Blood Cancers & Disorders Support Group

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Comments (923)

I have had Essential Thrombocytosis for almost 6 years now(with 1,250,000 platelet count) Was started on...

https://connect.mayoclinic.org/comment/146320/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2021

I would like info on EPO value and how that relates to ET and JAk 2....

https://connect.mayoclinic.org/comment/594544/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2021

3 years ago I was diagnosed with ET abut after a Bone Marrow biopsy, I was...

https://connect.mayoclinic.org/comment/328569/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2020

Is JAK 2 the same as policythemia vera. My dr. said only that the test was...

https://connect.mayoclinic.org/comment/194307/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2019

I have had leukemia for 3 yrs before being diagnosed with Jak 2

https://connect.mayoclinic.org/comment/194292/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2019

I was diagnosed in January with jak 2 mutation and ET. I’m new to this sight...

https://connect.mayoclinic.org/comment/845004/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

I was diagnosed 3 years ago with PV and positive for Jak 2. I take 2...

https://connect.mayoclinic.org/comment/869702/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

For me it was slight vertigo that made me not as steady on my feet, loss...

https://connect.mayoclinic.org/comment/872185/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023

Do you have sleep apnea, that could be a polycell cause w a negative JAK. Sorry...

https://connect.mayoclinic.org/comment/872835/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

I have PV Jak 2 positive.

https://connect.mayoclinic.org/comment/993717/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 8 9:55am

For my skin cancer I used immiquod cream which allow the body to attack the cancer...

https://connect.mayoclinic.org/comment/981708/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

When I first started on HU I was very tired. Now I am on 500 MG...

https://connect.mayoclinic.org/comment/973596/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2023

When I was diagnosed with a blood disorder, and very hi Hemocrit levels, my Hemotologist did...

https://connect.mayoclinic.org/comment/1002254/

Discussion: At my wits end. Not sure where to go from here.

Support Group: Blood Cancers & Disorders

Posted: Jan 23 7:23am

Thank you for alerting me to the fact that strengthing exercises are essential. My brother also...

https://connect.mayoclinic.org/comment/1011201/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Feb 7 11:33am

Yes, it is a blood cancer, but is manageable for many, depending on the treatment that...

https://connect.mayoclinic.org/comment/994654/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 9 6:01pm

I was diagnosed w Polycythemia Vera in 2020 when routine lab work showed HCT of 61.3....

https://connect.mayoclinic.org/comment/737723/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2022

Hi all. I am in the process of being diagnosed with an MPN. The doctor hasn't...

https://connect.mayoclinic.org/comment/878074/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

Thanks for sharing. I have been on Hydrea for 8 years and have had success with...

https://connect.mayoclinic.org/comment/862305/

Discussion: Anagrelide: Do you switch? How to cover costs?

Support Group: Blood Cancers & Disorders

Posted: May 18, 2023

I’m JAK 2 positive, platelets in 700s. Started hydroxyurea 1000mg/day 2 weeks ago. Am experiencing unusually...

https://connect.mayoclinic.org/comment/848233/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2023

HI Lori - I hope I am replying to the right section. If not, please advise....

https://connect.mayoclinic.org/comment/967968/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2023