Blood Cancers & Disorders Support Group

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Comments (771)

Hello Lori, Thank you so much. I have been anemic for a very long time and...

https://connect.mayoclinic.org/comment/1070977/

Discussion: Myelodysplastic Syndrome and Sjogren's

Support Group: Blood Cancers & Disorders

Posted: May 19, 2024

I understand the frustration. I have had the diagnosis for almost a year. It took weeks...

https://connect.mayoclinic.org/comment/1009474/

Discussion: I just discovered I have leukemia

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2024

Good morning, @wmisyr I’d accept that as excellent news that you’re not needing any treatment and...

https://connect.mayoclinic.org/comment/773325/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2022

Good morning. Yes, I have occasional bouts of chills. Night before last, could not get warm...

https://connect.mayoclinic.org/comment/1009436/

Discussion: CLL - Symptoms at Stage 0

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2024

Hello everyone. I was recently diagnosed with cll. I also have thyroid cancer and renal cell...

https://connect.mayoclinic.org/comment/847682/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

Well, now I’m all misty-eyed, thank you. ☺️ And I have an earworm for the day…you...

https://connect.mayoclinic.org/comment/634003/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2021

I have had CLL for over 6 years. Watch and wait is a common way to...

https://connect.mayoclinic.org/comment/113592/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2017

Hi @jenepher, Oh my gosh, I’m so sorry that you’re having continual pain after a bone...

https://connect.mayoclinic.org/comment/1131065/

Discussion: Bone Marrow Aspiration - Long Term Pain Expecations

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2024

Hi @aleeab! Welcome back! ☺️ Ooo I hope you learn to listen to your body! Being...

https://connect.mayoclinic.org/comment/897602/

Discussion: Iron Tablets! And learning about fatigue and to pace myself

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2023

My Mayo hematologist has told me numerous times that specific foods do not help my platelets...

https://connect.mayoclinic.org/comment/1277764/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: Apr 9 10:24am

Hello 69, If you do get to the point of treatment .. ask your Oncologist about...

https://connect.mayoclinic.org/comment/101830/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 19, 2016

I was diagnosed with CLL in early 2017. Still in Stage 0 with no treatment. My...

https://connect.mayoclinic.org/comment/728400/

Discussion: Any suggestions on how to travel safely with CLL?

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2022

So very sorry to hear what you are going through. I went through something similar. Suffered...

https://connect.mayoclinic.org/comment/1222351/

Discussion: I am a medical mystery

Support Group: Blood Cancers & Disorders

Posted: Jan 26 2:19pm

Hi Justine, Just checking in to see how the extraction site is healing now. I’m not...

https://connect.mayoclinic.org/comment/1121306/

Discussion: CLL and slow healing following dental work

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2024

Hi, I was diagnosed with PMF CALR + Int. 2 back in March 2021. It took...

https://connect.mayoclinic.org/comment/1045170/

Discussion: Anyone with primary myelofibrosis, low risk, asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2024

Barbara - I never heard that stem cell treatments aren't right for B-Pll. That's interesting. If...

https://connect.mayoclinic.org/comment/211084/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2019

I have had immunoglobulin infusions every 4 weeks for some months, due to my CLL. Plan...

https://connect.mayoclinic.org/comment/1265521/

Discussion: Dr wants to add immunoglobulins

Support Group: Blood Cancers & Disorders

Posted: Mar 24 8:50am

Just had labs and 3rd infusion of Rituxin. My absolute doubling time was 3 months. The...

https://connect.mayoclinic.org/comment/1098553/

Discussion: Anybody on Treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Welcome to Connect, @lancaster1963. CLL is generally a slowly developing type of leukemia and from my...

https://connect.mayoclinic.org/comment/1080587/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

I was diagnosed in 2008. I had high lymphocytes identified with a routine CBC, with CLL...

https://connect.mayoclinic.org/comment/965807/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2023