Blood Cancers & Disorders Support Group

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Comments (543)

Side effects are minimal and include fatigue, dry skin (my palms itch like crazy at times...

https://connect.mayoclinic.org/comment/1091143/

Discussion: Is anyone taking Ibrutinib (Imbruvica)?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024

Such a great topic information. I have only been on Hydroxyurea for 4 months and haven’t...

https://connect.mayoclinic.org/comment/1032699/

Discussion: Medical literature about hydroxyurea and skin cancer

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2024

I have PV with the JAK22 postive mutation. I Noticed over time that my Hemoglobin and...

https://connect.mayoclinic.org/comment/1402845/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2025

Not sure if this is still an active blog. I'm 23 years old and was diagnosed...

https://connect.mayoclinic.org/comment/52567/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2018

Well Jackie, if you’ve ever read about me and my various post, I must have the...

https://connect.mayoclinic.org/comment/728920/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2022

I use Eucerin or similar creams. Heavily oat them at night and wear cotton socks. I...

https://connect.mayoclinic.org/comment/146322/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2021

Aloha! I am 73. diagnosed with ET JAK2 about 3 years ago. elevated plates to 707....

https://connect.mayoclinic.org/comment/1552304/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 6:29pm

I’m going on two years now on hydroxyurea (500mg) with pretty much no side effects except...

https://connect.mayoclinic.org/comment/940886/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2023

I developed a rash when I began taking 10 mgs Revlimid. It covered my arms and...

https://connect.mayoclinic.org/comment/1160031/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2024

Hi...my name is Claire and I have jak2 mutant. Diagnosed in November 1918 and was given...

https://connect.mayoclinic.org/comment/256905/

Discussion: Are you taking medication for JAK2? How does it affect you?

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2019

Hi, My local doctor told me to stop taking the Revlimid a week ago and I...

https://connect.mayoclinic.org/comment/1186032/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2024

@dewz13 You don't need to "hope." Let him know you are comfortable and would like having...

https://connect.mayoclinic.org/comment/1530701/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 19 11:46am

Hi Becky, I moved your message to this existing discussion about light-chain MGUS to this existing...

https://connect.mayoclinic.org/comment/731453/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2022

Good Morning. I itch intermittently all day. Scalp, hands, legs and feet. I was trying different...

https://connect.mayoclinic.org/comment/820598/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

I had long-term issues, too, that no one addressed. First, I had very low platelets (60-ish)...

https://connect.mayoclinic.org/comment/1473346/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Jan 3 7:15am

Posted by dmiles @dmiles, I have 9 rare disease (few since birth), I Just have symptoms...

https://connect.mayoclinic.org/comment/802779/

Discussion: Newly Diagnosed CLL Patients: Do you struggle with symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2023

I am so sorry for all your problems. But don't be devasated. It is a very...

https://connect.mayoclinic.org/comment/74585/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2018

I have been living with this condition now for over 10 years. It is progressively worse...

https://connect.mayoclinic.org/comment/1011986/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2024

Hi @caregiverx2. I know the stress level is high right now for both you and your...

https://connect.mayoclinic.org/comment/1117361/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 3, 2024

I was diagnosed with this a year ago, I kept getting merous ulcers on my legs...

https://connect.mayoclinic.org/comment/817362/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

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