816 total results
Comments (759)
Thank you for responding back to me. I started out with a Hematologist that said I...
https://connect.mayoclinic.org/comment/761323/
Good morning @shemac711shemac711! I got a visual on your comment about having a bad day…I’m sitting...
https://connect.mayoclinic.org/comment/1266426/
Good morning, @usmcmom. I’ve been reading through several of your posts about your diagnosis with MDS...
https://connect.mayoclinic.org/comment/1258437/
I don't have a local hematologist-oncologist. I don't know if they have estimated the risk for...
https://connect.mayoclinic.org/comment/1136610/
There's some research that indicates that the driver mutation can be detected years or even decades...
https://connect.mayoclinic.org/comment/893249/
Bonnieshaffer. So, you have not had a bone marrow transplant? If not, more testing is likely...
https://connect.mayoclinic.org/comment/1112786/
Katgob, you are amazing and your recovery is stellar, I’d say! You were wise in pursuing...
https://connect.mayoclinic.org/comment/1085441/
I got my bone marrow aspiration & bone biopsy Nov 1st. I just got back the...
https://connect.mayoclinic.org/comment/777892/
Good morning, Well I have been diagnosed by Mayo Drs this week and it turns out...
https://connect.mayoclinic.org/comment/764026/
My husband, 73, was diagnosed with High Risk MDS 10/23, 8 months into retirement. He has...
https://connect.mayoclinic.org/comment/1266646/
In May 2023 MDS went to AML with 16% blasts. Blood #s were all over the...
https://connect.mayoclinic.org/comment/1257618/
Good morning, Jacklyn. I think the medication you’re referring to is Azacitidine (Vidaza). There are two...
https://connect.mayoclinic.org/comment/1098464/
Hi Lori, Do you know of anyone who has AML with the mutation RPN1(GATA2)MECOM fusion, inv(3)?...
https://connect.mayoclinic.org/comment/1156671/
I had high monocytes for a number of years and then low platelettes (not terribly) and...
https://connect.mayoclinic.org/comment/1031603/
Anne-Marie, My husband was diagnosed with MDS last October and same thing, was told it was...
https://connect.mayoclinic.org/comment/962328/
I take a 500mg Hydrea tablet 5 days per week and two 500mg tablets on Tuesdays...
https://connect.mayoclinic.org/comment/863227/
Thank you. In Australia our government Pharmaceutical Benefits Scheme will subsidise lenalidomide for someone with MDS...
https://connect.mayoclinic.org/comment/1159692/
I was in Mayo yesterday getting my Bone Marrow aspiration. I really don't have any firm...
https://connect.mayoclinic.org/comment/768432/
I’d like to ask any of you if you’ve had this happen. I apologize for not...
https://connect.mayoclinic.org/comment/1172169/
Hi Lori - Wanted to update you on my visit with the new hematologist yesterday. Well...
https://connect.mayoclinic.org/comment/1263978/
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