Blood Cancers & Disorders Support Group

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Comments (916)

@lcal12 Welcome to Mayo Clinic Connect. I am a multiple myeloma patient, under treatment since August...

https://connect.mayoclinic.org/comment/1435234/

Discussion: Are any of you Multiple Myeloma patients post kidney transplant?

Support Group: Transplants

Posted: Nov 10, 2025

My husband was recently diagnosed on May with Cardiac Amyloidosis in Mayo Clinic-Jacksonville FL His Kappa/Lambda,...

https://connect.mayoclinic.org/comment/898854/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

Welcome, Dianne! I don’t have much I can add to what Ginger shared. I think after...

https://connect.mayoclinic.org/comment/842935/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023

Good morning @dkandalec. Thank you for sharing your positive story with taking the Revlimid and steroids...

https://connect.mayoclinic.org/comment/754406/

Discussion: Myeloma: Revlimid and steroids: How quickly do side effects subside?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2022

First of all, your physicians are being cautious and checking everything! That’s good. The “normal” range...

https://connect.mayoclinic.org/comment/1062338/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

Here’s a study she references. I’ve pasted the conclusion part related to MM. My personal deduction...

https://connect.mayoclinic.org/comment/1312559/

Discussion: Can weight gain cause progression from MGUS to myeloma?

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

@tmcclint92 Is your doctor a hematologist oncologist? If not, can you be referred to one? I...

https://connect.mayoclinic.org/comment/1049629/

Discussion: How high should my Kappa light chain continue to rise before I worry.?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2024

I didn’t have any problems with side effects the entire time I was on it except...

https://connect.mayoclinic.org/comment/1407750/

Discussion: Anyone have experience with daratumumab (Darzalex) to treat Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2025

Hi my brother aged 38 was diagnosed of multiple myeloma in Jan 2022. He underwent a...

https://connect.mayoclinic.org/comment/1020408/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2024

@yusbe Hopefully there will be a treatment plan soon for your husband. There are medications which...

https://connect.mayoclinic.org/comment/845078/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

@nolarn Welcome to Mayo Clinic Connect! So many of us who are diagnosed with MGUS find...

https://connect.mayoclinic.org/comment/777355/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2022

I also have MGus. I have had this for at least 15 years, but was just...

https://connect.mayoclinic.org/comment/1427189/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Oct 30, 2025

Hi Gloria, Welcome to Connect! It’s very encouraging that you’re having success with your treatments for...

https://connect.mayoclinic.org/comment/1102104/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

The PET scan didn’t “light up” any place except in my hiatal hernia, which is good...

https://connect.mayoclinic.org/comment/1101072/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2024

Hello @greyhoundlady, Welcome to Mayo Clinic Connect. Thank you for sharing your neuropathy story in the...

https://connect.mayoclinic.org/comment/109775/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: May 12, 2020

I question putting off a bone marrow biopsy. My numbers have all been stable with no...

https://connect.mayoclinic.org/comment/1005714/

Discussion: How to know whether smoldering myeloma or multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2024

@janetlen I have been very fortunate, in my opinion. There have been no issues or concerns...

https://connect.mayoclinic.org/comment/1289998/

Discussion: Tests for blood cancer ...the bills!!

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2025

I have been diagnosed with MGUS for 8 to 10 years now, male age 77. Recently...

https://connect.mayoclinic.org/comment/1336383/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2025

@loribmt Thanks, Lori. Just had my first full dose yesterday; will share my experience with folks...

https://connect.mayoclinic.org/comment/1042514/

Discussion: Abnormal bloodwork questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2024

Welcome to Mayo Clinic Connect @f019521 As I was reading up on this Monoclonal Gammopathy of...

https://connect.mayoclinic.org/comment/789892/

Discussion: MGRS (monoclonal gammopathy of renal significance): Let's connect

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2022

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