Blood Cancers & Disorders Support Group

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Comments (1,035)

Diagnosed with "MDS" Aug of 2024...I have been getting the Retacrit injection weekly to generate more...

https://connect.mayoclinic.org/comment/1176999/

Discussion: Retacrit + Venofer for B-thalassemia

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

She is healing well. Still has balance and vision issues but she is functional. I have...

https://connect.mayoclinic.org/comment/1195416/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

I agree with this prognosis....my MDS is in remission of AML with no blasts. After 8...

https://connect.mayoclinic.org/comment/1171862/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2024

I have had MDS for 31/2 years. On vidaza for the same time. Leukemia cells in...

https://connect.mayoclinic.org/comment/951872/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2023

I think it is very individual. I was having IvIg (for another reason) at least a...

https://connect.mayoclinic.org/comment/1394790/

Discussion: Family member newly diagnosed with MDS

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2025

@lindamarf, I hope you saw the helpful reply from @marco88 (Lee) about transfusion and risk of...

https://connect.mayoclinic.org/comment/1231549/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2025

@ikampel2 managing a chronic illness is challenging enough, but to be without support from friends and...

https://connect.mayoclinic.org/comment/94438/

Discussion: I have Myelodysplastic Syndrome (MDS) spawned from ITP

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2016

My husband has MDS, been tired for a long time. He just stated his Arenesp shots...

https://connect.mayoclinic.org/comment/1193392/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Thank you for this story of good outcomes and hope! You are back at work 63...

https://connect.mayoclinic.org/comment/1085668/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 12, 2024

Hi! I am impressed you have been on "Watch and Wait" for so many years. Revlamid...

https://connect.mayoclinic.org/comment/1080342/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

I’m interested in this topic I know little about. I do have smoldering multiple myeloma and...

https://connect.mayoclinic.org/comment/1468048/

Discussion: Anyone have idiopathic pancytopenia?

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2025

Hello, @daleanddonna. I can’t help but think, Team Dean and Donna…united in this major life challenge...

https://connect.mayoclinic.org/comment/1294750/

Discussion: Newly diagnosed with AML (FTL3 TKD)

Support Group: Blood Cancers & Disorders

Posted: May 2, 2025

My MDS-CMML-1 will be five years in July 2025. I see my oncologist every 90 days...

https://connect.mayoclinic.org/comment/1242288/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2025

Hi All, My Mother (77yr old) has had MDS for a few years now, I found...

https://connect.mayoclinic.org/comment/1170127/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2024

Hello @bradmm, I am not a medical professional, but the listed symptoms of MDS include: -...

https://connect.mayoclinic.org/comment/253113/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2019

@loribmt Thank you for your reply! I was diagnosed last July with MDS with 5q deletion...

https://connect.mayoclinic.org/comment/1550171/

Discussion: Just got my blood test results today. I have MDS

Support Group: Blood Cancers & Disorders

Posted: Apr 14 7:49am

My husband has MDS and he would itch so bad he would leave his skin bruised....

https://connect.mayoclinic.org/comment/1040351/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2024

I have had MDS low risk for for 7 years on a watch and see. It’s...

https://connect.mayoclinic.org/comment/821161/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2023

I have MDS and am recently been dealing with low platelets I have been in search...

https://connect.mayoclinic.org/comment/1268659/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2025

I have a diagnosis of MDS/MPN- RARS-T. My platelets have been too high. When I began...

https://connect.mayoclinic.org/comment/1183829/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2024