Blood Cancers & Disorders Support Group

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Comments (101)

Welcome to Mayo Connect. I was diagnosed with WM in 2014. I am an IWMF (International...

https://connect.mayoclinic.org/comment/624405/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2021

I was diagnosed with MGUS in 2022. I had a M spike in my bloodwork. I...

https://connect.mayoclinic.org/comment/1159810/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2024

Your questions are 2 I have never asked the oncologist about so I don't really know...

https://connect.mayoclinic.org/comment/1146313/

Discussion: Free light chain ratio in MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2024

Welcome to Connect, @vgdmayo I really can’t answer as to whether or not your husband could...

https://connect.mayoclinic.org/comment/1042368/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2024

Welcome to Connect, @careysuzi. It’s great to have you here in the Waldenström's Macroglobulinemia support group...

https://connect.mayoclinic.org/comment/989959/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2024

Hola a todos. Hace algunos meses escribí en este lugar para interactuar con otras personas que...

https://connect.mayoclinic.org/comment/942134/

Discussion: With Waldenstrom, what side effects did you have with ibrutinib?

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2023

Hi, my name is Patrick and I was just diagnosed with Waldenström macroglobulinemia last week after...

https://connect.mayoclinic.org/comment/872026/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023

Hola Catalina, le saludo cordialmente. Quiero contarle que mi esposo había sido prediagnosticado hace 3 meses...

https://connect.mayoclinic.org/comment/865071/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 23, 2023

I am so sorry about your daughter’s rare WM diagnosis. May I ask if she gad...

https://connect.mayoclinic.org/comment/855382/

Discussion: Waldenstrom’s Macroglobulinemia Liver size?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2023

The I.W.M.F. (International Waldenstrom’s Macroglobulinemia Foundation) if having an educational Forum, both in person and virtually,...

https://connect.mayoclinic.org/comment/843970/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2023

Thank you for reaching out for support. WM is a very rare blood cancer. While it...

https://connect.mayoclinic.org/comment/812866/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2023

I too have shortness of breath which is apparently attributable to low hemoglobin (I have Waldenstrom's...

https://connect.mayoclinic.org/comment/791282/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2023

I'm sorry to hear of your diagnosis. Though I'm still watching and waiting, I find the...

https://connect.mayoclinic.org/comment/787689/

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2022

I am sorry to read you are now experiencing WM symptoms. I recommend that you contact...

https://connect.mayoclinic.org/comment/776531/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2022

I’m between a rock and a hard place as far as being diagnosed with WM. The...

https://connect.mayoclinic.org/comment/750837/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

@Colleneyoung and hnipper, your posts have been informative and helpful. Collene, as you know from my...

https://connect.mayoclinic.org/comment/734282/

Discussion: Hodgkin Lymphoma was stable, now new activity

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2022

Reaching out for those with WM experience is extremely helpful for a rare lymphoma. I was...

https://connect.mayoclinic.org/comment/691691/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2022

Hi @patio29dadio, welcome. You're facing some big decisions. Allow me to bring in fellow members who...

https://connect.mayoclinic.org/comment/687154/

Discussion: Advice for Amyloidosis with Waldenstrom's macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2022

I am so sorry to hear about your dad’s side effects to Zanubrutinib. I recommend you...

https://connect.mayoclinic.org/comment/1149698/

Discussion: Waldrenstrom macroglobulinemia: Anyone on zanubrutinib?

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2024

I have Waldenstrom's Macroglobulinemia. The 1st biopsy was for diagnosing, 2nd was to see what progression...

https://connect.mayoclinic.org/comment/1139604/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2024