Blood Cancers & Disorders Support Group

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Comments (1,045)

my oncologist does not acknowledge bone pain from ET. I don't have any neuropathy and no...

https://connect.mayoclinic.org/comment/1279375/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Apr 11 12:11pm

I have ET with jak2 and experience fatigue and occasional headaches, but haven't noticed any changes...

https://connect.mayoclinic.org/comment/1209498/

Discussion: Does ET or HU affect liver functions?

Support Group: Blood Cancers & Disorders

Posted: Jan 12 3:41am

Hi, I'm 68. Just diagnosed with Jak2. They did a DNA blood test. My platelets are...

https://connect.mayoclinic.org/comment/1142245/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2024

My age is 32 and I have ET with jak2. For how long I can take...

https://connect.mayoclinic.org/comment/965613/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2023

My daughter has JAK2 and the oncologist didn’t make any changes before she got the Pfizer...

https://connect.mayoclinic.org/comment/607090/

Discussion: Effect of COVID vaccine on Jak2 MPN

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2021

Cml under control now have Jak2 2 mutation doctor put me on jakifi and on tasigna...

https://connect.mayoclinic.org/comment/194294/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2019

Hello @ajordan1982, if you are comfortable sharing, what medications were discussed by your physician? It may...

https://connect.mayoclinic.org/comment/256900/

Discussion: Medication for JAK2

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2019

Im recently diagnosed with acquired von Willebrand and Jak2, my platelets are around 600. I was...

https://connect.mayoclinic.org/comment/194336/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2019

Yes - JAK2 platelet count 893 - 75mg Aspirin and 500mg HU for the next 6weeks-...

https://connect.mayoclinic.org/comment/887554/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2023

I have heard there are clinical trials at the Mayo clinic for the JAK2 inhibitor drugs....

https://connect.mayoclinic.org/comment/50500/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2011

Welcome to Connect, @sunbird09 Over time, some people with PV may develop MF. This occurs if...

https://connect.mayoclinic.org/comment/1099168/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Hello @marg3. From my understanding it’s almost impossible to know when one of these genetic mutations...

https://connect.mayoclinic.org/comment/802352/

Discussion: JAK2 and DNA

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2023

Myelofibrosis JAK2 I’m currently on Jakafi and just completed cycle one of vidaza. White cells keep...

https://connect.mayoclinic.org/comment/813524/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2023

Hi, I was diagnosed with Jak2 exon 14 + Thrombocytsis + Reticulin Fibrosis. I find it...

https://connect.mayoclinic.org/comment/978136/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2023

Please do not rely on Chinese Herbs ( no disrespect )Please find a specialist to determine...

https://connect.mayoclinic.org/comment/1228037/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 2 7:16pm

Thank you! Blood clots are scary. So glad they caught yours in time. I guess I...

https://connect.mayoclinic.org/comment/943845/

Discussion: Pros and Cons of JAK2 testing

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

Yes, MPNs are slow-growth blood cancers. JAK2 is not a blood cancer itself but is the...

https://connect.mayoclinic.org/comment/988458/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2023

I do not have any symptoms, I have JAK2 and high platelets were found at my...

https://connect.mayoclinic.org/comment/878406/

Discussion: Diagnosed with PV: Anyone used a home hemoglobin testing kit?

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

I’m currently being tested for polythecemia vera. JAK2 at the end of May. A bit anxious....

https://connect.mayoclinic.org/comment/857807/

Discussion: JAK2 positive, high platelets and also PAH (diagnosed)

Support Group: Blood Cancers & Disorders

Posted: May 10, 2023

Hello, Have you had the JAK2 test yet? I’m sorry I didn’t see your previous post.

https://connect.mayoclinic.org/comment/898898/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023