Blood Cancers & Disorders Support Group

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Comments (361)

Hello, @vnvet, Welcome to Mayo Clinic Connect. Polycythemia vera is a type of chronic leukemia (blood...

https://connect.mayoclinic.org/comment/795352/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2023

Hi @brooks7987, welcome. I moved your question about HU (hydroxyurea) and interferon to this existing discussion:...

https://connect.mayoclinic.org/comment/794968/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2023

@rmegg asked a similar question and may have experience to offer. - Erythrocytosis: Any suggestions for...

https://connect.mayoclinic.org/comment/1508196/

Discussion: Polycythemia vera (Jak negative): What to do when ferritin low?

Support Group: Blood Cancers & Disorders

Posted: Feb 17 2:07pm

Looking for support group for Polycythemia Vera as I know nothing about this yet. Need support....

https://connect.mayoclinic.org/comment/1463516/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2025

Welcome, @brilsmla. I moved your message to this existing discussion: - Polycythemia Vera: Just been diagnosed:...

https://connect.mayoclinic.org/comment/811553/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2023

Hi @trillium, while many patients with polycythemia vera (PV), essential thrombocythemia (ET) or myelofibrosis (MF) have...

https://connect.mayoclinic.org/comment/336437/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Mar 2, 2021

Good morning, @mdobney Welcome to Mayo Connect. Polycythemia vera is a blood condition where your body...

https://connect.mayoclinic.org/comment/989067/

Discussion: Can polycythemia cause iron deficiency?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2023

Welcome, @chitra. How long have you been living with polycythemia vera? Did you find switching to...

https://connect.mayoclinic.org/comment/975494/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2023

What is polycythemia Vera and what are the other symptoms? Mine is more of a tickling...

https://connect.mayoclinic.org/comment/818925/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2023

Hi, yes, those headaches can be debilitating and painful. I’m sorry you’re suffering with many symptoms....

https://connect.mayoclinic.org/comment/1126359/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2024

Welcome Christine, I moved your "just diagnosed" message to this existing discussion of the same name:...

https://connect.mayoclinic.org/comment/749672/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2022

Good morning, @lylespeace, PV is Polycythemia Vera, a blood disorder. https://www.mayoclinic.org/diseases-conditions/polycythemia-vera/symptoms-causes/syc-20355850 Welcome to Mayo Connect where...

https://connect.mayoclinic.org/comment/872121/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023

Is there anyone out there that has been diagnosed with both polycythemia vera and myelo fibrosis?...

https://connect.mayoclinic.org/comment/781275/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2022

@dwilson072516 Hi. If your husband does not have the JAK2 V617F mutation, which is commonly associated...

https://connect.mayoclinic.org/comment/1564471/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: May 1 11:46pm

Yes polycythemia Vera I asked the oncologist about AML but she was very vague and just...

https://connect.mayoclinic.org/comment/591445/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2021

I found wonderful relief using full strength tea tree oil. I’ve had polycythemia vera for 20...

https://connect.mayoclinic.org/comment/818978/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2023

Hello @apr931, you may noticed I merged you discussion with an existing discussion on Polycythemia Vera....

https://connect.mayoclinic.org/comment/231779/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2019

I have polycythemia vera also a jak 2. If this is your diagnosis there is no...

https://connect.mayoclinic.org/comment/1087160/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

I had a no cancer diagnosis, follow up with hematologist every three months, however 1st available...

https://connect.mayoclinic.org/comment/827268/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2023

Hi @martine0224, welcome. PV stands for Polycythemia Vera, a type of blood cancer that causes the...

https://connect.mayoclinic.org/comment/1100471/

Discussion: Does anyone have Hemocromatosis and??

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

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