Blood Cancers & Disorders Support Group

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Comments (1,035)

@chzuck I would demand a repeat of the blood work in 90 days. If values are...

https://connect.mayoclinic.org/comment/1102819/

Discussion: Blood Test Results Concerning

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

Honestly, if you told my husband his MDS was back I’m not sure what he would...

https://connect.mayoclinic.org/comment/980220/

Discussion: Relapsed AML: Anyone choosing no treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2023

I was very fortunate. I was diagnosed with MDS in 2019 and only needed one transfusion...

https://connect.mayoclinic.org/comment/928051/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

Oooooo that’s a good hematologyst question an lab reports an history you know ur body better...

https://connect.mayoclinic.org/comment/782544/

Discussion: Iron Deficiency Anemia: At what ferritin level do you get infusions?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Have you filed a lawsuit claim with the VA yet? You may be entitled to medical...

https://connect.mayoclinic.org/comment/194353/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2020

Been on watch and wait for over 5 years. Vitamin b-12 shots help for only afew...

https://connect.mayoclinic.org/comment/934545/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2023

My husband was diagnosed with MDS about 8 months ago. Just had another biopsy to make...

https://connect.mayoclinic.org/comment/932918/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2023

I read several studies on BCMA levels and MGUS progression. sBCMA levels were noticed to increase...

https://connect.mayoclinic.org/comment/672449/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2022

I had the itching tesllly bad and took loratadine which eventually kicked in. I was on...

https://connect.mayoclinic.org/comment/1430231/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2025

My husband has MDS. After several cycles of vidaza he was experiencing platelet counts in the...

https://connect.mayoclinic.org/comment/1090187/

Discussion: Has anyone had a low platelet count of just 1?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2024

Hello @dell060969, I apologize for the delay in my response. I would like to invite a...

https://connect.mayoclinic.org/comment/165777/

Discussion: has anybody used epoetin alfa (Procrit)

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2017

Thanks Lori for responding. He's a frequent flier at Mayo Jax, Hematology since 2018 and other...

https://connect.mayoclinic.org/comment/1338826/

Discussion: imetelstat/Rytelo MDS treatment anyone?

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2025

I also was recently diagnosed with aplastic anemia, but was told that it was likely age...

https://connect.mayoclinic.org/comment/848839/

Discussion: Aplastic Anemia and vaccine influences

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

After 4-months, my 2nd Hematologist finally diagnosed me with Low Grade MDS. WBC of 1.6, Neutrophils...

https://connect.mayoclinic.org/comment/1442431/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2025

@asarnesejr Initially, the diagnosis of MDS can take a bit to get used to. I think...

https://connect.mayoclinic.org/comment/1399022/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2025

Also looking for Rytelo information. It’s so new we may not get much for experience on...

https://connect.mayoclinic.org/comment/1199195/

Discussion: imetelstat/Rytelo MDS treatment anyone?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

Did they do a molecular panel to determine which genes have mutated? The reason I ask...

https://connect.mayoclinic.org/comment/194333/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2019

I have the JAK2 and SRSF2 mutations. I was diagnosed with MDS/MPN overlap with Thrombocytosis. Extremely...

https://connect.mayoclinic.org/comment/194316/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: May 9, 2019

I also was diagnosed with AML About 6 months ago. I had MDS for 9’yesrs ago...

https://connect.mayoclinic.org/comment/1494565/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Jan 30 10:03pm

@twitt1949 I’ve had itching as well but I’ve suffered from allergies since I’ve been little so...

https://connect.mayoclinic.org/comment/1557373/

Discussion: MDS and walking.

Support Group: Blood Cancers & Disorders

Posted: 16 hours ago