Blood Cancers & Disorders Support Group

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Comments (2,256)

I have ET with the JAK2 mutation as well as MDS. I am taking 500mg of...

https://connect.mayoclinic.org/comment/930458/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2023

Hi Sarah, I was doagnosed with Et in November 2022. Taking 1000 mg Hydroxuria per day....

https://connect.mayoclinic.org/comment/1556523/

Discussion: Essential Thrombocythemia JAK2 symptoms of dizziness/vision distortion

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

@docheat72 All of us here with ET have the opposite problem with platelets--too many. Do you...

https://connect.mayoclinic.org/comment/1415159/

Discussion: Is foot/toe pain a symptom of increasing platelets in ET?

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2025

stupid question what is ET?

https://connect.mayoclinic.org/comment/737465/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2022

Yes , I have ET

https://connect.mayoclinic.org/comment/1269339/

Discussion: Up to date info

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2025

https://connect.mayoclinic.org/comment/1023715/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2024

And yes, ET w/JAK2.

https://connect.mayoclinic.org/comment/895995/

Discussion: Overwhelmed- diagnosed with Thrombocytosis & Leukocytosis

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

I have ET with JAK2.

https://connect.mayoclinic.org/comment/1331414/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2025

Over the last few years, studies have shown that reducing the allele burden for PV and...

https://connect.mayoclinic.org/comment/1222127/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2025

I was diagnosed in June 2022 with ET JAK2. I have been on different doses of...

https://connect.mayoclinic.org/comment/1184092/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2024

@emma1971 I took Hydroxyurea in the 90’s for about 4 years. I did great on it...

https://connect.mayoclinic.org/comment/1419759/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2025

@dwlowrance, I wonder if you would get answers to your questions about hydroxyurea more readily in...

https://connect.mayoclinic.org/comment/599324/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 4, 2021

Is a UTI common with ET or Hydroxyurea?

https://connect.mayoclinic.org/comment/1010929/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2024

Re migraines: Once the aura was gone, the headache was bearable, though lying down in a...

https://connect.mayoclinic.org/comment/1529428/

Discussion: ET: untreated elevated platelets for over 13 years

Support Group: Blood Cancers & Disorders

Posted: Mar 17 8:14pm

I had RnY as well and am ET/Jak2. I have been iron deficient for years. My...

https://connect.mayoclinic.org/comment/1548495/

Discussion: Newly diagnosed with Iron Deficiency Anemia

Support Group: Blood Cancers & Disorders

Posted: Apr 12 8:31am

Tip to those taking dietary supplements for ET: Let your doc know what you are taking...

https://connect.mayoclinic.org/comment/1502514/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Feb 10 12:19pm

I'm sorry you're having stress and hair loss. I'm 70, and the effects of aging can...

https://connect.mayoclinic.org/comment/1278413/

Discussion: Has anyone with ET used PRP (Platelet-rich Plasma) for healing?

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2025

My ET was discovered through blood tests to diagnose other issues (I ended up being diagnosed...

https://connect.mayoclinic.org/comment/1212667/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 15, 2025

@msmac3 Thank you for your patience with me and your kind words! I guess that was...

https://connect.mayoclinic.org/comment/1417209/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2025

Have you had a bone marrow biopsy to be sure that what you’re dealing with is...

https://connect.mayoclinic.org/comment/1215424/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2025