Blood Cancers & Disorders: Discussions | Page 4

I’m trying to connect with someone who not only has multiple myeloma but also amyloidosis to...

https://connect.mayoclinic.org/comment/873112/

Discussion: Diagnosed with both multiple myeloma and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

ah. Are you concerned there could be other things happening like amyloidosis? I'm the worrier who...

https://connect.mayoclinic.org/comment/1118177/

Discussion: Paraprotein & Light chains

Support Group: Blood Cancers & Disorders

Posted: Aug 5 9:14am

@loribmt thank you for this really helpful post, Lori! I had shortness of breath since 2013,...

https://connect.mayoclinic.org/comment/1041665/

Discussion: Abnormal bloodwork questions

Support Group: Blood Cancers & Disorders

Posted: Mar 28 12:00pm

Just read about a support group for lymphoma patients, and wondering if I could be connected...

https://connect.mayoclinic.org/comment/196639/

Discussion: Support groups for lymphoma patients

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2018

@casey1329 My husband who is 80 yrs old has been suffering for months with the same...

https://connect.mayoclinic.org/comment/900586/

Discussion: Possible Al Amylodiois

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2023

Hi @honeymamabee, I expanded the title of your discussion to reflect your question and added it...

https://connect.mayoclinic.org/comment/1117967/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 4 8:52pm

Julie, I moved your message to the Cancer group where you can meet others who may...

https://connect.mayoclinic.org/comment/113902/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2016

My husband was diagnosed with MGUS not long ago. He went to a cardiologist in Jacksonville...

https://connect.mayoclinic.org/comment/931005/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2023

I have had MGUS for 4.5 years. The strategy has been to monitor it with blood...

https://connect.mayoclinic.org/comment/1101928/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 8 9:48pm

Hi @jebcyn Welcome to Mayo Connect. It’s inspirational that you’re a 10 year survivor! Would you...

https://connect.mayoclinic.org/comment/782272/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Hi Becky, if you go to this site again that @colleenyoung posted, you’ll see a box...

https://connect.mayoclinic.org/comment/738621/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

As you might remember, I have Cancer>MM>Amyloidosis>Gelsolin, among other things. As you know, Gelsolin is a...

https://connect.mayoclinic.org/comment/621871/

Discussion: Want to help Mayo Clinic improve our Multiple Myeloma website?

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2021

Hi Patrick! I was diagnosed with Amyloidosis in March of this year, however I do not...

https://connect.mayoclinic.org/comment/282774/

Discussion: Does anyone have amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2019

@oliviahutson My husband was suffering from the same symptoms except the bzck issues. He visited the...

https://connect.mayoclinic.org/comment/906775/

Discussion: Looking for advice: Could this be MGUS, because of low m-spike?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2023

Hi @jan52241. Welcome to Connect! I'm sorry to hear you have felt alone in this diagnosis...

https://connect.mayoclinic.org/comment/104684/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2016

Labs were done prior to the office visit Repeat labs and follow-up office visit in 3...

https://connect.mayoclinic.org/comment/753810/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2022

Hi @jan44, I'm sure @vmarra would appreciate connecting with you. I see AL amyloidosis is a...

https://connect.mayoclinic.org/comment/775150/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2022

Hello @sstouten, Welcome to Connect. I'm sorry to hear about your diagnosis, and so glad that...

https://connect.mayoclinic.org/comment/169956/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

I had IgA kappa MGUS for 8 years, diagnosed this summer with SMM. They tested me...

https://connect.mayoclinic.org/comment/1158835/

Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.

Support Group: Blood Cancers & Disorders

Posted: Oct 18 8:14am

I have MGUS, diagnosed about 4 years ago, now I have also been diagnosed with Amyloidosis....

https://connect.mayoclinic.org/comment/1100049/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 5 11:42pm

Blood Cancers & Disorders Support Group