Blood Cancers & Disorders Support Group | Page 37

Allele burden is a measure of how prevalent the mutation is in your system. I've had...

https://connect.mayoclinic.org/comment/1221953/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2025

My concern, moving into 17 years after ET started driving up my platelets, is that the...

https://connect.mayoclinic.org/comment/1210452/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2025

Superpowers! I have read that ET blood will kill mosquitos if they bite me. This is...

https://connect.mayoclinic.org/comment/1148518/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2024

Blurred vision is not uncommon with Polycythemia Vera. Not sure if it’s from too high red...

https://connect.mayoclinic.org/comment/1092197/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2024

I never did have side effects...of course I was dealing with late-stage menopause when ET was...

https://connect.mayoclinic.org/comment/949244/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 17, 2023

I Linda. I also have ET and have been on Hydroxyurea for over 20 years as...

https://connect.mayoclinic.org/comment/753739/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2022

I just saw your post. May I ask your age? I was diagnosted with ET JAK2...

https://connect.mayoclinic.org/comment/1465336/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2025

Is ANA abbrev for anagrelide? The doc always chalked my worsening allergies up to the inflammatory...

https://connect.mayoclinic.org/comment/1398629/

Discussion: Is ear pain a side effect of being on Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2025

I have been taking Hydroxyurea for about 3 years for ET. Have not noted the confusion,...

https://connect.mayoclinic.org/comment/146316/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2020

As your platelet count comes down, you should get some relief from the exhaustion and dizziness,...

https://connect.mayoclinic.org/comment/1308254/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: May 20, 2025

Find a good oncologist. That's what I did and they see me about every 4 months...

https://connect.mayoclinic.org/comment/950108/

Discussion: Needing help understanding ET and how it affects my life

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2023

there is a naturopathic drug called "lumbrokinase " old Chinese medicine. I am going to start...

https://connect.mayoclinic.org/comment/1021025/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2024

Hi Gary. You’re right, statistically women do appear to outnumber men with ET cases. So, welcome...

https://connect.mayoclinic.org/comment/1117103/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2024

I didn't lose any hair (other than normal thinning with old age). I had some gut...

https://connect.mayoclinic.org/comment/1510436/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Feb 20 11:30am

Hi Lori, Thank you for you post and references. Yes, I would like to know exactly...

https://connect.mayoclinic.org/comment/1231515/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2025

Hello! I too have the MPL driver (aren't we lucky?). And while I have no diagnosis,...

https://connect.mayoclinic.org/comment/1154891/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 10, 2024

You may also want to check out the publications and resources in the website of the...

https://connect.mayoclinic.org/comment/722325/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2022

I was diagnosed with ET last November and have been on HU ever since. It has...

https://connect.mayoclinic.org/comment/1090851/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024

@mmkennedy Before your March 5 appointment, may I suggest some homework? Browse through the ET threads...

https://connect.mayoclinic.org/comment/1510951/

Discussion: Anyone else have ET (thrombocytosis) with no gene mutation?

Support Group: Blood Cancers & Disorders

Posted: Feb 21 7:30am

Last few weeks , I have been suffering with headaches, nausea and the fatigue has worsened,...

https://connect.mayoclinic.org/comment/1407350/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2025