Blood Cancers & Disorders Support Group

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Welcome @jak2mpnpositive, allow me to tag other members like @claire39 @bluegrasspv2018 @jam5 @dwlowrance @levieta @lzimmerman @mpt77...

https://connect.mayoclinic.org/comment/686214/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2022

Hello, I’ve been on it for three years. I’m 59 with PV JAK2 positive. Hair thinning...

https://connect.mayoclinic.org/comment/1464371/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

So glad that you got some answers! Yes, ET-CALR is suspected to be a somewhat different...

https://connect.mayoclinic.org/comment/1364210/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2025

I understand how the word "cancer" can strike fear in your heart. When I first heard,...

https://connect.mayoclinic.org/comment/1229409/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2025

Well, MPNs are indeed blood cancers, and the JAK2-driver is associated with one of the MPNs,...

https://connect.mayoclinic.org/comment/1228377/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2025

I take Desloratadine, an antihistamine for the itching and it works great. For dry skin on...

https://connect.mayoclinic.org/comment/1205154/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2025

I am 77 and was recently diagnosed with JAK2 ET in September of this year and...

https://connect.mayoclinic.org/comment/777821/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2022

Hello everyone! I was diagnosed 3 months ago with pv and secondary eryth(not sure how to...

https://connect.mayoclinic.org/comment/795080/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2023

I was just diagnosed two weeks ago. Am 46 years old. Jak2 positive. Have just started...

https://connect.mayoclinic.org/comment/999753/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2024

Hello I have PV JAK2 Positive now for almost three years. Age 59. I get hot...

https://connect.mayoclinic.org/comment/1417964/

Discussion: Anyone else taking Hydroxyurea plus Gabapentin for Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2025

Yes, HU lowers platelets. Mine went from a high of 800s to the 400s. It took...

https://connect.mayoclinic.org/comment/1152435/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2024

Hi @remo1110 Blood conditions and blood cancers can be confusing. You’ve been diagnosed with Essential Thrombocytosis...

https://connect.mayoclinic.org/comment/980332/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2023

Hi nohrt4me, Thank you for posting. I totally agree with you that we have to work...

https://connect.mayoclinic.org/comment/1313253/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 26, 2025

When I first saw my heme doc little over a year ago, he said not to...

https://connect.mayoclinic.org/comment/1039829/

Discussion: Im 64 and my blood platelets have been in the low 530-550 range for yr

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2024

I have read the risks for AML with ET. It is low, but can happen. One...

https://connect.mayoclinic.org/comment/1022379/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2024

The WHO has designated ET with Jak2 is a chronic cancer. And HU is considered chemo,...

https://connect.mayoclinic.org/comment/901372/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2023

In the same boat. JAK2 negative. Now what? My stress and worry are getting the best...

https://connect.mayoclinic.org/comment/886799/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Jun 28, 2023

I met with new oncologist/hema this week. I will be getting a bone marrow biopsy, as...

https://connect.mayoclinic.org/comment/651545/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2021

Thanks to everyone on this forum , I was diagnosed with two mutations middle last year,...

https://connect.mayoclinic.org/comment/1285436/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2025

I believe PV can be managed without phlebotomies. I know this as I have had PV...

https://connect.mayoclinic.org/comment/1194508/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2024