Blood Cancers & Disorders Support Group

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Comments (634)

Well. I have been diagnosed with CLL. Mine is rather benign/slow as far as my white...

https://connect.mayoclinic.org/comment/1025544/

Discussion: CLL: How do you evaluate well-meaning tips from friends?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2024

Venetoclax is used for CLL according to 2 web cites I have checked.

https://connect.mayoclinic.org/comment/211081/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2019

Hi @newtothis57, I’d like to add my welcome to you along with @nana120 and @leslie2121 with...

https://connect.mayoclinic.org/comment/987773/

Discussion: Any ideas on how long someone lives with CLL / SLL?

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

Go see a CLL expert hematologist. Don’t mess with EGCG without expert advice.

https://connect.mayoclinic.org/comment/739086/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2022

@colleenyoung I was reading another post re: CLL and dizziness ; i have had new dizziness...

https://connect.mayoclinic.org/comment/819086/

Discussion: Diagnosis of low grade lymphoma leukemia

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

I have CLL, not smoldering CLL, and my WBC was never above 17 that I know...

https://connect.mayoclinic.org/comment/1026790/

Discussion: CLL: How do you evaluate well-meaning tips from friends?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024

Go see a CLL specialist immediately! You may need treatment.

https://connect.mayoclinic.org/comment/812299/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2023

I met with Dr. Wang at Mayo yesterday. I asked about green tea in passing; he...

https://connect.mayoclinic.org/comment/799695/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

Hi @markgventnor, it’s not unusual for people to experience itching when they have a blood cancer...

https://connect.mayoclinic.org/comment/992982/

Discussion: What should doctor look for when testing my blood to be CMML donor?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2024

Good morning, @tatayababa, it’s my understand that imagining scans alone are not conclusive for diagnosing CLL...

https://connect.mayoclinic.org/comment/815368/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

Finally :-) :-( I have a diagnosis from a Mayo CLL doc. He said I have...

https://connect.mayoclinic.org/comment/1044933/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

Hello @linepa2002 Welcome to Connect. I’m happy to see you’ve already discovered some helpful posts with...

https://connect.mayoclinic.org/comment/847737/

Discussion: CLL with lambda monoclonal gammopathy

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

This article seems to concentrate on asymptomatic patients. Have their been studies for symptomatic patients with...

https://connect.mayoclinic.org/comment/815484/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

I am 67 and was just diagnosed with CLL. Awaiting more testing and surgery. @shirlpat

https://connect.mayoclinic.org/comment/750637/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

Hi. I’m almost 59 and just diagnosed with CLL. No symptoms as of today. How are...

https://connect.mayoclinic.org/comment/1090052/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2024

Hi @tatayababa, I found some information for you that might help explain CLL and SLL, the...

https://connect.mayoclinic.org/comment/813986/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2023

Hi @david09 and welcome Mayo Connect. There are quite a few members in the forum who...

https://connect.mayoclinic.org/comment/1114765/

Discussion: Lymphoma fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2024

Welcome to Connect, @cll2020. Thank you for sharing your journey with CLL. It’s positive stories like...

https://connect.mayoclinic.org/comment/1091030/

Discussion: Is anyone taking Ibrutinib (Imbruvica)?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024

I see @colleenyoung’s link to Mayo Clinic hematologist, Sameer Parikh, M.B.B.S. The video is well worth...

https://connect.mayoclinic.org/comment/853727/

Discussion: New to CLL-no treatment-what to eat?

Support Group: Blood Cancers & Disorders

Posted: May 3, 2023

@marthalewfinn918, Hello Martha, Chronic lymphocytic leukemia (CLL) is a type of cancer of the blood and...

https://connect.mayoclinic.org/comment/113631/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2018