Blood Cancers & Disorders Support Group

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Comments (487)

I have IgA kappa myeloma. There are only 6,000 folks with IgA kappa in the USA....

https://connect.mayoclinic.org/comment/1046295/

Discussion: Blood Test: Numbers are up, will doctor not start me on treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2024

@colleenyoung I am still smoldering multiple myeloma. I know from others on my other support group,...

https://connect.mayoclinic.org/comment/1560250/

Discussion: DVRd quadruple therapy for myeloma: Nervous about side effects

Support Group: Blood Cancers & Disorders

Posted: Apr 26 4:01pm

@marj1956, what treatments are you on for multiple myeloma? How are you doing?

https://connect.mayoclinic.org/comment/1147297/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

Hi @lfevold, I'd like to add my welcome and also bring @beepoop @1nan @pro @lkzvlk @gingerw...

https://connect.mayoclinic.org/comment/325693/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2020

@gayeh and @mycuppajava There is an online support group sponsored by Mayo Clinic, each month https://connect.mayoclinic.org/event/multiple-myeloma-sharing-sessions-24-f7983a9a/...

https://connect.mayoclinic.org/comment/1431583/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2025

@russobx, I'm tagging @gingerw who also is in chemo treatment for multiple myeloma. I'm sorry to...

https://connect.mayoclinic.org/comment/1604713/

Discussion: A Summary of My Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 23 2:32pm

I know the protocols have changed a bit, but my husband took revlomid maintenance after stem...

https://connect.mayoclinic.org/comment/1397173/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2025

@lgeorge, I had to look up this new treatment option for patients with myeloma that uses...

https://connect.mayoclinic.org/comment/873180/

Discussion: Bispecific antibodies For Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

Today I received an email from CURE, who posts articles regarding different cancers. As a multiple...

https://connect.mayoclinic.org/comment/81221/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2020

Are you seeing a myeloma specialist? If not, get one even if you have drive a...

https://connect.mayoclinic.org/comment/1534906/

Discussion: How high should my Kappa light chain continue to rise before I worry.?

Support Group: Blood Cancers & Disorders

Posted: Mar 25 8:22am

I was diagnosed with stage 3 myeloma 31 years ago and visited Mayo 3 times for...

https://connect.mayoclinic.org/comment/830233/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2023

I’m active after 30 years with stage 3 myeloma. Mayo second opinions were critical when my...

https://connect.mayoclinic.org/comment/681149/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2022

I believe you are correct. Every other disease that occurs and has progressive stages they do...

https://connect.mayoclinic.org/comment/1249581/

Discussion: Stopping Myeloma at the MGUS Stage

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2025

@lisa47 Good morning, Lisa. I’m sure you have a ton of questions as to, what’s next??...

https://connect.mayoclinic.org/comment/1642116/

Discussion: Anyone with Plasma Cell Leukemia or family?

Support Group: Blood Cancers & Disorders

Posted: Aug 10 8:13am

Welcome, @wanettra. I expanded the title of your discussion to connect you with members like @tally9004...

https://connect.mayoclinic.org/comment/1406853/

Discussion: Anyone have experience with daratumumab (Darzalex) to treat Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2025

@carolesg It's called multiple myeloma for a reason. There are several different types of myeloma. And...

https://connect.mayoclinic.org/comment/1106103/

Discussion: Stopping Myeloma at the MGUS Stage

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2024

@rimord Just curious. If you are high risk SMM why the watch and wait? Did your...

https://connect.mayoclinic.org/comment/1637831/

Discussion: Smoldering Multiple Myeloma and symptoms

Support Group: Blood Cancers & Disorders

Posted: Aug 5 5:29am

Welcome @dbont, I'm tagging fellow members living with smoldering multiple myeloma like @beepoop @1nan @pro @lkzvlk...

https://connect.mayoclinic.org/comment/809863/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2023

@mycuppajava Welcome to Mayo Clinic Connect. Getting a diagnosis like multiple myeloma can certainly set your...

https://connect.mayoclinic.org/comment/1426123/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2025

My heart goes out to your sister. I had a period of time when morphine wasn’t...

https://connect.mayoclinic.org/comment/730088/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2022

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