Blood Cancers & Disorders Support Group

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Comments (1,035)

He will be having another BMB in November. He seems to tire more easily lately. i...

https://connect.mayoclinic.org/comment/945955/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2023

Welcome to Connect, @mybeachbijou. Oh my goodness, your poor brother has been through so much in...

https://connect.mayoclinic.org/comment/879524/

Discussion: How does someone “feel” with untreated AML?

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Good morning, @shels93 Oh gosh, I hope your husband’s appointment with the specialist doesn’t have to...

https://connect.mayoclinic.org/comment/781076/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2022

Lori-thank you so much for the fast reply. He has not been given anything (specifically Neulasta...

https://connect.mayoclinic.org/comment/780979/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2022

I don’t get overly fatigued but the Hydea does give me an upset stomach that lasts...

https://connect.mayoclinic.org/comment/194335/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2019

I was diagnosed with MDS in March of this year. I saw a hematologist who did...

https://connect.mayoclinic.org/comment/1329933/

Discussion: WBC count keeps getting lower and lower

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2025

I am at my 98th day after transplant. I saw my doctor today and he super...

https://connect.mayoclinic.org/comment/1106815/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 16, 2024

Welcome to Connect @kmak1939stuart. I am sorry to hear about your diagnosis of MDS and the...

https://connect.mayoclinic.org/comment/1083696/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

mikecaldwell---------Amazing journeys we are on. As a platelet donor for 25 years with the Red Cross...

https://connect.mayoclinic.org/comment/1327952/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2025

Good morning, rjperk633 (@rjperk633) Thank you, thank you for all this information! I went over it...

https://connect.mayoclinic.org/comment/1385731/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2025

My platelets have ranged from 50 to 80 for the last 2.5 years. We check blood...

https://connect.mayoclinic.org/comment/1233715/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Feb 10, 2025

Hi Kat! Reading through your reply just now, I’m wondering if the medication your doctor was...

https://connect.mayoclinic.org/comment/1210230/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 12, 2025

Lori always has a wealth of knowledge to share with us when we are first diagnosed...

https://connect.mayoclinic.org/comment/1183515/

Discussion: What treatment options for CMML2 with no detected mutations ?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2024

Hi @oliviamitza Welcome to Mayo Connect. I’m so sorry to hear that your mom’s blood condition...

https://connect.mayoclinic.org/comment/1505453/

Discussion: Polycythemia Vera: What is next when treatment stops working?

Support Group: Blood Cancers & Disorders

Posted: Feb 14 9:32am

Thank you for the update!! I was wondering how your husband was doing after his transplant!...

https://connect.mayoclinic.org/comment/815003/

Discussion: Any suggestions to alleviate Bone Pain from Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2023

Hi @dindazz It sounds like your mom is at a crossroads in her cancer treatments. Even...

https://connect.mayoclinic.org/comment/1400199/

Discussion: Vidaza, keep going or stop

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2025

Diane, Oh my....go through with it. Our minds can play games with us. I m a...

https://connect.mayoclinic.org/comment/1367734/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 10, 2025

Hi Lisa, My husband Dave has struggled with chronic anemia and fatigue for 2 1/2 years....

https://connect.mayoclinic.org/comment/1163480/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2024

Hi Susan, Welcome to Connect. From my experience, with basically the same timeline as your AML/7+3,...

https://connect.mayoclinic.org/comment/1075292/

Discussion: How long from diagnosis of AML typically comes the BMT?

Support Group: Blood Cancers & Disorders

Posted: May 26, 2024

Hello. No I certainly did not make this up. I didn't say the company name because...

https://connect.mayoclinic.org/comment/987086/

Discussion: Insurance has denied coverage

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2023