Blood Cancers & Disorders Support Group

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Comments (1,035)

I am so very grateful for both of your comments. So, thank you! Yet, I remain...

https://connect.mayoclinic.org/comment/901337/

Discussion: MDS: How to improve my condition in watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2023

Gail, thank you so much for your reply. My husband was diagnosed with MDS with multilineage...

https://connect.mayoclinic.org/comment/1255552/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2025

Thank you both for thee updates!! As i took my walk today i thought that without...

https://connect.mayoclinic.org/comment/1185491/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Dec 6, 2024

Well, I got news from my sister, that my cat died early this morning. Honestly, what...

https://connect.mayoclinic.org/comment/1102250/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 9, 2024

To you both! My days following the transplant included 2 more rounds of a chemo for...

https://connect.mayoclinic.org/comment/1085799/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 12, 2024

Thank you! I've been reading research papers, articles, etc. for about a week straight now, and...

https://connect.mayoclinic.org/comment/1396313/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2025

I have skin only Langerhans cell histiocytosis (LCH), a rare blood disease, chronic myelomonocytic leukemia (CMML)...

https://connect.mayoclinic.org/comment/942040/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2023

Thank you for your insight. Over the course of less than a year, I went from...

https://connect.mayoclinic.org/comment/1251599/

Discussion: Anyone have both Myelodysplastic Syndrome (MDS) & Parkinson's?

Support Group: Parkinson's Disease

Posted: Mar 6, 2025

Thank you Lori, Have had the bursitis pain for a while and my PCP did an...

https://connect.mayoclinic.org/comment/1172498/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

Slow posting. Well, I had my 6-month CT scan last month. My nurse was out on...

https://connect.mayoclinic.org/comment/1430165/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 3, 2025

Ooops @kippi1950 and @loki525, I forgot to actually post links to the information on causes of...

https://connect.mayoclinic.org/comment/1071458/

Discussion: Lymphoma fatigue

Support Group: Blood Cancers & Disorders

Posted: May 20, 2024

I just found out yesterday that I have melody spastic syndrome. I am in the slow...

https://connect.mayoclinic.org/comment/1015856/

Discussion: Bone marrow transplants for CMML

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Feb 14, 2024

Good morning, @jps01 I think we’re getting to be old friends here…I’m always popping up with...

https://connect.mayoclinic.org/comment/929726/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2023

I was fortunate enough to get an appointment at Mayo Clinic, Rochester, Mn. with a hematologist...

https://connect.mayoclinic.org/comment/1460834/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2025

Always happy to see your updates, @katgob! All good news for you again…and that’s the way...

https://connect.mayoclinic.org/comment/1430635/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 4, 2025

He does exercise as much as he can handle right now. He knows the importance of...

https://connect.mayoclinic.org/comment/1398847/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2025

Rhodys, when my husband was at his worst and was using a walker (which he had...

https://connect.mayoclinic.org/comment/1251226/

Discussion: Anyone have both Myelodysplastic Syndrome (MDS) & Parkinson's?

Support Group: Parkinson's Disease

Posted: Mar 5, 2025

Hi & thank you for the links. It really helps to stay informed & read &...

https://connect.mayoclinic.org/comment/1229968/

Discussion: Low hemoglobin and enlarged liver and spleen

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2025

I am a 79 year old male who was exposed to agent orange having bolunteered for...

https://connect.mayoclinic.org/comment/1176756/

Discussion: Venetoclax plus decitabine not working?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

Hi Tammy, I have MDS/MPN overlap with Thrombocytosis and MF. My platelet count was about 800,000...

https://connect.mayoclinic.org/comment/146305/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2020