Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

291 total results

Comments (257)

Yes polycythemia Vera I asked the oncologist about AML but she was very vague and just...

https://connect.mayoclinic.org/comment/591445/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2021

I have polycythemia vera also a jak 2. If this is your diagnosis there is no...

https://connect.mayoclinic.org/comment/1087160/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 15 7:18am

I found wonderful relief using full strength tea tree oil. I’ve had polycythemia vera for 20...

https://connect.mayoclinic.org/comment/818978/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2023

I had a no cancer diagnosis, follow up with hematologist every three months, however 1st available...

https://connect.mayoclinic.org/comment/827268/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2023

Hi @martine0224, welcome. PV stands for Polycythemia Vera, a type of blood cancer that causes the...

https://connect.mayoclinic.org/comment/1100471/

Discussion: Does anyone have Hemocromatosis and??

Support Group: Blood Cancers & Disorders

Posted: Jul 6 3:03pm

Hello @apr931, you may noticed I merged you discussion with an existing discussion on Polycythemia Vera....

https://connect.mayoclinic.org/comment/231779/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2019

Welcome to Connect, @thicksotropic. Blood conditons can surely create some challenges in our everyday lives. Do...

https://connect.mayoclinic.org/comment/986211/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 25, 2023

Also, can I ask? Since your blood is drawn regularly, can your blood be donated? Cause...

https://connect.mayoclinic.org/comment/851256/

Discussion: Is it safe to have a tattoo if you have Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2023

Good morning, @csgreetings and welcome to Mayo Connect. So many of us in this support group...

https://connect.mayoclinic.org/comment/836599/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2023

@sen1991 Welcome to Mayo Clinic Connect. Ow! Having pain in the big toe can be pretty...

https://connect.mayoclinic.org/comment/840862/

Discussion: Polycythemia and joint pain in big toe

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

Blurred vision is not uncommon with Polycythemia Vera. Not sure if it’s from too high red...

https://connect.mayoclinic.org/comment/1092197/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 23 6:58am

Hello @sunnyside17. Mayo Clinic does discuss some of the diseases and disorders that the Myeloproliferative Group...

https://connect.mayoclinic.org/comment/272989/

Discussion: Myelproliferative Neoplasms-Blood cancer info missing

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2019

@mcvorbs, you might also be interested in these related discussions: - What's the latest Jakafi (ruxolitinib)...

https://connect.mayoclinic.org/comment/1178780/

Discussion: Anyone had adverse effects from Jakafi (ruxolitinib) for PV?

Support Group: Blood Cancers & Disorders

Posted: 16 hours ago

If indeed polycythemia vera then I too have noticed shortness of breath esp walking “up hill”...

https://connect.mayoclinic.org/comment/791044/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2023

Did they do a JAK 2 blood test? This is what happened to me before I...

https://connect.mayoclinic.org/comment/926793/

Discussion: Bone Marrow Biopsy & Aspiration

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2023

I have Polycythemia Vera Jak2. I all of a sudden have my platelets go up and...

https://connect.mayoclinic.org/comment/1087185/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 15 7:47am

@richmpv, welcome to Mayo Clinic Connect. How long have you been living with polycythemia vera? In...

https://connect.mayoclinic.org/comment/193907/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

Hi @nolan, welcome to Mayo Clinic Connect. You'll notice that I moved your message to this...

https://connect.mayoclinic.org/comment/194373/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2021

Hello! I am a 50 year old male and have polycythemia vera. I’m considering trying a...

https://connect.mayoclinic.org/comment/193890/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: May 15, 2018

I had Polycythemia Vera almost 20 years. Was taking Hydrea and it was working for me....

https://connect.mayoclinic.org/comment/1114732/

Discussion: Been struggling with Polycythemia Vera for 2 years

Support Group: Blood Cancers & Disorders

Posted: Jul 30 2:47pm