basophils and eosinophils are abnormal...

https://connect.mayoclinic.org/comment/962671/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2023

Can you tell me what OTC can be used for the itching and headaches? Tylenol and...

https://connect.mayoclinic.org/comment/1192614/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2024

@claire39, does redness of your scalp cause you any other symptoms like itching or discomfort? Has...

https://connect.mayoclinic.org/comment/146299/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2020

Two years ago, at age 78, I noticed severe itching after bathing. A physicians assistant noticed...

https://connect.mayoclinic.org/comment/872059/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023

I have read your above posts in an attempt to find help for my husband who...

https://connect.mayoclinic.org/comment/872173/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Jun 4, 2023

I too have had many of these exact symptoms. Dr. Said erythrocytosis. I'm to have blood...

https://connect.mayoclinic.org/comment/188874/

Discussion: Is Idiopathic Erythrocytosis (Polycythemia) cancer?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2018

If you are still itching quite a bit it's because your blood is still too high...

https://connect.mayoclinic.org/comment/895683/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

For the itching I stopped taking showers in the winter. I wash my hair in the...

https://connect.mayoclinic.org/comment/1018657/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2024

I was diagnosed with cutaneous T-cell Lymphoma in November 2024 and now undergoing treatment with Valchlor...

https://connect.mayoclinic.org/comment/1251949/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

My husband recieves Arnesp injections every 2 weeks until his hgb ia 10 or above. He...

https://connect.mayoclinic.org/comment/996612/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024