Blood Cancers & Disorders Support Group

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Comments (1,035)

I was having increasingly high monocytes and then my platletts were low so my oncologist (I...

https://connect.mayoclinic.org/comment/987843/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

Good morning, @jenn2458 I’m so sorry your dad isn’t doing well with his treatments for MDS....

https://connect.mayoclinic.org/comment/1239685/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2025

Hi Brenda, I was diagnosed as having “presumptive” MDS in February 2011. I had no symptoms...

https://connect.mayoclinic.org/comment/961018/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2023

Sharyn, it’s good you’re on the antibiotics. But if you don’t notice an improvement in another...

https://connect.mayoclinic.org/comment/756163/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2022

I’m not really able to give you much guidance as to your type of MDS and...

https://connect.mayoclinic.org/comment/1085200/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2024

Hi, @5qdeletion. There are treatments for AML for patients who are older or unable to have...

https://connect.mayoclinic.org/comment/1030665/

Discussion: I just discovered I have leukemia

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2024

Just checking in on how everyone is doing. This is essentially my only support. I've tried...

https://connect.mayoclinic.org/comment/1183216/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2024

I'm 79 male and burdened with 5 mutuated chromosome that manife s ted into MDS/AML having...

https://connect.mayoclinic.org/comment/1183124/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2024

I really don’t want to jump in on this site but my husband’s doctor told us...

https://connect.mayoclinic.org/comment/1111404/

Discussion: T cell large granulocytic leukemia

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Hi @twitt1949 A quick tutorial for you. Platelets are the portion of your blood that is...

https://connect.mayoclinic.org/comment/1542127/

Discussion: Flossing teeth and MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 3 2:38pm

soonerfan. Thank you for posting. I'm at City of Hope in California. Who knew i would...

https://connect.mayoclinic.org/comment/1065951/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 11, 2024

My husband apparently had MGUS for about 5 years but we didn’t really know it until...

https://connect.mayoclinic.org/comment/959673/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2023

I also have mds/rars diagnosis. Started aranesp shots every other week and have had 2 iron...

https://connect.mayoclinic.org/comment/870886/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2023

Hi everyone. I was diagnosed with primary Myleofibrosis , MDS in March 2025. I was also...

https://connect.mayoclinic.org/comment/1487573/

Discussion: Anyone with primary myelofibrosis, low risk, asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Jan 20 5:24pm

Hello. I was diagnosed at age 49 with CCUS back in September after a bone marrow...

https://connect.mayoclinic.org/comment/980353/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2023

Hello @jrwilli1, I am sorry that your husband's situation is so difficullt. I can only suggest...

https://connect.mayoclinic.org/comment/951249/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2023

Ironically I just reached out to my husband’s team to ask about a new “rash” on...

https://connect.mayoclinic.org/comment/950088/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2023

bevancarney1054- What a story. I live in California with some of the best cancer hospitals within...

https://connect.mayoclinic.org/comment/1266089/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2025

Hi there, I was diagnosed with ET last March. My platelets were 1,200. I began taking...

https://connect.mayoclinic.org/comment/1035173/

Discussion: Started Hydroxyurea: How long to see decrease in counts?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2024

My husband was first diagnosed with MM because of low white blood counts. Now after 3...

https://connect.mayoclinic.org/comment/296800/

Discussion: Leukopenia ( low white blood count)

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2020