Blood Cancers & Disorders: Discussions | Page 1

Hi @mags17 I’m sorry if there was some confusion but my reply was written to @lostmonk...

https://connect.mayoclinic.org/comment/936391/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

Hi Lori, I've been a forum slacker, thanks for reaching back out to check on me....

https://connect.mayoclinic.org/comment/919551/

Discussion: PV with high blood pressure and now edema??

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

Good morning everyone! I am a 50 year old female and went to get my annual...

https://connect.mayoclinic.org/comment/756950/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2022

Not sure if this is the place to write a follow up note. I have written...

https://connect.mayoclinic.org/comment/194314/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2019

Some commenters experienced a gradual increase of platelets. Mine shot up from 250 in July 2024...

https://connect.mayoclinic.org/comment/1269150/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Mar 29 8:11am

First, Im sorry for your loss. Second, thank God for your husband. Now, and I will...

https://connect.mayoclinic.org/comment/1277843/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 9 11:41am

Good morning! I wish we could have a cup of coffee together. Your post sounds familiar...

https://connect.mayoclinic.org/comment/1279837/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 12 7:56am

Hi, Is this ‘ JAK 2 positive result only attributes to a 7% chance that it...

https://connect.mayoclinic.org/comment/1281113/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Apr 13 4:22pm

Just had my labs this morning. My platelet count was 421. Doc says not to worry...

https://connect.mayoclinic.org/comment/1276461/

Discussion: My platelet count has increased after a year on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: Apr 7 1:08pm

Hello. Please trust what you are feeling. No one else knows you like you! And, get...

https://connect.mayoclinic.org/comment/1277502/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 9 12:52am

I was also diagnosed two years ago at 47. After my daughter was born, I started...

https://connect.mayoclinic.org/comment/1281009/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 13 1:55pm

Hello, I see you're taking both Nattokinase and aspirin. I just started on my journey being...

https://connect.mayoclinic.org/comment/1258964/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 15 8:02pm

ET is a diagnosis thrown at patients who exhibit high consistent high platelet counts. You don’t...

https://connect.mayoclinic.org/comment/1247945/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 1 9:56am

Interesting that your platelet increase was identified after a cardiology procedure. If I may ask, what...

https://connect.mayoclinic.org/comment/1248582/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 2 9:55am

Not sure of your stated dosage intake. How many 500 mg (HU) are you taking per...

https://connect.mayoclinic.org/comment/1237416/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 15 10:01am

I am also CALR and it took a year to get the right HU dose. I...

https://connect.mayoclinic.org/comment/1262502/

Discussion: Enhancing body's natural abilities toward healing...

Support Group: Blood Cancers & Disorders

Posted: Mar 20 9:05am

I’m 76 and was diagnosed with PV/ Jak 2. 3 yrs ago .I have been on...

https://connect.mayoclinic.org/comment/1236551/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 14 8:10am

I’ve been on HU after being diagnosed with ET as a result of JAK-2 mutation shortly...

https://connect.mayoclinic.org/comment/1243570/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Feb 23 9:17am

I’m on my second month of Jakafi. I’ve had no side effects and so far my...

https://connect.mayoclinic.org/comment/1200841/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2024

I was diagnosed with Polycythemia Vera about three years ago. It was explained to me that...

https://connect.mayoclinic.org/comment/1163233/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

Blood Cancers & Disorders Support Group