Blood Cancers & Disorders Support Group | Page 25

@loribmt What is from your perspective the most common struggle of Et patients? Although the life...

https://connect.mayoclinic.org/comment/1489350/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 10:16am

I was under the impression that ET was not hereditary. I hope your dad was well...

https://connect.mayoclinic.org/comment/1228196/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2025

I figured you are not in the U.S. Besremi costs about $180k per year here, and...

https://connect.mayoclinic.org/comment/1225245/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2025

I was diagnosed with ET 2 years ago and was told that up until 10 years...

https://connect.mayoclinic.org/comment/1277512/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2025

@nohrt4me Right now it isn’t available for patients with ET only for those with PV nevertheless...

https://connect.mayoclinic.org/comment/1488706/

Discussion: New study: Early treatment with interferon can delay myelofibrosis

Support Group: Blood Cancers & Disorders

Posted: Jan 22 10:21am

The patient in the article cited did not have ET. There is nothing I see that...

https://connect.mayoclinic.org/comment/815610/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

I was recently diagnosed with ET... through blood work and a bone marrow biopsy. I am...

https://connect.mayoclinic.org/comment/1392341/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2025

I have ET triple negative. Taking Hydrae since January, 500mg every day and 500mg every second...

https://connect.mayoclinic.org/comment/1382359/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2025

So glad that you got some answers! Yes, ET-CALR is suspected to be a somewhat different...

https://connect.mayoclinic.org/comment/1364210/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2025

Hi circawdm, I would agree with what you said if one has ET. My O/H told...

https://connect.mayoclinic.org/comment/1316170/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 30, 2025

Thanks to you all for sharing. As you know, I’m looking at ET and vasovagal syncope,...

https://connect.mayoclinic.org/comment/257509/

Discussion: ET - Essential Thrombocythemia & Fainting

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2019

Hi @jodyjazz. Hydroxyurea (HU) has been a frontline treatment for ET for decades for millions of...

https://connect.mayoclinic.org/comment/1515285/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Feb 26 5:56pm

@dewz13 Yah, you don't have to hang around here very long to know that advice and...

https://connect.mayoclinic.org/comment/1531248/

Discussion: Hydroxyurea and any drug interactions?

Support Group: Blood Cancers & Disorders

Posted: Mar 20 9:18am

Thank you for your kind response. As my next appt is several weeks away, I was...

https://connect.mayoclinic.org/comment/960782/

Discussion: interactions between low-dose aspirin and other NSAIDs

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2023

I have a high count of 750 with JAK ET currently on Hydroxyurea for a month...

https://connect.mayoclinic.org/comment/669855/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2022

I have been seen at Mayo for ET with Dr Jeanne Palmer MD (hematologist oncologist). I...

https://connect.mayoclinic.org/comment/1385197/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2025

Hi @bshattuck138 It sounds like Becky has found the sweet spot of balance with the HU...

https://connect.mayoclinic.org/comment/1348045/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2025

Hello to you, with hugs. "Afraid and mad" is where this weird, weird diagnosis leaves us....

https://connect.mayoclinic.org/comment/1192063/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2024

It can be difficult to get a diagnosis. Have you been checked for narcolepsy? Did you...

https://connect.mayoclinic.org/comment/1522234/

Discussion: Elevated Platelet Count With Extreme Fatigue

Support Group: Blood Cancers & Disorders

Posted: Mar 8 8:20am

@ebertolis Bonjour, ebertolis! Staying active is a great idea. It is true, some people have difficulties...

https://connect.mayoclinic.org/comment/1499172/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Feb 6 5:39am