Blood Cancers & Disorders: Discussions | Page 45

My mom(75yr old) was recently diagnosed with AML-M7 (acute megakaryoblastic leukemia) which progressed from JAK2 myelofibrosis...

https://connect.mayoclinic.org/comment/1250454/

Discussion: Acute Myeloid Leukemia (AML) - Treatment of 75 year old is working!

Support Group: Blood Cancers & Disorders

Posted: Mar 4 3:25pm

Hi Wendy, it’s my pleasure to help any way I can. Going through my leukemia and...

https://connect.mayoclinic.org/comment/876086/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023

I was 60 when diagnosed, but hemo looked at past CBCs and said elevated platelets were...

https://connect.mayoclinic.org/comment/1319389/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 3 11:49am

Mine came out of nowhere - last September I started with severe GI issues after a...

https://connect.mayoclinic.org/comment/1060628/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 2, 2024

https://connect.mayoclinic.org/comment/1221350/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 25 11:28am

Welcome @ontheverge I am 79 and was diagnosed last year with ET JAK2 by labs and...

https://connect.mayoclinic.org/comment/869114/

Discussion: JAK2 V617F Essential Thrombocythemia: Hydroxyurea causes headaches

Support Group: Blood Cancers & Disorders

Posted: May 30, 2023

Well this is my gang, here. I was just diagnosed (age 64, now one day away...

https://connect.mayoclinic.org/comment/778788/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

To eetap, 1) The JAK2 mutation is typically found either after a clotting event or routine...

https://connect.mayoclinic.org/comment/719531/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

Hi @onthejoedock Polycythemia vera is a type of cancer that causes red blood cells to multiply....

https://connect.mayoclinic.org/comment/1009341/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2024

Good luck with the Besremi. I have been taking it for about a year and a...

https://connect.mayoclinic.org/comment/1235142/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Feb 12 10:08am

I have documented (JAK2 positive) PV and on hydrox..I understand your fear and there are many...

https://connect.mayoclinic.org/comment/1097487/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2024

Hi Beth, My experience is very similar to yours. BMB in September 2020 favors ET with...

https://connect.mayoclinic.org/comment/840273/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

Hi Pink Flamingo, I call this "the scary club". Friends laugh at this and laughter is...

https://connect.mayoclinic.org/comment/836941/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2023

I was officially diagnosed with ET this spring and tested positive for JAK2. 53 years old,...

https://connect.mayoclinic.org/comment/1194488/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2024

I’m awaiting my JAK2 V617F status and overwhelmed by so much information. I’ve had several episodes...

https://connect.mayoclinic.org/comment/810105/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2023

As a follow up to my question, I searched for diagnostic criteria for PV (since they...

https://connect.mayoclinic.org/comment/231777/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2019

@nohrt4me: I was diagnosed with ET when I was 50 with JAK2. My platelet level was...

https://connect.mayoclinic.org/comment/1329234/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jun 17 1:30pm

Hi jello13577, I really like your approach. I have CALR and not JAK2, but I do...

https://connect.mayoclinic.org/comment/1294207/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: May 1 10:39am

Hey dunewalker, I did the bone marrow biopsy last week at Mayo and went over results...

https://connect.mayoclinic.org/comment/1293666/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Apr 30 3:41pm

The drug Hydrea/hydroxyurea has been around and used for about 45 years. It is generally well...

https://connect.mayoclinic.org/comment/1312634/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 25 1:59pm

Blood Cancers & Disorders Support Group