Blood Cancers & Disorders Support Group

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Comments (696)

Hi @pixiesusan My name is Audrey L. I am sorry I have not seen your messages...

https://connect.mayoclinic.org/comment/1137910/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2024

Hi @Katgob. You’re making great strides with your recovery. Amazing you’re able to start your Tacro...

https://connect.mayoclinic.org/comment/1087452/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 15, 2024

Melissa, i am not a doctor, but i can share what I've been doing: 1. sudden...

https://connect.mayoclinic.org/comment/1155566/

Discussion: Venetoclax plus decitabine not working?

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2024

Ok we’re so I start. My husband had been watched by a hematologist for at least...

https://connect.mayoclinic.org/comment/764387/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2022

Good morning @g4c, Welcome to Connect. Before taking any supplements or radically changing your diet after...

https://connect.mayoclinic.org/comment/1220316/

Discussion: What are you doing to keep AML from relapse after transplant?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 24 8:04am

Hi @janetlen. It’s interesting that you had 2 questionable bone marrow biopsies and the 3rd was...

https://connect.mayoclinic.org/comment/986129/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

Thank you so much for all the information. I feel better already. I was diagnosed with...

https://connect.mayoclinic.org/comment/1093270/

Discussion: I've had CML for 20 years and want to encourage others

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2024

@kva111 Welcome to the Mayo Clinic Connect. I try to stay in my lane when responding...

https://connect.mayoclinic.org/comment/1063782/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2024

Hi Lori, I'm back with questions...I just got home a little bit ago; my husband was...

https://connect.mayoclinic.org/comment/780961/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2022

Hi Vickie, welcome to Connect! You’re speaking my language…I got a little misty-eyed with seeing you’ve...

https://connect.mayoclinic.org/comment/1096249/

Discussion: I am newly diagnosed with AML. with the inv(3) mutation,

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2024

Hi @bohobruja Welcome to Mayo Connect. The National Institute of Health defines chronic myeloproliferative disorders as...

https://connect.mayoclinic.org/comment/786594/

Discussion: Does anyone else have more than one myeloproliferative disorder?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

Lori, Yes the doctor yesterday said i am low/med in progression. But i told him i...

https://connect.mayoclinic.org/comment/1015941/

Discussion: Bone marrow transplants for CMML

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Feb 14, 2024

Some MPNs, MDS, and other cancers are "orphan" cancers. In the U.S., the Orphan Drug Act...

https://connect.mayoclinic.org/comment/1072110/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2024

Hi, I have posted before about my husband. We found out last summer he had an...

https://connect.mayoclinic.org/comment/989337/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Dec 31, 2023

Good morning, @katgob! You remain the ideal model for how this is all supposed to play...

https://connect.mayoclinic.org/comment/1101491/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 8, 2024

I’m glad to read your wife is regaining some normal functions after her stroke. That had...

https://connect.mayoclinic.org/comment/1195439/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

I am popping back in to say my 3- week checkup was great!! My red, white,...

https://connect.mayoclinic.org/comment/1166449/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 1, 2024

Good morning Alejandro I am a 54 yo mom. I worked many years as a rehab...

https://connect.mayoclinic.org/comment/52445/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2012

I am at Day 63 post-transplant. I finally got back to work today. I will review...

https://connect.mayoclinic.org/comment/1085229/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 12, 2024

Hello Janetien: No, I have not tried the new drug yet. The journey in my battle...

https://connect.mayoclinic.org/comment/996205/

Discussion: Long awaited Drug for myelofibrosis (MF) has been released

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024