Blood Cancers & Disorders: Discussions | Page 4

Yes - JAK2 platelet count 893 - 75mg Aspirin and 500mg HU for the next 6weeks-...

https://connect.mayoclinic.org/comment/887554/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2023

Hello @ajordan1982, if you are comfortable sharing, what medications were discussed by your physician? It may...

https://connect.mayoclinic.org/comment/256900/

Discussion: Medication for JAK2

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2019

Hello @marg3. From my understanding it’s almost impossible to know when one of these genetic mutations...

https://connect.mayoclinic.org/comment/802352/

Discussion: JAK2 and DNA

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2023

Hi, im jak2 negative with continous high platelets 500-800 range im 31 asymptomatic , discovered over...

https://connect.mayoclinic.org/comment/194358/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2020

It sound like your doctors are on top of your health. That is a high Jak2...

https://connect.mayoclinic.org/comment/1156319/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 13 10:13am

I have heard there are clinical trials at the Mayo clinic for the JAK2 inhibitor drugs....

https://connect.mayoclinic.org/comment/50500/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2011

Yes, MPNs are slow-growth blood cancers. JAK2 is not a blood cancer itself but is the...

https://connect.mayoclinic.org/comment/988458/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2023

Hi, I was diagnosed with Jak2 exon 14 + Thrombocytsis + Reticulin Fibrosis. I find it...

https://connect.mayoclinic.org/comment/978136/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2023

Hello, Have you had the JAK2 test yet? I’m sorry I didn’t see your previous post.

https://connect.mayoclinic.org/comment/898898/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

Today I received results for the JAK2 V617F test and I am positive. A home sleep...

https://connect.mayoclinic.org/comment/783056/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2022

I will look into that with my Dr , can I ask your age? how high...

https://connect.mayoclinic.org/comment/1023672/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 27 11:04am

I have never had labs identifying jak2 only a bone marrow biopsy. It seems that would...

https://connect.mayoclinic.org/comment/1054100/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 20 7:44am

I’m currently being tested for polythecemia vera. JAK2 at the end of May. A bit anxious....

https://connect.mayoclinic.org/comment/857807/

Discussion: JAK2 positive, high platelets and also PAH (diagnosed)

Support Group: Blood Cancers & Disorders

Posted: May 10, 2023

I do not have any symptoms, I have JAK2 and high platelets were found at my...

https://connect.mayoclinic.org/comment/878406/

Discussion: Diagnosed with PV: Anyone used a home hemoglobin testing kit?

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

You should look at the MPN Research Foundation webpage for information regarding ET and the JAK2...

https://connect.mayoclinic.org/comment/328564/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

My Heme doc said there are basically 4 types of ET, and only one = cancer....

https://connect.mayoclinic.org/comment/877571/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

@thlas1971 Hi there! Sorry for the late reply. I uploaded my 23 and Me raw data...

https://connect.mayoclinic.org/comment/231796/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2019

I'm 71 and have ET with JAK2 mutation. A DEXA scan earlier this month showed normal...

https://connect.mayoclinic.org/comment/998807/

Discussion: MPN and osteoporosis, any of you have insufficiency fractures?

Support Group: Blood Cancers & Disorders

Posted: Jan 17 8:06am

https://connect.mayoclinic.org/comment/1054171/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 20 9:17am

Blood draw today. Platelets were down from 11/2. I know the platelets go down when I...

https://connect.mayoclinic.org/comment/973027/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2023

Blood Cancers & Disorders Support Group