Blood Cancers & Disorders Support Group

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Comments (1,104)

You may never find the underlying cause for when and why the mutation happened. It may...

https://connect.mayoclinic.org/comment/1272702/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 2 2:07pm

The varying side effects are interesting to me. I have them all! I started on HU...

https://connect.mayoclinic.org/comment/1347512/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

Hi lynnevb, Thank you for you useful website information. I started reading it and you are...

https://connect.mayoclinic.org/comment/1216943/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 19 8:58pm

I am so grateful for all the information I have received from the members of this...

https://connect.mayoclinic.org/comment/1097432/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2024

Do you know if you have any acquired gene mutations that have caused you to have...

https://connect.mayoclinic.org/comment/1091461/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

There are foods which can help raise platelets. But when you have a JAK2 mutation, that...

https://connect.mayoclinic.org/comment/1083483/

Discussion: Which specific kind of doctor looks into thrombocytopenia?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

The meds will work but takes a while to get the dosage correct. My platelets were...

https://connect.mayoclinic.org/comment/1064057/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2024

I was diagnosed low risk MDS two years ago. My platelets have been steadily rising since...

https://connect.mayoclinic.org/comment/827434/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

Hi Mortysdad… I am very interested in your progress with Pegasys for ET JAK2. I was...

https://connect.mayoclinic.org/comment/807054/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

My husband was diagnosed at 69, a year ago, with Primary Myelofibrosis including Jak2 mutation. A...

https://connect.mayoclinic.org/comment/693147/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2022

No travel problems here. We fly extensively every year, even since I was diagnosed, ET w/JAK2....

https://connect.mayoclinic.org/comment/1089517/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2024

Two years ago, at age 78, I noticed severe itching after bathing. A physicians assistant noticed...

https://connect.mayoclinic.org/comment/872059/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023

Great post. I'm 67 and recently diagnosed with ET and Jak2 mutation. My Hemo Dr started...

https://connect.mayoclinic.org/comment/787622/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2022

I have had ET and taken hydrea for nearly 30 years now. I am currently 66...

https://connect.mayoclinic.org/comment/194374/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2021

I am Jak2 and this was diagnosed after 2 mild strokes in which I experienced numbness...

https://connect.mayoclinic.org/comment/194334/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2019

Thank you for your quick response. Can you help me understand a bit more?--he said the...

https://connect.mayoclinic.org/comment/194309/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2019

Dear PinkFlamingo. So sorry you’re going through all of this at such a young age. I...

https://connect.mayoclinic.org/comment/836046/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

They have differentiated treatment for CALR's slightly, and I'm hoping that all of us who were...

https://connect.mayoclinic.org/comment/1313362/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 26 12:45pm

I believe PV can be managed without phlebotomies. I know this as I have had PV...

https://connect.mayoclinic.org/comment/1194508/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2024

When I first saw my heme doc little over a year ago, he said not to...

https://connect.mayoclinic.org/comment/1039829/

Discussion: Im 64 and my blood platelets have been in the low 530-550 range for yr

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2024