Blood Cancers & Disorders Support Group

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Comments (1,382)

Same. Damn that JAK2 gene! I was happy to hear it’s not inherited so I didn’t...

https://connect.mayoclinic.org/comment/1100735/

Discussion: Contracting/developing polycythemia vera

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2024

https://www.mpnresearchfoundation.org/understanding-mpns/ The MPN Reasearch Foundation is a good information resource tostart with. Also try Googling Myeloproliferative...

https://connect.mayoclinic.org/comment/978550/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2023

My daughter was diagnosed wit JAK2 October 2020 She hasn’t had any clotting yet so praying...

https://connect.mayoclinic.org/comment/194377/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 10, 2021

@1995victoria, I added your question to both the Blood Cancer & Disorders support group as well...

https://connect.mayoclinic.org/comment/1417068/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 16, 2025

My hematologist just prescribed 500 mg of Hydrea every other day for me. My bone marrow...

https://connect.mayoclinic.org/comment/1305749/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 16, 2025

I have Polycythemia Vera with Jak2 an 76 years old and diagnosed 3 yrs ago. My...

https://connect.mayoclinic.org/comment/1222785/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2025

Hello Scott- My oncologist did the bone marrow procedure 3 years ago and confirmed the cause...

https://connect.mayoclinic.org/comment/652292/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2021

My official PV diagnosis came after blood tests confirmed by positive JAK2 result.. No bone marrow...

https://connect.mayoclinic.org/comment/894762/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

Does have tested positive for JAK2 mutation mean you have a MPN? Very confused. I was...

https://connect.mayoclinic.org/comment/763106/

Discussion: Polycythemia: Are you asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2022

Yes sorry :( My mom was jak2 positive - high hemoglobin and high hemacrit. The biopsy...

https://connect.mayoclinic.org/comment/1228461/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2025

Did you have a bone marrow test? I chose not to. My oncologist/ hematologist said PV...

https://connect.mayoclinic.org/comment/1163289/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2024

I, too, am interested in what feedback others have. My platelets are in the 500s and...

https://connect.mayoclinic.org/comment/941103/

Discussion: Worried about slightly elevated platelet count

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

I would also be interested in any connection. I have had CLL /SLL for some years,...

https://connect.mayoclinic.org/comment/1386257/

Discussion: PV and peripheral artery disease PAD

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2025

I forgot to mention that my Bone Marrow did show JAK2 mutation back in 2015. I...

https://connect.mayoclinic.org/comment/203953/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2019

Hello, I didn’t start on HD until mine hit 842. After 3 months I’m down to...

https://connect.mayoclinic.org/comment/1026054/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

I have seen two hematologists, both very good with evaluating and treating the ET, but have...

https://connect.mayoclinic.org/comment/831683/

Discussion: Essential Thrombocythemia, anemia and Celiac Disease, the Trifecta

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2023

I can understand the 2 words cancer and chemo are extremely scary. But with ET Jak2,...

https://connect.mayoclinic.org/comment/1091505/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

For what it’s worth, some docs call this a cancer while others say it’s a neoplasm....

https://connect.mayoclinic.org/comment/1061678/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 3, 2024

I have been taking Eliquis for AFib for several years. This was ordered by my cardiologist....

https://connect.mayoclinic.org/comment/811705/

Discussion: PV and atrial fibrillation

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2023

Hi donlynn, I moved your questions to this existing discussion on the same topic of JAK2...

https://connect.mayoclinic.org/comment/599836/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 6, 2021