Blood Cancers & Disorders Support Group

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Comments (1,382)

I'm 80 with 5 mutated chromosome s. Diagnosed initially with JAK2 rhen Runx1 etc. MDS/AML ....

https://connect.mayoclinic.org/comment/1260920/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2025

Hi Barbie 75....I also have jak2 and take 500mg Hyderabad six days a week. I still...

https://connect.mayoclinic.org/comment/194338/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2019

My tests (done a year ago) came back positive for JAK2 V617F. I take a baby...

https://connect.mayoclinic.org/comment/1024971/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 29, 2024

I also have JAK2. I was told that I could live a normal life. I have...

https://connect.mayoclinic.org/comment/956978/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Oct 31, 2023

Agreed! I found out last fall that I have ET and the Jak2 mutation. BMB was...

https://connect.mayoclinic.org/comment/840900/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

I was diagnosed with ET Jak2 in November 2022. I am on 1000mg Hydroxuria per day,...

https://connect.mayoclinic.org/comment/1516923/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 1 6:47am

Some people are just advised to take a low dose aspirin for protection against clots. Great...

https://connect.mayoclinic.org/comment/773808/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2022

Hi @mgrimes5, I's like to welcome you to Mayo Clinic Connect. You came to the right...

https://connect.mayoclinic.org/comment/325699/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Oct 22, 2020

Thank you for info. My son does have a hematologist and has been checked for Jak2....

https://connect.mayoclinic.org/comment/252018/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2019

It seems that different people need different doses. What you're doing is working for you --...

https://connect.mayoclinic.org/comment/1047264/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2024

My daughter was recently diagnosed with JAK2. She has had two iron treatments and has another...

https://connect.mayoclinic.org/comment/328577/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2021

I was misdiagnosed at the VA Hospital with ET in December of 2018. Didn't believe a...

https://connect.mayoclinic.org/comment/57939/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2020

@daelitesmom I have ET with the JAK2 mutation and suffered from monthly migraines after having them...

https://connect.mayoclinic.org/comment/1474859/

Discussion: CALR exon 9 mutation w/translocation of chromosomes 10 &13

Support Group: Blood Cancers & Disorders

Posted: Jan 5 7:46am

When I first heard I had polycythemia Vera JAK 2 positive (Im sure everyone knows you...

https://connect.mayoclinic.org/comment/1455166/

Discussion: Polycythemia vera (PV): Does altitude matter?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2025

Hi @taisaint, You’re absolutely in the right section…no worries. ☺️. You have a great daughter who...

https://connect.mayoclinic.org/comment/968475/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2023

Welcome to the club. Almost 71 yo woman w/ET a few months now. Platelets are in...

https://connect.mayoclinic.org/comment/848468/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

Most on this site say that they are prescribed baby aspirin along with HU. I was...

https://connect.mayoclinic.org/comment/837314/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2023

I was diagnosed with Jak2 in 2019 and have been taking the hydra drug and I...

https://connect.mayoclinic.org/comment/194372/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2021

@lea123. I also was told ET JAK2 on first diagnosis in 2023. But after 2 years...

https://connect.mayoclinic.org/comment/1446948/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2025

ET stands for Essential Thrombocytosis. , I have this also and with a JAK2 mutation. If...

https://connect.mayoclinic.org/comment/919462/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2023