Blood Cancers & Disorders Support Group

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Comments (1,035)

I talked to my Hematologist today instead of Aug 11th. He has diagnosed me with Low...

https://connect.mayoclinic.org/comment/1365138/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2025

@statmatics I hope your Dr told you that the excess blasts puts you at a higher...

https://connect.mayoclinic.org/comment/1326243/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2025

There was a recent comment on paradox effect. Can't remember the focus. I have MDS/AML the...

https://connect.mayoclinic.org/comment/1243923/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

Lori, I have seen many posts from you, all seem to be so uplifting. My husband...

https://connect.mayoclinic.org/comment/1041638/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 28, 2024

Hello Steve, I am a71 year old with MDS patient with Genesis Cancer Institute. Recently I...

https://connect.mayoclinic.org/comment/1431384/

Discussion: Idiopathic Thrombocytopenia: Anyone had platelet randomly drop?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2025

@igorp My April 7th appointment is with the MDS doctor. I don't want to move it...

https://connect.mayoclinic.org/comment/1530105/

Discussion: MDS diagnosis with DDX41 Germline and Somatic

Support Group: Blood Cancers & Disorders

Posted: Mar 18 4:18pm

Hi to all I have MDs an have 1 round of chemo using Inqovi but drug...

https://connect.mayoclinic.org/comment/844954/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

I was diagnosed with myelofibrosis, mds & mpn in March 2025. Im waiting for a donor...

https://connect.mayoclinic.org/comment/1368766/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2025

I'm just trying to grasp all of it right now. I was up most of the...

https://connect.mayoclinic.org/comment/1365429/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

HALFWAY TREATMENT? I saw the hematologist a few days ago. He diagnosed me with "MDS with...

https://connect.mayoclinic.org/comment/1325787/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2025

I started showing signs almost two years ago and was diagnosed over a year ago with...

https://connect.mayoclinic.org/comment/1255408/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2025

It does appear that Vidaza is no longer working. However, my doctor started a high dose...

https://connect.mayoclinic.org/comment/1234512/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2025

jseeker. Have you message The Moffitt center or her current dr for help with this symptom?...

https://connect.mayoclinic.org/comment/1210759/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2025

Thanks so much for sharing your journey. You are very strong and a great example for...

https://connect.mayoclinic.org/comment/1250366/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2025

Reading this last message had me holding my breath! Your poor, sweet sister! That’s just crazy...

https://connect.mayoclinic.org/comment/1112890/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

I’m not a geneticist so I’m limiting my comments accordingly. The ASXL1 mutation appears in many...

https://connect.mayoclinic.org/comment/329373/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2020

treehouse5437 Reading your post i wondered if you are at the very start of treatment or...

https://connect.mayoclinic.org/comment/1244913/

Discussion: Do you Tell Family, Friends & Co Workers about your Cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2025

Hi Bonnie, I’m saddened that you have been diagnosed with MDS/MPN-RS-T. I remember my original diagnosis...

https://connect.mayoclinic.org/comment/970297/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2023

Thank you to all of you for your comments, suggestions (especially regarding attitude), and explanations. Although...

https://connect.mayoclinic.org/comment/928377/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

I am curious as well about the transplant. My husband has MDS (Myelodysplastic syndrome) another bone...

https://connect.mayoclinic.org/comment/771944/

Discussion: Anyone have bone marrow transplant for aplastic anemia?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 11, 2022