Blood Cancers & Disorders Support Group | Page 35

@daelitesmom I'm sorry you've been through so much! And I'm really sad you don't have abundant...

https://connect.mayoclinic.org/comment/1476752/

Discussion: CALR exon 9 mutation w/translocation of chromosomes 10 &13

Support Group: Blood Cancers & Disorders

Posted: Jan 7 1:05pm

How are you doing with the MF? Any change in treatment protocols? I have ET-CALR x...

https://connect.mayoclinic.org/comment/1277724/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2025

@gama1287 We each experience ET itself, and HU, differently. So I can only speak for myself....

https://connect.mayoclinic.org/comment/1464763/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

@preacherswife1977 Hi I have ET and the JAK2. Still learning lots. I had lots of joint...

https://connect.mayoclinic.org/comment/1540779/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Apr 2 12:08am

Hi all. ET with CALR and a 66yo female. I've been on hydrea 500 daily dose...

https://connect.mayoclinic.org/comment/1559991/

Discussion: Having an operation: What does the surgeon need to know about MPN?

Support Group: Blood Cancers & Disorders

Posted: 1 day ago

@birgitr Staying active is great, as it keeps our platelet-heavy blood circulating. By "active" I don't...

https://connect.mayoclinic.org/comment/1489236/

Discussion: New study: Early treatment with interferon can delay myelofibrosis

Support Group: Blood Cancers & Disorders

Posted: Jan 23 7:44am

I was diagnosed with ET with JAK2 mutation a little over a year ago and even...

https://connect.mayoclinic.org/comment/1448598/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2025

@ebertolis I've been on HU since my diagnosis in October, 2023. Zero side effects so far,...

https://connect.mayoclinic.org/comment/1506180/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Feb 15 7:40am

Yes. I have bleeding gums which I get periodically treatment for. But now teeth occasionally have...

https://connect.mayoclinic.org/comment/1502257/

Discussion: Has anyone experienced sensitive teeth while taking Hydroxyurea ?

Support Group: Blood Cancers & Disorders

Posted: Feb 10 7:45am

@dewz13 they do mine every six months and review labs with me, yes. I reduced my...

https://connect.mayoclinic.org/comment/1535112/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 25 11:55am

Hi @splashgirl, I’m not sure if you’re aware of this or not but if you have...

https://connect.mayoclinic.org/comment/912228/

Discussion: Male 65 year old farmer with thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

I am a 69 years old was recently diagnosed with ET JAK2 mutation. I just started...

https://connect.mayoclinic.org/comment/787555/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2022

I have also been diagnosed with MPN/ET/JAK2. It’s been recommended that I start taking HU. I’m...

https://connect.mayoclinic.org/comment/787262/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2022

ET is essential thrombocythemia it is a chronic blood cancer, it is not as a result...

https://connect.mayoclinic.org/comment/1142418/

Discussion: Does your oncologist acknowledge that ET may cause bone pain?

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2024

I was diagnosed with Essential Thrombocythemia, JAK2 mutation, earlier this year. My hematologist (who was also...

https://connect.mayoclinic.org/comment/877333/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2023

Yes and yes.I have done all of this. I have been to many docs and specialist...

https://connect.mayoclinic.org/comment/794427/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2023

Besremi may not be a normal ET med, 2 docs (both mpn specialists at research institutions)...

https://connect.mayoclinic.org/comment/1453474/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2025

@misty45 Thank you so very much for sharing your ET experience. My daughter ( age 39)...

https://connect.mayoclinic.org/comment/194272/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2019

Hi, I have had ET for over 17 years now I am 73, and was on...

https://connect.mayoclinic.org/comment/1244169/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

When we have ET, our blood marrow produces excessive and misshapen platelets. In most cases, this...

https://connect.mayoclinic.org/comment/1238055/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2025