Blood Cancers & Disorders: Discussions | Page 32

Hi @lindagualtieri, Welcome to Connect. Looks like you’ve been dubbed with a new diagnosis and have...

https://connect.mayoclinic.org/comment/1146045/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 23 9:56am

yeah i'm home now recovering. the JAK2 was negative as was the calr and mpl the...

https://connect.mayoclinic.org/comment/298979/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2020

Hi, I was Jak2 neg and had a hunch I may not have PV and kept...

https://connect.mayoclinic.org/comment/1024191/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 28 8:44am

Ok, symptoms no worse and they don’t interfere with my life but unfortunately my platelets have...

https://connect.mayoclinic.org/comment/1043121/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Mar 31 9:18am

Thanks for your comment. So Pegasus is about $1200 before insurance? Do they accept all insurances?...

https://connect.mayoclinic.org/comment/1010342/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Feb 5 7:09pm

I was originally miss diagnosed with polycythemia Vera. Because I was borderline anemic and I worked...

https://connect.mayoclinic.org/comment/1044688/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3 10:22am

I am 65 years old and seem to be a rare male here. Not surprising since...

https://connect.mayoclinic.org/comment/1117080/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Aug 3 12:33pm

Hi @themyth, with Polycythemia Vera, too many red blood cells are produced resulting in the high...

https://connect.mayoclinic.org/comment/821819/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

I get annual labs with my physical so we know it's new for me. PLUS I...

https://connect.mayoclinic.org/comment/843149/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023

Sorry to here he joined our band of rare misfits....I have had Primary MF for two...

https://connect.mayoclinic.org/comment/132655/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2020

Hi, my name is Carlavan and I to have ET with JAK2 mutation, my initial complaint...

https://connect.mayoclinic.org/comment/276870/

Discussion: CalR mutation ET and constitutional symptoms

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2019

I was diagnosed with MDS/MPN-RS-T in 2018. I have three mutations -JAK2, SRFS2 and IDH1-R132H. My...

https://connect.mayoclinic.org/comment/1042552/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 30 7:06am

Hang in there. I went undiagnosed for nearly a year. I have had blood work and...

https://connect.mayoclinic.org/comment/1060466/

Discussion: Essential Thrombocythaemia

Support Group: Blood Cancers & Disorders

Posted: May 1 5:58pm

Thanks Eileen. I had terrible mouth sores with HU and went off for about a month...

https://connect.mayoclinic.org/comment/792213/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2023

You seem extremely responsive to Hydroxyurea (HU) if your platelets came down in only ten days....

https://connect.mayoclinic.org/comment/777871/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2022

Hi @tennis7777, welcome to Connect. I’m not a medical professional but from my experience of having...

https://connect.mayoclinic.org/comment/1011277/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 7 1:03pm

https://connect.mayoclinic.org/comment/1010600/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Feb 6 9:54am

Excellent news that you consulted at the Mayo Clinic! That's a great plan for someone planning...

https://connect.mayoclinic.org/comment/1156324/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Oct 13 10:25am

Hi Lisa. Hopefully you will get some definitive answers once you meet with your Hematologist in...

https://connect.mayoclinic.org/comment/1162384/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25 6:00am

My hematologist submitted blood at a lab for 5 genetic tests after I suffered my 2nd...

https://connect.mayoclinic.org/comment/194258/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2018

Blood Cancers & Disorders Support Group