Blood Cancers & Disorders Support Group

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Comments (900)

Hi Carl, those are sage words, “live my life”. It’s really the best choice for any...

https://connect.mayoclinic.org/comment/623245/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2021

Hello, @rosamund Having Chronic Lymphocytic Leukemia (CLL) can weaken your immune system, especially if you’re in...

https://connect.mayoclinic.org/comment/806117/

Discussion: CLL patients needing other non related surgeries or procedures

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2023

Hello @jswv Some links I have squirreled away: - Have you joined the Waldenstrom's Foundation --...

https://connect.mayoclinic.org/comment/1394891/

Discussion: WM / MZL

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2025

Hello, I had my 2nd bone marrow extraction done on 8/5. I'm still experiencing crippling pain...

https://connect.mayoclinic.org/comment/1130867/

Discussion: Bone Marrow Aspiration - Long Term Pain Expecations

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2024

I was diagnosed with CLL about a year ago - still on watch and wait. I...

https://connect.mayoclinic.org/comment/1287154/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2025

bharty, I have a similar situation. I was diagnosed with B-CLL about 15 years ago. B-lymphos...

https://connect.mayoclinic.org/comment/955946/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2023

Cindy I have not changed my diet but here is some info that might offer some...

https://connect.mayoclinic.org/comment/113603/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2017

Hi Norma, I’m not sure where we derailed, because I’m in total agreement with you on...

https://connect.mayoclinic.org/comment/1264374/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2025

Wow, I'm so glad to hear from you so soon with your latest news. Thank you!...

https://connect.mayoclinic.org/comment/1087197/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

It is amazing how differently some of us react with CLL. I was diagnosed with it...

https://connect.mayoclinic.org/comment/1398569/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2025

Hi @monicalu2626, my doc started me with Brukinsa (aka Z) last June. I think my WBCs...

https://connect.mayoclinic.org/comment/1242909/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2025

Hello @oceantroll, welcome to Connect. I would like to invite @travelgirl to this discussion as she...

https://connect.mayoclinic.org/comment/238279/

Discussion: Dual Diagnosis of CLL and Acute Epstein Barr Virus

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2019

My wife chose the “ rip off the bandage” approach and we had a good talk....

https://connect.mayoclinic.org/comment/1269054/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2025

@andilynn I take 2 pills 2x/day w/water. I also drink about 64oz during the day, which...

https://connect.mayoclinic.org/comment/1242885/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2025

Welcome to Connect, @cmillard. Thank you for sharing your experience with CLL and Imbruvica. It’s great...

https://connect.mayoclinic.org/comment/1080573/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

Welcome, @minglu. Wow, when it rains, it pours. I’m so sorry this is all happening while...

https://connect.mayoclinic.org/comment/1264453/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2025

Oh my gosh, @aleeab, you are in a world of hurt right now and it’s ok...

https://connect.mayoclinic.org/comment/1106478/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2024

I have followed the same pattern. I was diagnosed with B-lymphocytic about 20 years ago. Lymphocytes...

https://connect.mayoclinic.org/comment/1029741/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2024

@trixie1, recently (Jan 2023) the FDA approved zanubrutinib (Brukinsa) for the treament of chronic lymphocytic leukemia...

https://connect.mayoclinic.org/comment/912886/

Discussion: Any new treatments for SMZL? What do you take for maintenance?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Thank you, dear Ginger. I’m due to get my second Evusheld in two weeks. A friend...

https://connect.mayoclinic.org/comment/780461/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2022