Blood Cancers & Disorders Support Group

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Comments (759)

I thought my husband just had the flu. He had a fever and some chest congestion...

https://connect.mayoclinic.org/comment/1134680/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2024

j0318- Are you in the "Be a Match" pool? I am not sure your background, but...

https://connect.mayoclinic.org/comment/1168836/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 5, 2024

I'm also taking curcumin capsules, 500 mg each, two a day. Natural therapies, that's a pretty...

https://connect.mayoclinic.org/comment/1092156/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2024

It really would be much less worry if you could wait and see if your absolute...

https://connect.mayoclinic.org/comment/622954/

Discussion: Use of Neupogen (or similar) prior to minor surgery

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2021

Not yet; so far, only my platelets have gone down. The rest are still normal. I...

https://connect.mayoclinic.org/comment/1160042/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2024

To all of you. This road is not easy, and fear is waiting for you. Do...

https://connect.mayoclinic.org/comment/1098199/

Discussion: I am newly diagnosed with AML. with the inv(3) mutation,

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2024

As I understand it, the SRSF2 mutation is worse than the SBF31 mutation as it relates...

https://connect.mayoclinic.org/comment/328556/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2020

This message is in response to the Revlimid (Lenalidomide) rash discussion. After two years on Procrit/Retacrit...

https://connect.mayoclinic.org/comment/1244719/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Feb 24 2:37pm

@juniperjgin Thank you so much! Yes it's true that the extra long wait time is simply...

https://connect.mayoclinic.org/comment/1113190/

Discussion: 2 weeks for BMB results now Pathology is adding several weeks more

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2024

There is much to consider before a SCT. Besides the medical aspects, there are also the...

https://connect.mayoclinic.org/comment/1266131/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 24 10:35pm

Ryan, my husband was diagnosis with MDS and just 1% from AML in August of 22...

https://connect.mayoclinic.org/comment/1062448/

Discussion: 75 year old father just diagnosed with AML

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

Thank you both for thee updates!! As i took my walk today i thought that without...

https://connect.mayoclinic.org/comment/1185491/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Dec 6, 2024

Well, I got news from my sister, that my cat died early this morning. Honestly, what...

https://connect.mayoclinic.org/comment/1102250/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 9, 2024

I am so very grateful for both of your comments. So, thank you! Yet, I remain...

https://connect.mayoclinic.org/comment/901337/

Discussion: MDS: How to improve my condition in watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2023

Gail, thank you so much for your reply. My husband was diagnosed with MDS with multilineage...

https://connect.mayoclinic.org/comment/1255552/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 11 12:26pm

I have skin only Langerhans cell histiocytosis (LCH), a rare blood disease, chronic myelomonocytic leukemia (CMML)...

https://connect.mayoclinic.org/comment/942040/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2023

Thank you for your insight. Over the course of less than a year, I went from...

https://connect.mayoclinic.org/comment/1251599/

Discussion: Anyone have both Myelodysplastic Syndrome (MDS) & Parkinson's?

Support Group: Parkinson's Disease

Posted: Mar 6 8:49am

Thank you Lori, Have had the bursitis pain for a while and my PCP did an...

https://connect.mayoclinic.org/comment/1172498/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

To you both! My days following the transplant included 2 more rounds of a chemo for...

https://connect.mayoclinic.org/comment/1085799/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 12, 2024

mikecaldwell---------Amazing journeys we are on. As a platelet donor for 25 years with the Red Cross...

https://connect.mayoclinic.org/comment/1327952/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 15 5:57pm