Blood Cancers & Disorders Support Group

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Comments (867)

Get a second opinion. UW Health, Madison, Wisconsin, has Dr. Natallie Callandar, an Elite doctor and...

https://connect.mayoclinic.org/comment/1438390/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Nov 14, 2025

assuming you mean multiple myeloma, and not "multiple melanoma"? Melanoma is a skin cancer, myeloma is...

https://connect.mayoclinic.org/comment/1371398/

Discussion: What are my chances that MGUS turns into multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2025

@bobweller It’s estimated that 3% of people under 70 and 5% of those over 70 (if...

https://connect.mayoclinic.org/comment/1121534/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 11, 2024

Oops, sorry - I forgot the link to the second chunk. It's https://www.mymyelomateam.com/resources/managing-fatigue-and-multiple-myeloma/.

https://connect.mayoclinic.org/comment/982403/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2023

How often should you get MRi and /or bone marrow biopsies when you have Smoldering multiple...

https://connect.mayoclinic.org/comment/914968/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2023

What Numbers need to change in order for you to be certified to have multiple myeloma?...

https://connect.mayoclinic.org/comment/1118416/

Discussion: Stopping Myeloma at the MGUS Stage

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2024

I replied to Oregon by mistake. We just got a diagnosis of multiple myeloma today. I...

https://connect.mayoclinic.org/comment/209501/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2018

Just recently diaganosed as well with MGUS. I'll soon be scheduled for a bone marrow biopsy....

https://connect.mayoclinic.org/comment/898665/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2023

Diagnosed with Vexas? Yes. Clinically, genetically, historically. At first we thought it was Multiple Myeloma, but...

https://connect.mayoclinic.org/comment/1060305/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: May 1, 2024

@ancopau1998 Angie, it will be interesting to hear about your acupuncture journey! I have had it...

https://connect.mayoclinic.org/comment/851898/

Discussion: Does Acupuncture help low back pain caused by multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

Hi @chickey and welcome to Mayo Clinic Connect. I am so sorry to hear about your...

https://connect.mayoclinic.org/comment/109784/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2020

I’m trying to connect with someone who not only has multiple myeloma but also amyloidosis to...

https://connect.mayoclinic.org/comment/873112/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

I am being followed for possibley developing multiple myeloma. I have bone scans every three months...

https://connect.mayoclinic.org/comment/50112/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2011

Hi @patbrun, a late welcome to Connect. If you don't mind sharing, how are you doing...

https://connect.mayoclinic.org/comment/109712/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: May 30, 2019

If you do not think your doctor is 100 percent correct, speak with others and do...

https://connect.mayoclinic.org/comment/1102710/

Discussion: Blood Test Results Concerning

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

@blessing19, I am sorry to hear of your mother's diagnosis of myeloma. If you don't mind...

https://connect.mayoclinic.org/comment/290965/

Discussion: 1q21 gain myeloma

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2020

@splashgirl1961 First, welcome to Mayo Clinic Connect. I can imagine it is quite daunting to get...

https://connect.mayoclinic.org/comment/808211/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Hi Angie, I'd like to add my welcome. Are you currently on chemo for multiple myeloma?...

https://connect.mayoclinic.org/comment/663378/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2021

New link: "Learn how eating a plant-based diet may prevent MGUS and smoldering myeloma from developing...

https://connect.mayoclinic.org/comment/886522/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2023

Hi @scsteve, I'd like to add my welcome. Have you had a bone marrow transplant or...

https://connect.mayoclinic.org/comment/615412/

Discussion: Recently diagosed with Multiple Myeloma: What treatments did you have?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2021