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Comments (2,268)
I may be oversimplifying it, but after being diagnosed with ET my doctor wanted to check...
https://connect.mayoclinic.org/comment/1132796/
@claire39, does redness of your scalp cause you any other symptoms like itching or discomfort? Has...
https://connect.mayoclinic.org/comment/146299/
Hi. My father was recently diagnosed with ET and would rather seek out alternative therapy as...
https://connect.mayoclinic.org/comment/887626/
I have ET, platelets over one-million. DR is putting me on Jakafii. Has anyone else been...
https://connect.mayoclinic.org/comment/849030/
I am on Hydroxyuria for ET. I have the JAK 2 mutation as well. After reading...
https://connect.mayoclinic.org/comment/801334/
Hi, have had ET for over 17 years. On Hydroxycarbamide since Jan. 606 last report July,...
https://connect.mayoclinic.org/comment/1357304/
@mw2023 With ET, every single day, we're churning out too many platelets. That makes us exhausted,...
https://connect.mayoclinic.org/comment/1536318/
I am a 76-year-old male, diagnosed in 2022 with ET JAK 2. The oncologist put me...
https://connect.mayoclinic.org/comment/1551368/
Welcome, @penmueller1. It looks like you are signed in because you were able to post. :-)...
https://connect.mayoclinic.org/comment/767322/
@nande I have had vision changes from the ET. Now on HU, some improvement but still...
https://connect.mayoclinic.org/comment/1475776/
Hi @lynnevb, looks like we need to be a Registered use, providing a user name/password to...
https://connect.mayoclinic.org/comment/1400644/
recently diagnosed a case of ET, advised for bone marrow biopsy and Hydroxyurea, Still convincing myself...
https://connect.mayoclinic.org/comment/1359080/
I have both PV and ET I have had issues with my right hand. I will...
https://connect.mayoclinic.org/comment/1067652/
Try to find a good hematologist-oncologist ET is quite rare, so might just take a good...
https://connect.mayoclinic.org/comment/950231/
Hello Victoria…….also, everyone out there with ET and MPN, and patients that say that they do...
https://connect.mayoclinic.org/comment/918246/
With my ET; my latest B12 reading is over 2,000, twice the upper limit. Is this...
https://connect.mayoclinic.org/comment/194362/
@swalex Thank you for the valuable info on the types of ET and what to expect....
https://connect.mayoclinic.org/comment/1454951/
I am 72 years of age and was also diagnosed with ET in November of 2024....
https://connect.mayoclinic.org/comment/1329859/
Interesting that Dr did a DNA analysis. I had a bunch of blood tests and a...
https://connect.mayoclinic.org/comment/812995/
Thank you so much for your encouragement. One question; why do you say , ‘ I...
https://connect.mayoclinic.org/comment/1280410/
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