Blood Cancers & Disorders Support Group

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Comments (1,102)

After asymptomatic high platelets in the 600 range, a bone marrow biopsy revealed JAK2 and I...

https://connect.mayoclinic.org/comment/940348/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2023

Ok from what I’m understanding is that you’ve been diagnosed with polycythemia vera. This is a...

https://connect.mayoclinic.org/comment/1137715/

Discussion: Polycythemia vera (PV) and bone pain: What helps?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2024

Wonderful news that there’s no sign of lung cancer! That had to be a relief. I...

https://connect.mayoclinic.org/comment/1051623/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2024

I’m also thankful for this group! My very supportive husband found this for me. I was...

https://connect.mayoclinic.org/comment/975461/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2023

I was first alerted in May 2022 that all red blood count were high. No one...

https://connect.mayoclinic.org/comment/825133/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

Today diagnosed with ET/JAK 2 mutation. Hello ~ I have been reading other posts and recognize...

https://connect.mayoclinic.org/comment/782169/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

I was diagnosed with ET and I do have the Jak 2 mutation. Leading up to...

https://connect.mayoclinic.org/comment/776350/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2022

I'm CALR, too. Been on HU for 6 years and bloodwork very stable in 400s once...

https://connect.mayoclinic.org/comment/1089100/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

A "safe" platelet count usually takes into consideration age, driver mutation, and clot history. Somebody in...

https://connect.mayoclinic.org/comment/1025894/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

66 year old male, diagnosed ET with JAK2, June 2024. Last week my haematologist gave me...

https://connect.mayoclinic.org/comment/1211108/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 14 8:10am

Hi @rch552320 Your mom was recently diagnosed with thrombocytosis which is an excess of platelets in...

https://connect.mayoclinic.org/comment/1067044/

Discussion: 70 + year women with Thrombosis

Support Group: Blood Cancers & Disorders

Posted: May 13, 2024

I was diagnosed with ET in November after my platelet count had been rising slowly for...

https://connect.mayoclinic.org/comment/1039616/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2024

If you decide to take HU, try it a couple of times per week for a...

https://connect.mayoclinic.org/comment/1022375/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2024

I am 73 year old, widow. No family near my location. Two years ago I had...

https://connect.mayoclinic.org/comment/985499/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2023

Hi Everyone.....Wishing you all the warmest, family filled holidays. Since my platelet count has dropped back...

https://connect.mayoclinic.org/comment/978074/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2023

Welcome to Mayo Connect, @ausableriver I’m happy you found us and decided to bypass Dr Google....

https://connect.mayoclinic.org/comment/875590/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

Good morning, @csgreetings and welcome to Mayo Connect. So many of us in this support group...

https://connect.mayoclinic.org/comment/836599/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2023

Good morning, @serenity55 I love your @name of Serenity. It’s a word in my morning affirmations…and...

https://connect.mayoclinic.org/comment/828909/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

I have ET, spleen is normal, but it is a side effect of ET. Serms like...

https://connect.mayoclinic.org/comment/815617/

Discussion: Elevated platelets and enlarged spleen

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

I was diagnosed with JAK2 positive in 12/21. My platelets rose to high 700's and I...

https://connect.mayoclinic.org/comment/798458/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023