Blood Cancers & Disorders Support Group

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Comments (1,103)

Hello when I began taking 7X a week I had tooth pain and extreme sensitivity to...

https://connect.mayoclinic.org/comment/1081088/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2024

hey . i am abiha 18 years old diagnosed by ET with JAK2 mutation and have...

https://connect.mayoclinic.org/comment/758131/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2022

Hello, I have been diagnosed with chronic anemia and polycythemia secondary. I’ve had elevated WBC, RBC,...

https://connect.mayoclinic.org/comment/740542/

Discussion: Is Idiopathic Erythrocytosis (Polycythemia) cancer?

Support Group: Blood Cancers & Disorders

Posted: Aug 22, 2022

Hello @kimmermat, welcome to Connect. You may notice I moved your discussion and combined it with...

https://connect.mayoclinic.org/comment/194327/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2019

My wife just tested positive for JAK2 on Dec 15th, after blood work on Dec 8th...

https://connect.mayoclinic.org/comment/994115/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024

Hello and thank you very much for responding and for all of the useful articles and...

https://connect.mayoclinic.org/comment/820592/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

Hi Justin. Thank you so much! And thanks to the hematologist/oncologist for the information. This was...

https://connect.mayoclinic.org/comment/284538/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2020

@gjb1 - My EPO is high as well. In my case the high EPO makes sense,...

https://connect.mayoclinic.org/comment/231784/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2019

I do have a question. I was just diagnosed with JAK2 ET. Platelets at 790 and...

https://connect.mayoclinic.org/comment/1298528/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: May 6 7:15pm

Good morning, @irishgoff82. It’s always so jarring when we get news about our health that we...

https://connect.mayoclinic.org/comment/1195805/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2024

Welcome to Connect, Jean! As you’ve discovered, there are a number of members in the forum...

https://connect.mayoclinic.org/comment/1039680/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2024

Hi @taisaint, All of this information can be found in National Institute of Health, Pub Med...

https://connect.mayoclinic.org/comment/1023272/

Discussion: Contolling Hydroxyurea fatigue by time of day you take the medication

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2024

Sorry for rambling, but by sharing my experience I hope to provide some insight and respond...

https://connect.mayoclinic.org/comment/684686/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2022

I understand how the word "cancer" can strike fear in your heart. When I first heard,...

https://connect.mayoclinic.org/comment/1229409/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 4 1:25pm

Well, MPNs are indeed blood cancers, and the JAK2-driver is associated with one of the MPNs,...

https://connect.mayoclinic.org/comment/1228377/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 3 8:38am

I take Desloratadine, an antihistamine for the itching and it works great. For dry skin on...

https://connect.mayoclinic.org/comment/1205154/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 6 9:14am

Patty, when my platelet count rose slowly & steadily over several years I was very worried...

https://connect.mayoclinic.org/comment/1063989/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2024

Welcome @jak2mpnpositive, allow me to tag other members like @claire39 @bluegrasspv2018 @jam5 @dwlowrance @levieta @lzimmerman @mpt77...

https://connect.mayoclinic.org/comment/686214/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2022

Your "acceptable" number may vary depending on age, clot history, and driver mutation. If you are...

https://connect.mayoclinic.org/comment/1134086/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2024

Hi there I'm Jola 67 I have just been diagnosed with ET JAK2 have just started...

https://connect.mayoclinic.org/comment/887506/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2023