Blood Cancers & Disorders: Discussions | Page 32

Hi Eileen, I have been on Pegasus for 7 weeks, at a dosage of 45 mcg...

https://connect.mayoclinic.org/comment/807552/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2023

Were you originally diagnosed by extensive labs and a bone marrow biopsy? Are you seeing an...

https://connect.mayoclinic.org/comment/783396/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2022

I have had elevated RBC, WBC, Hemocrit and Hemaglobin for almost three years but am negative...

https://connect.mayoclinic.org/comment/1257432/

Discussion: JAK2 negative test results

Support Group: Blood Cancers & Disorders

Posted: Mar 13 9:57pm

Welcome to Connect, @shellep16 As fellow member @eloise999 mentioned, an allogenic SCT (using donor cells) would...

https://connect.mayoclinic.org/comment/1324156/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 10 9:17am

Hi Arlene, I was diagnosed with ET Jak2 Nov. 2022. I am taking 1000 mg per...

https://connect.mayoclinic.org/comment/1204752/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 5 4:37pm

Hi, I have ET JAK2, but am not taking HU due to my age and other...

https://connect.mayoclinic.org/comment/830670/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2023

Hi I was newly diagnosed with this and am waiting to start on medication. I am...

https://connect.mayoclinic.org/comment/821798/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Hi Gary. You’re right, statistically women do appear to outnumber men with ET cases. So, welcome...

https://connect.mayoclinic.org/comment/1117103/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2024

there is a naturopathic drug called "lumbrokinase " old Chinese medicine. I am going to start...

https://connect.mayoclinic.org/comment/1021025/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2024

I started out taking HU 1x week for a month, 2x week for 8 months, and...

https://connect.mayoclinic.org/comment/1006203/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2024

Hi Mikemp, I experienced the same fluctuations. I was diagnosed with ET November 2022. Started out...

https://connect.mayoclinic.org/comment/1275362/

Discussion: My platelet count has increased after a year on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: Apr 6 8:25am

Your platelet level must be fairly low if starting HU is being left up to you....

https://connect.mayoclinic.org/comment/995371/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2024

Welcome to this "new planet" @cmcj. To help you connect with others, I moved your post...

https://connect.mayoclinic.org/comment/891068/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2023

I'm also CALR. Started on 500 mg HU daily when platelets approached 800. Took a year...

https://connect.mayoclinic.org/comment/881192/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2023

I was diagnosed with ET at 37 with platelets at 890. I started on aspirin only...

https://connect.mayoclinic.org/comment/792965/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2023

Hi @amyb52. Welcome to Connect. This is a great forum for meeting other members who share...

https://connect.mayoclinic.org/comment/882031/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2023

Just saying, "You have a JAK2 V617F is not enough! In my opinion and many oncologists'...

https://connect.mayoclinic.org/comment/1313666/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 26 8:33pm

Regarding bone pain, there are enough of us commenting on it that it seems to me...

https://connect.mayoclinic.org/comment/1309411/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: May 21 10:37am

My wife was diagnosed with ET/Jak2 in the summer of 2024. She's been on Hydrea since...

https://connect.mayoclinic.org/comment/1209689/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 12 8:54am

Yes, I'm blessed with an amazing care team: a PCP who was astute enough to contact...

https://connect.mayoclinic.org/comment/1221090/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 25 7:59am

Blood Cancers & Disorders Support Group