Blood Cancers & Disorders Support Group

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Comments (1,102)

Vent all you want here. Firstly, your getting it out and you have people with the...

https://connect.mayoclinic.org/comment/1324057/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: Jun 10 6:59am

Thank you for posting these results. It helps to see the actual numbers. I’m not a...

https://connect.mayoclinic.org/comment/1083081/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2024

I was originally misdiagnosed with Essential Thrombocythemia in 2018 by a hematologist at the VA Hospital...

https://connect.mayoclinic.org/comment/328598/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

Anna, I had year fluctuations of platelet levels, all over normal, for almost 30 years before...

https://connect.mayoclinic.org/comment/826050/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Welcome to Connect, @mariaalive. It sounds like you’re very proactive in taking care of your health...

https://connect.mayoclinic.org/comment/1196339/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2024

Oh heck Yeah! Diagnosed with ET and Jak2 was just one of the ten markers I...

https://connect.mayoclinic.org/comment/695189/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2022

Hi, I had all the classic symptoms of PV and at my annual visit my bloodwork...

https://connect.mayoclinic.org/comment/1024405/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2024

Hi @ausableriver, Polycythemia Vera is a condition where the bone marrow makes too many red blood...

https://connect.mayoclinic.org/comment/1003392/

Discussion: Secondary polycythemia: What are the treatment options?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2024

I was diagnosed with ET at 27. I had been having unusual, extensive bruising and severe...

https://connect.mayoclinic.org/comment/792696/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

My diagnosis of ET with Jak2 Mutation came after high platelets, 780K, were found on a...

https://connect.mayoclinic.org/comment/997096/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2024

Hi jackt00 - I also have the Jak2 mutation. I am 77 and have had the...

https://connect.mayoclinic.org/comment/830393/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2023

I am 62 years old. I was diagnosed with ET a year ago and I am...

https://connect.mayoclinic.org/comment/57940/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2020

Our first experience with Jakafi was 3 years ago, my mom has ET (Jak2) her journey...

https://connect.mayoclinic.org/comment/1299993/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: May 8 4:28pm

Which Mayo Clinic location are you going to? The top doctors at Mayo for this rare...

https://connect.mayoclinic.org/comment/1314708/

Discussion: Primary Myelofibrosis: What is life going to be like now?

Support Group: Blood Cancers & Disorders

Posted: May 28 9:08am

@ettap you have a lot of reasonable questions. I'm not a doctor. I just have Jak2...

https://connect.mayoclinic.org/comment/919110/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2023

Good morning, Keith. I have to confess that you and I are not on the same...

https://connect.mayoclinic.org/comment/912206/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

Hi. I have been on HU for 2 years since 2023. My biggest issue is dry...

https://connect.mayoclinic.org/comment/1221373/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 25 11:53am

My health is a bit like that of Lourdene's--65 years old, long time high platelets but...

https://connect.mayoclinic.org/comment/941362/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

Hi Jewelfaux, I think the answer about "does it make a difference to have diagnosis done...

https://connect.mayoclinic.org/comment/878241/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

Hi again @snakebite , Thank you for responding and sharing your situation so fast! Like you,...

https://connect.mayoclinic.org/comment/1345194/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: 4 days ago