Blood Cancers & Disorders: Discussions | Page 3

Hello @wellness3070, Connect members @jfinlay, @djr, @bijou have discussed Jakafi in the past as well; you...

https://connect.mayoclinic.org/comment/132602/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2017

Welcome to Connect @rhollis I think a good place to begin this morning is with a...

https://connect.mayoclinic.org/comment/1201587/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 1 8:46am

They gave me nausea medication that I took initially. Obviously did not help. Diagnosis is myelodysplasia...

https://connect.mayoclinic.org/comment/1275078/

Discussion: I'm about to begin treatments with Vidaza, what should I know?

Support Group: Blood Cancers & Disorders

Posted: Apr 5 5:06pm

Hello, @lmkmom I’ve been reading through a couple of your previous posts to see that you’ve...

https://connect.mayoclinic.org/comment/1320465/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 4 6:50pm

I have been diagnosed with primary myelofibrosis for 6 yrs, after having elevated platelets, and after...

https://connect.mayoclinic.org/comment/1171967/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2024

Hello @derikburger and welcome to Mayo Clinic Connect. It sounds like you may have been diagnosed...

https://connect.mayoclinic.org/comment/674287/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2022

Hello and I am new to this. My brother just got his JAK2 V617F back and...

https://connect.mayoclinic.org/comment/834314/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023

There is a Facebook group called Myelofibrosis Support Group with almost 2000 members. If you don’t...

https://connect.mayoclinic.org/comment/1244466/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 24 10:21am

Hello @susanvij, Teresa, @hopeful33250 has provided some great information, and I would also encourage you to...

https://connect.mayoclinic.org/comment/50515/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2017

My husband was diagnosed with myelofibrosis a month ago. He has had 6 platelet transfusions. His...

https://connect.mayoclinic.org/comment/1250056/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 4 7:48am

Hi, in this video, it is not clear what new drug or treatment this Doctor is...

https://connect.mayoclinic.org/comment/1256699/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 13 6:12am

Welcome @create. I'm tagging a few members who may be familiar with your unique combination of...

https://connect.mayoclinic.org/comment/761571/

Discussion: Myeloproliferative neoplasm Anyone else have a similar diagnoses?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2022

Hi @raglus, I'm tagging @scottmatteo to make sure he sees your question about dietary changes. Have...

https://connect.mayoclinic.org/comment/859309/

Discussion: Primary Myelofibrosis diagnosis in 40’s

Support Group: Blood Cancers & Disorders

Posted: May 13, 2023

Welcome @iis. Are you asking whether the Jak2 mutation is hereditary? Here's more information that you...

https://connect.mayoclinic.org/comment/811076/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2023

Hello @ksyren, yes, it is really nice to be able to chat with people who are...

https://connect.mayoclinic.org/comment/1205478/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 6 4:38pm

I suffer from a mild myelofibrosis. From time to time, I am experiencing night sweats. Has...

https://connect.mayoclinic.org/comment/1193740/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

I am not an expert, but I would think a BM bx would allow the practitioner...

https://connect.mayoclinic.org/comment/877587/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

There is a lot of information but the final comment was: The patient’s positive CALR mutation...

https://connect.mayoclinic.org/comment/1256039/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 12 7:59am

Has anyone heard of new approved treatments for dry bone marrow or myelofibrosis - not stem...

https://connect.mayoclinic.org/comment/1049344/

Discussion: Propofol for bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2024

stimme, thank you for your contribution and I hope the acupuncture has helped. I came across...

https://connect.mayoclinic.org/comment/132617/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2020

Blood Cancers & Disorders Support Group