Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,122 total results

Comments (1,035)

Hi @eibsee1948, Welcome to Connect. My goodness, you have a platelet level of 3? That’s dangerously...

https://connect.mayoclinic.org/comment/758584/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2022

Hello! Thank you for your message, rjperk633 (@rjperk633). I relayed your words to my partner. She'll...

https://connect.mayoclinic.org/comment/1385329/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2025

My hemotologist has me on the Hydro and Anagrelide plus a low dose aspirin. I tell...

https://connect.mayoclinic.org/comment/800332/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2023

Good morning, @atsfmojj. There are different subtypes of MDS. Each have their own characteristics with varying...

https://connect.mayoclinic.org/comment/1248573/

Discussion: Curcumin and Turmeric causing anemia?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2025

Oh my goodness, your mom is 106 years young?? That’s amazing. I hope she’s still doing...

https://connect.mayoclinic.org/comment/1328243/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025

@twitt1949 Good luck tomorrow! I've not had a PET scan, but I have been in many...

https://connect.mayoclinic.org/comment/1535323/

Discussion: Can I drive home (3 hours) after a PET scan? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 25 5:38pm

I told my Oncologist that I would not go through a stem cell transplant after 80....

https://connect.mayoclinic.org/comment/870265/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Hi @pixiesusan You have some very good questions that deserve answers. Both CCUS and MDS are...

https://connect.mayoclinic.org/comment/1147249/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

As a MDS person I feel compeled to mention what my Dr. (Oncologist) has tried for...

https://connect.mayoclinic.org/comment/1099658/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2024

Thank you for this post. It is very helpful to me. My husband was diagnosed with...

https://connect.mayoclinic.org/comment/995350/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 11, 2024

I was diagnosed low risk MDS two years ago. My platelets have been steadily rising since...

https://connect.mayoclinic.org/comment/827434/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

My Dr does not have good bedside demeanor. Very short on details from my questions. It...

https://connect.mayoclinic.org/comment/1195327/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

@montauk I can definitely relate. I am 78, and my MDS was diagnosed about a year...

https://connect.mayoclinic.org/comment/1464633/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

I am a 76 year old male who is now living with Myelodysplastic syndrome, ringed sidero...

https://connect.mayoclinic.org/comment/926981/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2023

Welcome to Connect, @camacho. I’m sure with your wife’s recent diagnosis of MDS (myelodyplastic syndrome) you...

https://connect.mayoclinic.org/comment/924707/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2023

I am experiencing the shortness of breath that you described and haven’t anything to attribute to....

https://connect.mayoclinic.org/comment/1472909/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Jan 2 12:03pm

I have bern in both drugs. I am on prolia for osteopenia for 3 yrs now...

https://connect.mayoclinic.org/comment/1427964/

Discussion: Anyone taking Hydroxyurea for ET and Prolia for Osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Oct 31, 2025

I was diagnosed with MDS - MLD (Multi-lineage dysplasia) by BMB in 2020, but 2 other...

https://connect.mayoclinic.org/comment/1056458/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

I am 77 years old with MDS with SF3B1 mutation. I was told that I have...

https://connect.mayoclinic.org/comment/1412214/

Discussion: Severe Iron Overload caused by too many IV Iron infusions

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2025

Honestly, if you told my husband his MDS was back I’m not sure what he would...

https://connect.mayoclinic.org/comment/980220/

Discussion: Relapsed AML: Anyone choosing no treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2023