Blood Cancers & Disorders Support Group

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Comments (1,047)

I had developed bad high blood pressure. I was put on medication to help with that....

https://connect.mayoclinic.org/comment/877194/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2023

Hello @momoffivetoo. I’m 77 now and was diagnosed with PV in 1/2020. It was discovered by...

https://connect.mayoclinic.org/comment/1277135/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 8 11:58am

Hi @arti4 When something causes a disruption in the normal function of our bone marrow, such...

https://connect.mayoclinic.org/comment/759044/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2022

Thank you so much for all your encouragement, you are super positive & determined to keep...

https://connect.mayoclinic.org/comment/966802/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2023

Hi lefsequeen, I am new to this group also. Hope I'm doing this correctly..... I was...

https://connect.mayoclinic.org/comment/334498/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

What we put in our bodies, food or onnour skins, is medicine. Food is medicine, when...

https://connect.mayoclinic.org/comment/1010051/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Diagnosed with ET 5 years ago….high platlets led to Bone Marrow Biopsy to confirm and found...

https://connect.mayoclinic.org/comment/890099/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Hi @lavender28 Welcome to Mayo Connect. It helps to know you’re not alone in a diagnosis....

https://connect.mayoclinic.org/comment/858668/

Discussion: Polycythemia vera (PV): Does altitude matter?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2023

Hi all. I’m a 60 y/o female. I have had consistently above normal RBC, HCT, and....

https://connect.mayoclinic.org/comment/49171/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Mar 2, 2021

Hi Rose, You were recently diagnosied with ET, which means your body is producing too many...

https://connect.mayoclinic.org/comment/1114556/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2024

hello. I was diagnosed with ET over 25 years ago, while young and in the Service...

https://connect.mayoclinic.org/comment/890155/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Not sure I understand that question. About a yr and 1/2 ago. My Hgb/HCT was found...

https://connect.mayoclinic.org/comment/662436/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

Hi @monarenae Welcome to Mayo Clinic Connect! In this community based forum, we’re not medical professionals...

https://connect.mayoclinic.org/comment/609161/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2021

Good morning, @chella65. Thank you for your kind words. I’m happy I can be that voice...

https://connect.mayoclinic.org/comment/912141/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

Probably doesn't matter how I made my decision. Everyone has different ideas, fears, and circumstances. If...

https://connect.mayoclinic.org/comment/778790/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

@1pearl, I found another member diagnosed with MF with the CALR mutation and have put the...

https://connect.mayoclinic.org/comment/1256632/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 12 10:51pm

Hello Lori. Thank you for your response and congratulations in apparently overcoming leukemia. My Wife has...

https://connect.mayoclinic.org/comment/912090/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

Yes, sick stomach from Hydrea, massive hair loss after 2 years of taking the stuff, initially...

https://connect.mayoclinic.org/comment/951861/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2023

Hi @sonja239. I understand your duress with having received news that you have two myeloproliferative blood...

https://connect.mayoclinic.org/comment/1097321/

Discussion: Why is a new bone marrow biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2024

Hi Lori, long time no talk! Wishing you a very happy & healthy 2024. Wanted to...

https://connect.mayoclinic.org/comment/1004117/

Discussion: Secondary polycythemia: What are the treatment options?

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2024