Blood Cancers & Disorders Support Group

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Comments (228)

Thank you for inquiring about our case update. We have gone through 10 weeks of Iron...

https://connect.mayoclinic.org/comment/1399418/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2025

Good morning, Jacklyn. I think the medication you’re referring to is Azacitidine (Vidaza). There are two...

https://connect.mayoclinic.org/comment/1098464/

Discussion: I've had CML for 20 years and want to encourage others

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

My mom’s suggested treatment was 5 days of Vidaza, 3 weeks off, repeat for as long...

https://connect.mayoclinic.org/comment/1385152/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2025

I have aml and take vidaza and venclexta...but I have mutations and hoping to get into...

https://connect.mayoclinic.org/comment/1393276/

Discussion: Treatment approaches for MRD positive AML in remission

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2025

Hi @dax1million I just wanted to check in with you to see how your husband is...

https://connect.mayoclinic.org/comment/1272465/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2025

Has anyone taken vidaza and venclecta for aml and what results did you have .and what...

https://connect.mayoclinic.org/comment/1231712/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2025

@dchavian, I would like to invite @shammer to this discussion as well as they also recently...

https://connect.mayoclinic.org/comment/251919/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2019

Thanks for the valuable information. I have not heard of Vidaza. As I write this, I...

https://connect.mayoclinic.org/comment/1493380/

Discussion: Does anyone have MDS with the SF3B1 mutation?

Support Group: Blood Cancers & Disorders

Posted: Jan 29 11:46am

HALFWAY TREATMENT? I saw the hematologist a few days ago. He diagnosed me with "MDS with...

https://connect.mayoclinic.org/comment/1325787/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2025

It does appear that Vidaza is no longer working. However, my doctor started a high dose...

https://connect.mayoclinic.org/comment/1234512/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2025

My husband has MDS. After several cycles of vidaza he was experiencing platelet counts in the...

https://connect.mayoclinic.org/comment/1090187/

Discussion: Has anyone had a low platelet count of just 1?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2024

I can tell you this with my own experience. I'm taking in Inquovi which is the...

https://connect.mayoclinic.org/comment/1576930/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: 1 day ago

I am 76…been on Vidaza for 40 cycles…Hemoglobin has been around 13. Good health to you...

https://connect.mayoclinic.org/comment/1356305/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2025

My first shots resulted in severe vomiting and a trip to the er. I was told...

https://connect.mayoclinic.org/comment/1273485/

Discussion: I'm about to begin treatments with Vidaza, what should I know?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2025

I have MDS and have been on Vidaza for 3 years, (36 cycles) 5 days every...

https://connect.mayoclinic.org/comment/1302372/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2025

Welcome to Connect, @pinch. It looks like your mom was newly diagnosed with CMML. (Chronic myelomonocytic...

https://connect.mayoclinic.org/comment/1182559/

Discussion: What treatment options for CMML2 with no detected mutations ?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2024

Hello @teammeadows. You mentioned a few weeks ago that you were about to start a round...

https://connect.mayoclinic.org/comment/221010/

Discussion: Leukemia CMML-2

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2018

I take vidaza 3 injections per 28 days(was 5 times )...I take venetoclax 100mg daily....my blasts...

https://connect.mayoclinic.org/comment/1425393/

Discussion: Anyone take Vidaza and Venetoclax for Acute Myeloid Leukemia (AML)?

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2025

My husband has this mutation for his MDS plus others . He is 83 years old...

https://connect.mayoclinic.org/comment/1493275/

Discussion: Does anyone have MDS with the SF3B1 mutation?

Support Group: Blood Cancers & Disorders

Posted: Jan 29 10:15am

We're going to start with what the doctor advises: 1 week of the Vidaza, then 3...

https://connect.mayoclinic.org/comment/1385949/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2025

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