Blood Cancers & Disorders Support Group

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Comments (894)

Hi @sveta25 Ok, I misunderstood, I thought it sounded as though it was a year ago...

https://connect.mayoclinic.org/comment/1460937/

Discussion: To continue or stop Venclexta treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2025

Hi @artymarty, welcome to Connect. It’s not as cool as the old treehouse club when we...

https://connect.mayoclinic.org/comment/909989/

Discussion: Had CLL for about 2 years, Dr is now thinking of treatment

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2023

Oh golly, you and your family are working through a lot of uncertainties right now. I’m...

https://connect.mayoclinic.org/comment/814276/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2023

@rip. Good morning. I just read over some of your previous postings to see that you...

https://connect.mayoclinic.org/comment/337534/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2021

Hi @rivermaya34. So sorry to hear you have been diagnosed with HNPP. This is such a...

https://connect.mayoclinic.org/comment/1070799/

Discussion: Chronic lymphocytic leukemia and Hereditary Nerve Pressure Palsey

Support Group: Blood Cancers & Disorders

Posted: May 19, 2024

I am convinced neuropathy can be related to free light chains and antibodies(in my case igM)...

https://connect.mayoclinic.org/comment/987941/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

My doctor just told me yesterday that I have CLL, Stage 0. This came after months...

https://connect.mayoclinic.org/comment/1395060/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2025

First of all, I would like to say thank you to the warm welcome I have...

https://connect.mayoclinic.org/comment/1318910/

Discussion: Latest blood draw

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2025

in 2010 my husband had an oncologist that said. no symptoms stage 0 we will watch...

https://connect.mayoclinic.org/comment/1288797/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2025

When I started treatment for CLL, my spleen was slightly swollen, but I had a huge...

https://connect.mayoclinic.org/comment/101844/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 31, 2016

Hi @reneebarber77, A few months ago we had a discussion about smudge cells showing up in...

https://connect.mayoclinic.org/comment/781922/

Discussion: Lymphoma or Not? Watch and wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

Hi @donnarichterssyndrome I’m so sorry your CLL has decided to take things up a notch. Most...

https://connect.mayoclinic.org/comment/684456/

Discussion: Richter's Syndrome: Is anyone else dealing with this disease?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2022

Sorry for rambling, but by sharing my experience I hope to provide some insight and respond...

https://connect.mayoclinic.org/comment/684686/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2022

Barbara - Correct. I asked my P.A. the last visit if I could go on Venetoclax...

https://connect.mayoclinic.org/comment/211082/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2019

My husband was just diagnosed with CLL and I am a nervous wreck. We were hoping...

https://connect.mayoclinic.org/comment/1007608/

Discussion: I just discovered I have leukemia

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2024

I've also been diagnosed with CLL since February 2025. They first picked up that I had...

https://connect.mayoclinic.org/comment/1434292/

Discussion: Is anyone dealing with CLL, Chronic Lymphoma Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2025

Hi @loribmt I want to start out with a BIG thank you, I did not sleep...

https://connect.mayoclinic.org/comment/1451051/

Discussion: CLL and Abnormal FISH results: Need some insight & encouragement

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2025

Good evening. Welcome to Connect and Happy New Year. When I read your very recent post...

https://connect.mayoclinic.org/comment/991075/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Jan 3, 2024

I can sure relate to that feeling of being betrayed by your body or DNA. Believing...

https://connect.mayoclinic.org/comment/846031/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

Good morning, @marynoelle. I know what you mean about having something going on in the back...

https://connect.mayoclinic.org/comment/1402573/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2025