Blood Cancers & Disorders: Discussions | Page 24

There was a recent comment on paradox effect. Can't remember the focus. I have MDS/AML the...

https://connect.mayoclinic.org/comment/1243923/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 23 3:24pm

treehouse5437 Reading your post i wondered if you are at the very start of treatment or...

https://connect.mayoclinic.org/comment/1244913/

Discussion: Do you Tell Family, Friends & Co Workers about your Cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 24 7:23pm

I’m not a geneticist so I’m limiting my comments accordingly. The ASXL1 mutation appears in many...

https://connect.mayoclinic.org/comment/329373/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2020

I expect your sister is feeling a little more perky tonight after her transfusion today. I’m...

https://connect.mayoclinic.org/comment/1120359/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2024

The visit went kindof as he alluded to on the phone during the week. I have...

https://connect.mayoclinic.org/comment/1368928/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 12 9:31am

Happy Birthday to you too, @janetlen. We’re both Classy Chassis, eh? 😉 Not sure I’m in...

https://connect.mayoclinic.org/comment/986993/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2023

Hi Bonnie, I’m saddened that you have been diagnosed with MDS/MPN-RS-T. I remember my original diagnosis...

https://connect.mayoclinic.org/comment/970297/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2023

Thank you to all of you for your comments, suggestions (especially regarding attitude), and explanations. Although...

https://connect.mayoclinic.org/comment/928377/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

I am curious as well about the transplant. My husband has MDS (Myelodysplastic syndrome) another bone...

https://connect.mayoclinic.org/comment/771944/

Discussion: Anyone have bone marrow transplant for aplastic anemia?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 11, 2022

Hi, ı am a patient who does have a MF/MDS overlap with JAk2 and SBF31 mutations,...

https://connect.mayoclinic.org/comment/328555/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2020

Good evening I was diagnosed with primary myelofibrosis about a month ago. The bone marrow biopsy...

https://connect.mayoclinic.org/comment/1338019/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 29 5:32pm

Hi Lori, I didn’t want to post this in the other chat, but my brother who...

https://connect.mayoclinic.org/comment/1117789/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2024

The Bone Marrow procedure is a first step. He should also do a molecular panel to...

https://connect.mayoclinic.org/comment/328572/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2020

It’s important to have a list of questions for your hematologist next week regarding Vidaza, the...

https://connect.mayoclinic.org/comment/1399577/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: 4 hours ago

@donnamae90 Fatigue is a problem with MDS. I too live alone. I have accepted that I...

https://connect.mayoclinic.org/comment/1193426/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Hi, I hope you don’t mind me commenting but I just had to share that my...

https://connect.mayoclinic.org/comment/1080466/

Discussion: Have you been able to reverse Anemia of Chronic Disease (ACD)?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

Hi @marco88. I read through your replies in a few other posts this morning to see...

https://connect.mayoclinic.org/comment/1199389/

Discussion: What's the danger in longterm use of filgrastim (Neupogen)?

Support Group: Cancer

Posted: Dec 29, 2024

huron Have you entered either of these 2 cancers above in the search. There are many...

https://connect.mayoclinic.org/comment/1276353/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 7 10:48am

I have MDS and have been on Vidaza for 3 years, (36 cycles) 5 days every...

https://connect.mayoclinic.org/comment/1302372/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: May 12 9:44am

I too have MDS. Mainly my red blood cells are affected but he does watch my...

https://connect.mayoclinic.org/comment/801152/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

Blood Cancers & Disorders Support Group