Blood Cancers & Disorders Support Group

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Comments (696)

Hi @brendamarlene! As I’m watching the snow fall in huge flakes right now, I can so...

https://connect.mayoclinic.org/comment/1250838/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 5 9:00am

I’m so sorry, Jenn. I know this is extremely difficult for your dad, you and your...

https://connect.mayoclinic.org/comment/1240003/

Discussion: MDS 80 yr old male

Support Group: Blood Cancers & Disorders

Posted: Feb 18 1:34pm

I will answer the bone marrow test. First let me say I had MDS, and I...

https://connect.mayoclinic.org/comment/1108465/

Discussion: should I do more testing?

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2024

Brenda, you had asked me three questions a "while" back: 1- Could you explain what your...

https://connect.mayoclinic.org/comment/963237/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

He will be having another BMB in November. He seems to tire more easily lately. i...

https://connect.mayoclinic.org/comment/945955/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2023

Hi Becky, I have MDS/MPN overlap with Thrombocytosis and I'm also in the early stage of...

https://connect.mayoclinic.org/comment/278675/

Discussion: New dx of Post ET-MF

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2019

Good morning, @shels93 Oh gosh, I hope your husband’s appointment with the specialist doesn’t have to...

https://connect.mayoclinic.org/comment/781076/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2022

Lori-thank you so much for the fast reply. He has not been given anything (specifically Neulasta...

https://connect.mayoclinic.org/comment/780979/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2022

I don’t get overly fatigued but the Hydea does give me an upset stomach that lasts...

https://connect.mayoclinic.org/comment/194335/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2019

Welcome to Connect, @mybeachbijou. Oh my goodness, your poor brother has been through so much in...

https://connect.mayoclinic.org/comment/879524/

Discussion: How does someone “feel” with untreated AML?

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

I am at my 98th day after transplant. I saw my doctor today and he super...

https://connect.mayoclinic.org/comment/1106815/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 16, 2024

Welcome to Connect @kmak1939stuart. I am sorry to hear about your diagnosis of MDS and the...

https://connect.mayoclinic.org/comment/1083696/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

Hi Kat! Reading through your reply just now, I’m wondering if the medication your doctor was...

https://connect.mayoclinic.org/comment/1210230/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 12 10:19pm

Lori always has a wealth of knowledge to share with us when we are first diagnosed...

https://connect.mayoclinic.org/comment/1183515/

Discussion: What treatment options for CMML2 with no detected mutations ?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2024

Hi Lisa, My husband Dave has struggled with chronic anemia and fatigue for 2 1/2 years....

https://connect.mayoclinic.org/comment/1163480/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2024

Hi Susan, Welcome to Connect. From my experience, with basically the same timeline as your AML/7+3,...

https://connect.mayoclinic.org/comment/1075292/

Discussion: How long from diagnosis of AML typically comes the BMT?

Support Group: Blood Cancers & Disorders

Posted: May 26, 2024

Thank you for the update!! I was wondering how your husband was doing after his transplant!...

https://connect.mayoclinic.org/comment/815003/

Discussion: Any suggestions to alleviate Bone Pain from Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2023

Good morning, Lori, I am new to this support group and still trying to find my...

https://connect.mayoclinic.org/comment/1266356/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 25 9:21am

Hi Vickie, (@marlysmae) I haven’t found similar postings in the forum with your specific mutation. Sometimes...

https://connect.mayoclinic.org/comment/1156826/

Discussion: Venetoclax plus decitabine not working?

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2024

Hello. No I certainly did not make this up. I didn't say the company name because...

https://connect.mayoclinic.org/comment/987086/

Discussion: Insurance has denied coverage

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2023