Blood Cancers & Disorders Support Group

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Comments (1,383)

I am 79 with ET JAK2+ diagnosed in the fall of 2024 after a serious bout...

https://connect.mayoclinic.org/comment/1245157/

Discussion: Do you Tell Family, Friends & Co Workers about your Cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2025

My platelets were over 600 and approached 1000 before being diagnosed with ET /JAK2. Initial dosing...

https://connect.mayoclinic.org/comment/1221139/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2025

Hi Tessa My mum was diagnosed with ET when she went to routinely donate blood. She...

https://connect.mayoclinic.org/comment/1069140/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: May 16, 2024

I think we all have to do our own research and listen to our own doctors....

https://connect.mayoclinic.org/comment/994348/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

I was diagnosed with ET with Jak2 by accident 2005. My 1st. Hematologist started me on...

https://connect.mayoclinic.org/comment/966728/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2023

Good question! I have been going over this in my mind for a couple of weeks....

https://connect.mayoclinic.org/comment/788217/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2022

Hello! So I was recently diagnosed with ET as my platelets rose from 300-to 650 in...

https://connect.mayoclinic.org/comment/781132/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2022

I am 65 JAK2 positive ET. My hematologist has me on low dose aspirin (1 per...

https://connect.mayoclinic.org/comment/778819/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

@irishnanny3 Hello. Based on what I have read about PV, it appears to me that there...

https://connect.mayoclinic.org/comment/1455104/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2025

The varying side effects are interesting to me. I have them all! I started on HU...

https://connect.mayoclinic.org/comment/1347512/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2025

Welcome to Connect, @shellep16 As fellow member @eloise999 mentioned, an allogenic SCT (using donor cells) would...

https://connect.mayoclinic.org/comment/1324156/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2025

Hi Lynne, I am also triple negative ET. You’re the first person that I’ve “met” on...

https://connect.mayoclinic.org/comment/1246167/

Discussion: Like to know more. Just told I have Triple Negative MPN.

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2025

Hi @rosereb. Hemoglobin and hematocrit are based on whole blood numbers and are dependent on plasma...

https://connect.mayoclinic.org/comment/1131371/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2024

I've been taking 600mgs of hydroxyurea (Droxia formulation) daily for myelofibrosis for the past 6 yrs....

https://connect.mayoclinic.org/comment/1080798/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

I have ET Jak2 and I understand that we all react differently to medications....I have seen...

https://connect.mayoclinic.org/comment/966274/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2023

My platelets have increased over the past few months, now seeing a hematologist who just confirmed...

https://connect.mayoclinic.org/comment/833990/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2023

I have been prescribed Inegra, which is a combo of Iron and Vitamin C and is...

https://connect.mayoclinic.org/comment/1239853/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2025

It's my understanding that PV IS a blood cancer, it's a progressive disease with no cure..There...

https://connect.mayoclinic.org/comment/1086347/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

I’m extremely late to this as I’m sure that by now you’ve been either diagnosed or...

https://connect.mayoclinic.org/comment/1192993/

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024

@misty45, Thank you for replying and telling me your story. Having a positive JAK2 result, I'm...

https://connect.mayoclinic.org/comment/194261/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2018