Blood Cancers & Disorders Support Group

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Comments (1,382)

I've checked with AI ChatGBT...it gave a lot of info. Here is some of it... Why...

https://connect.mayoclinic.org/comment/1513662/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 24 12:49pm

I was told before I had the Jak2 positive that if it were Polycythemia secondary that...

https://connect.mayoclinic.org/comment/896033/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2023

@caroldk I also am JAK2 negative & CD20 negative. Please don't feel alone there are a...

https://connect.mayoclinic.org/comment/218739/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2019

@carlavan, welcome to Connect. I moved your discussion to the Blood Cancers & Disorders group and...

https://connect.mayoclinic.org/comment/194264/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2018

Yes, the Jak2 was positive. And yes, I'm seeing an hematoligist. I knew the phlebotomy might...

https://connect.mayoclinic.org/comment/1399748/

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2025

Hi again nohrt4me, Yes, it would be wonderful if patients like you with CALR doing very...

https://connect.mayoclinic.org/comment/1313447/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 26, 2025

My wife, who is 72 was recently diagnosed with ET. She had a blood test prior...

https://connect.mayoclinic.org/comment/1145648/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2024

I am brand new to this forum and have yet to be formally diagnosed by an...

https://connect.mayoclinic.org/comment/1375453/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2025

Hello Everyone, Met with Hematologist today. Expectedly so, based on Jak2 detection and blood counts level,...

https://connect.mayoclinic.org/comment/937118/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2023

I had a platelet count of 847,000 a d was told I had ET and was...

https://connect.mayoclinic.org/comment/252023/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2019

International Prognostic Score for ET Patient age less than 60 (0 points) Older than 60 (1...

https://connect.mayoclinic.org/comment/782535/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

When I got second shingles shot, my platelet count plummeted, was of concern to Hemo, but...

https://connect.mayoclinic.org/comment/1131106/

Discussion: COVID infection is terrible

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2024

@hipsu5 @colleenyoung ; @janemc I have received results from my BMP. And I am happy to...

https://connect.mayoclinic.org/comment/1531053/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 20 1:55am

Good morning, @cweible19782006 Let’s get you Connected with some fellow members who also have Essential Thrombocythemia....

https://connect.mayoclinic.org/comment/820581/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

Hello, I was recently diagnosed with PV in January. Originally my PC saw my red cells...

https://connect.mayoclinic.org/comment/870205/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

I began taking hydroxyurea ( 2 x 500 mg) on Friday and am in day 4....

https://connect.mayoclinic.org/comment/597470/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 26, 2021

PV JAK2 positive. I have tingling/stinging in my Hands and feet and at times I feel...

https://connect.mayoclinic.org/comment/1441560/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2025

I have ET Jak2 x 18 months now 71 yr old active, vegetarian , on ASA...

https://connect.mayoclinic.org/comment/1191460/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2024

Merry Christmas! Happy Holidays! I found this forum and it has made a positive difference in...

https://connect.mayoclinic.org/comment/1467099/

Discussion: Diagnosed polycythemia vera at 26: Any young PV patients out there?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2025

Welcome to Connect, @clickpaw. There are diets posted online to potentially lower platelets by reducing inflammation...

https://connect.mayoclinic.org/comment/1215129/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2025