Blood Cancers & Disorders Support Group

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Hi Dillydally, There are several discussions where members are talking about myelofibrosis and treatments. Here are...

https://connect.mayoclinic.org/comment/675825/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2022

@pattitoo, here's more information about lab testing done for JAK2 mutation https://labtestsonline.org/tests/jak2-mutation I'm so glad that...

https://connect.mayoclinic.org/comment/328559/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2020

@janemc I was never advised one way or tge other about taking nsaids while on hydroxyurea...

https://connect.mayoclinic.org/comment/1561512/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: 14 hours ago

Thank you Lori! I will review the recent link on Jak2 mutation and check back in.

https://connect.mayoclinic.org/comment/968716/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2023

Was informed today from Incyte that Jakafi is for all myelofibrosis patients, with and without JAK2...

https://connect.mayoclinic.org/comment/50503/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2011

Hi all, I thought you might appreciate these related discussions: - Essential Thrombocythemia: Looking for information...

https://connect.mayoclinic.org/comment/774755/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2022

@kat260 JAK2 burden diagnostic test can be repeated to track the effectiveness of your treatment. I...

https://connect.mayoclinic.org/comment/1523677/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 6:57am

Hi, so What were you complaining about? High Hemoglobin,wbcs, platelets.I also had genetic tests done Jak2...

https://connect.mayoclinic.org/comment/1024375/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2024

Hi @arti4, as it happens, @tkp22 asked a very similar question a little while ago. Hence...

https://connect.mayoclinic.org/comment/729873/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2022

Good question. Jak2 might be the first sign that you might have MPN. Curious why did...

https://connect.mayoclinic.org/comment/1142832/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2024

Hi Teresa, Thanks for the link to the article from NIH on Vit. D deficiency and...

https://connect.mayoclinic.org/comment/664163/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2021

My husband has the JAK2 but was diagnosed with both ITP and MDS all at the...

https://connect.mayoclinic.org/comment/194329/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2019

Have recently been diagnosed with JAK2 V617F. I would like to know about it.

https://connect.mayoclinic.org/comment/969664/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2023

@eoconner are you home now? Did you get the results from the JAK2 test?

https://connect.mayoclinic.org/comment/298978/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2020

Same here… found Jak2 they routine physicals AFTER two years of Covid vaccines…

https://connect.mayoclinic.org/comment/1021449/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2024

I was diagnosed with MGUS, a plasma cell neoplasm, in 2017. Earlier this year, my blood...

https://connect.mayoclinic.org/comment/719891/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2022

Welcome @lindamarie63. I hope you saw the helpful replies from several members living with ET with...

https://connect.mayoclinic.org/comment/1191118/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2024

I came back negative for jak2 v617f, CALR and MPL. I’m waiting for directions on next...

https://connect.mayoclinic.org/comment/231800/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019

I think your Hemo should check WHO and CDC. ET with Jak2 is considered a chronic...

https://connect.mayoclinic.org/comment/917609/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2023

Welcome to Connect @jv4430. There are a number bone marrow disorders related to the JAK2 gene...

https://connect.mayoclinic.org/comment/969785/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023