Blood Cancers & Disorders Support Group

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Comments (1,047)

My diagnosis of ET with Jak2 Mutation came after high platelets, 780K, were found on a...

https://connect.mayoclinic.org/comment/997096/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2024

Hi jackt00 - I also have the Jak2 mutation. I am 77 and have had the...

https://connect.mayoclinic.org/comment/830393/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2023

I am 62 years old. I was diagnosed with ET a year ago and I am...

https://connect.mayoclinic.org/comment/57940/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2020

Hello, I'm sorry to hear of your challenges that sound quite to similar to my own....

https://connect.mayoclinic.org/comment/1264623/

Discussion: Anyone struggling with Polycythemia Vera, low iron and Hypothyroidism?

Support Group: Blood Cancers & Disorders

Posted: Mar 23 7:29am

@ettap you have a lot of reasonable questions. I'm not a doctor. I just have Jak2...

https://connect.mayoclinic.org/comment/919110/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2023

Good morning, Keith. I have to confess that you and I are not on the same...

https://connect.mayoclinic.org/comment/912206/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

My health is a bit like that of Lourdene's--65 years old, long time high platelets but...

https://connect.mayoclinic.org/comment/941362/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

Hi Jewelfaux, I think the answer about "does it make a difference to have diagnosis done...

https://connect.mayoclinic.org/comment/878241/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

Hello, I'm new to this group and to the ET diagnosis, although I've had high platelet...

https://connect.mayoclinic.org/comment/768111/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2022

If you are over 60, have JAK2, you are at moderate clot risk and doc will...

https://connect.mayoclinic.org/comment/1147040/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

I have PV JAK2 diagnosis in fact I changed hematologists and the second Hematologist asked if...

https://connect.mayoclinic.org/comment/1095124/

Discussion: I was diagnosed with Polycythemia vera last Sept. Is pain normal?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2024

I was diagnosed with ET and the Jak2 mutation in Feb. 2023. I took iron supplements...

https://connect.mayoclinic.org/comment/941166/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

I was misdiagnosed at the VA Hospital on Long Island with ET in early 2018. I...

https://connect.mayoclinic.org/comment/865740/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

I have ET and am CALR + . I was diagnosed at age 60, but onset...

https://connect.mayoclinic.org/comment/786716/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

Hi lynnebgraham, Was that your first bone marrow biopsy or did you have them in the...

https://connect.mayoclinic.org/comment/1244745/

Discussion: Like to know more. Just told I have Triple Negative MPN.

Support Group: Blood Cancers & Disorders

Posted: Feb 24 3:09pm

I went to my GP with other issues & checked with him re Sleep Apnea. He...

https://connect.mayoclinic.org/comment/1036484/

Discussion: Polycythaemia Ruba Vera, Jak2 mutation & link to Sleep Apnea

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2024

Honestly, I don't know if I have any tips! It was a really rare condition back...

https://connect.mayoclinic.org/comment/334497/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

Your clot risk depends on age, mutation type, and previous clot history. At 68 with JAK2,...

https://connect.mayoclinic.org/comment/1192772/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024

Welcome to Connect, @qbf This is one of those situations where it’s not good to speculate....

https://connect.mayoclinic.org/comment/1008961/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2024

Hi @winmil99. Essential thrombocytopenia is part of a blood disorder group referred to as Myeloproliferative neoplasms...

https://connect.mayoclinic.org/comment/1021067/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2024