Blood Cancers & Disorders: Discussions | Page 40

68 yr old diagnosed 2 years ago with PMF, Jak2 mutation. Have managed foot pain symtoms...

https://connect.mayoclinic.org/comment/132637/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2020

Hi all. In December, I was diagnosed with a JAK2 mutation. Finally had my appointment with...

https://connect.mayoclinic.org/comment/231778/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2019

Hi @lyno29, You posted: “I’m choosing not to do chemo, even though my doctor recommends it....

https://connect.mayoclinic.org/comment/1230545/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 6 8:47am

I have been right where you are. Yes, the words "cancer" and "biopsy" are frightening. Please...

https://connect.mayoclinic.org/comment/995912/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024

Hi @papa6275 - my diagnosis was JAK2 PV in May ‘22. Like you I did not...

https://connect.mayoclinic.org/comment/913795/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023

Hi Ginger, I am 79 diagnosed with ET JAK2. My hematologist gave me an information sheet...

https://connect.mayoclinic.org/comment/892038/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 8, 2023

Hello all. About a year ago, I had a nephrectomy due to renal cell carcinoma. Since...

https://connect.mayoclinic.org/comment/194266/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2018

Research shows that rare cases of leukemia have been attributed to Hydroxyurea after 20 years of...

https://connect.mayoclinic.org/comment/1280275/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Apr 12 3:23pm

Hi Steve, I was just diagnosis with ET yesterday after my bone marrow biopsy came back...

https://connect.mayoclinic.org/comment/1154980/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 10, 2024

Your post is uplifting & amazing. I have been taking 1000mg HU now for 3 weeks....

https://connect.mayoclinic.org/comment/1042373/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2024

Hi Pumpkin1, Me, too, ET w/ JAK2. My primary sent me to a heme doc at...

https://connect.mayoclinic.org/comment/929615/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

I'm a 72 yrs. old and I was diagnosed with ET in 2011 when my platelet...

https://connect.mayoclinic.org/comment/635580/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2021

Penny...what was the determination? EV..PV? I too was diagnosed 3 years ago. BMB confirmed PV with...

https://connect.mayoclinic.org/comment/329374/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 15, 2021

Hello @sap21981 Welcome to Mayo Connect. I’m sure you’re in panic mode right now! Being a...

https://connect.mayoclinic.org/comment/886233/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

Hi shhanks. Welcome to the site. After I had seven vaccines (2 Moderna, 1 booster, 2...

https://connect.mayoclinic.org/comment/798922/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2023

I was diagnosed with JAK2 in early 2021. Taking the drug hydrea has put everything (RBC,...

https://connect.mayoclinic.org/comment/765304/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2022

Hi @panamsandy, There are diets posted online to potentially lower platelets by reducing inflammation in the...

https://connect.mayoclinic.org/comment/1309518/

Discussion: Lowering platelet level with food

Support Group: Blood Cancers & Disorders

Posted: May 21 11:55am

Hi @nande. I jumped the gun with my comment and for that I apologize. I was...

https://connect.mayoclinic.org/comment/1319021/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Jun 2 10:08pm

Hi @lindagualtieri, Welcome to Connect. Looks like you’ve been dubbed with a new diagnosis and have...

https://connect.mayoclinic.org/comment/1146045/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2024

I started using Besremi (I do not live in the U.S.) in March. My platelets were...

https://connect.mayoclinic.org/comment/1296284/

Discussion: Anyone used Interferon instead of HU for ET: Benefits? Side effects?

Support Group: Blood Cancers & Disorders

Posted: May 4 9:27am

Blood Cancers & Disorders Support Group