Blood Cancers & Disorders Support Group

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Comments (1,099)

I was told with Jak 2 mutation … blood donation is a NO

https://connect.mayoclinic.org/comment/902129/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2023

When I was diagnosed, with PCV and Jak 2 positive, the first thing they did was...

https://connect.mayoclinic.org/comment/891492/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2023

Combination of lower ferritin levels, ulcers in stomach and lower intestine and a blood clot -...

https://connect.mayoclinic.org/comment/873481/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2023

Been searching for over 2 years, one hematologist oncologist has diagnosed PV. 1 test for jak-2...

https://connect.mayoclinic.org/comment/872618/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

Welcome @christinele. You can choose to follow only discussions related to ET and JAK 2. Here's...

https://connect.mayoclinic.org/comment/845309/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

If they are checking for Polycythemia Vera, the Jak 2 test (Pisitive)will confirm. No need to...

https://connect.mayoclinic.org/comment/827691/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

I was diagnosed with PCV 3 months ago, but had itching symptoms since 2019. I tested...

https://connect.mayoclinic.org/comment/729287/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2022

I have a diagnosis of ET strictly on (slightly) elevated platelets and a positive JAK 2...

https://connect.mayoclinic.org/comment/728817/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2022

My daughter was diagnosed couple weeks ago with JAK 2. First thing he ordered was a...

https://connect.mayoclinic.org/comment/328571/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2020

Colleen. All he said was to see him in 6 months - when I questioned him...

https://connect.mayoclinic.org/comment/328560/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2020

Thank you for getting back with me - I truly am appreciative for you input. Have...

https://connect.mayoclinic.org/comment/328554/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2020

I was also diagnosed two years ago at 47. After my daughter was born, I started...

https://connect.mayoclinic.org/comment/1281009/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 13 1:55pm

I’ve been on HU after being diagnosed with ET as a result of JAK-2 mutation shortly...

https://connect.mayoclinic.org/comment/1243570/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Feb 23 9:17am

I continue to read about the effects of certain foods on JAK 2 I would like...

https://connect.mayoclinic.org/comment/194304/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2019

Hello, first I’m sorry if they are mistakes in the text since my first language is...

https://connect.mayoclinic.org/comment/194290/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2019

I have a question and this might already have been discussed but has anyone ever had...

https://connect.mayoclinic.org/comment/194274/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2019

I was diagnosed with Polycythemia Vera three years ago. I was experiencing symptoms akin to high...

https://connect.mayoclinic.org/comment/231775/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2018

I was diagnosed 6/2023, with Essential Thrombocytosis, Jak 2. It took about one year for my...

https://connect.mayoclinic.org/comment/1208528/

Discussion: Does ET or HU affect liver functions?

Support Group: Blood Cancers & Disorders

Posted: Jan 10 4:06pm

I’m 76 and was diagnosed with PV/ Jak 2. 3 yrs ago .I have been on...

https://connect.mayoclinic.org/comment/1236551/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 14 8:10am