Blood Cancers & Disorders Support Group

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Comments (1,382)

Hi Wiggins32....My nurse practitioner was the person who found the causative factor of my high platelet...

https://connect.mayoclinic.org/comment/782402/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

@loribmt Hi, thank you for your notes. We have already ruled out many of those secondary...

https://connect.mayoclinic.org/comment/1467056/

Discussion: Diagnosed polycythemia vera at 26: Any young PV patients out there?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2025

The more research I do regarding my wife (Becky’s) ET diagnosis the more I’m wondering about...

https://connect.mayoclinic.org/comment/1154205/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2024

Hi Terry @terese7 Essential Thrombocythemia is a blood condition where your bone marrow is producing too...

https://connect.mayoclinic.org/comment/1091025/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024

Hi Steve, Welcome to Connect. ET, or essential thrombocythemia is one of a group of blood...

https://connect.mayoclinic.org/comment/1145659/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2024

My father passed away from a battle of myelofibrosis (MF), over 10 years after being diagnosed...

https://connect.mayoclinic.org/comment/646343/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2021

Oh my. My first thought was a 2nd opinion. More with more experience will respond soon,...

https://connect.mayoclinic.org/comment/1395690/

Discussion: My wife tested positive for jak2 and has high platelet count

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2025

What dosage have you been prescibed? ET patients usually only need very low dosages of hydrea....

https://connect.mayoclinic.org/comment/1172215/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

I am 72, have ET with JAK2, and been on Droxia for 10 years. My dosage...

https://connect.mayoclinic.org/comment/1119845/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2024

I recently learned pterostilbene from blueberries offers greater quercetin absorption than resveratrol. Going in that direction...

https://connect.mayoclinic.org/comment/132654/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2020

Please don't blame vaccines for your PV diagnosis. I, like yourself, have led an unmedicated life...

https://connect.mayoclinic.org/comment/1419153/

Discussion: Anyone else taking Hydroxyurea plus Gabapentin for Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2025

Hi, welcome to the “scary” club. I’ve had ET for a few months now, but was...

https://connect.mayoclinic.org/comment/834119/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2023

I understand your fear. I am 78 and was just diagnosed June 2022 through extensive labs...

https://connect.mayoclinic.org/comment/788294/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2022

My decision to take HU….. I am 78, My platelets were slowly rising, In June 2022...

https://connect.mayoclinic.org/comment/778663/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

Hi, I just want to say thank you to everyone who has posted re PV and...

https://connect.mayoclinic.org/comment/1412874/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Oct 10, 2025

Hello @Shenrig. I have MPNs or Myeloproliferative neoplasms a rare blood disorder where the bone marrow...

https://connect.mayoclinic.org/comment/1354511/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2025

Hi just a quick update on my treatment, I was diagnosed with two mutt Jak2 and...

https://connect.mayoclinic.org/comment/1347124/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2025

Just saying, "You have a JAK2 V617F is not enough! In my opinion and many oncologists'...

https://connect.mayoclinic.org/comment/1313666/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 26, 2025

Regarding bone pain, there are enough of us commenting on it that it seems to me...

https://connect.mayoclinic.org/comment/1309411/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: May 21, 2025

I am 79 with ET JAK2+ diagnosed in the fall of 2024 after a serious bout...

https://connect.mayoclinic.org/comment/1245157/

Discussion: Do you Tell Family, Friends & Co Workers about your Cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2025