Blood Cancers & Disorders Support Group

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Comments (1,030)

I have MDS and am anemic. I recently had an iron infusion as my doc thinks...

https://connect.mayoclinic.org/comment/1000790/

Discussion: Anyone take an iron supplement for low red blood cell count?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2024

I have been diagnosed with MDS and have seen a hematologist at the Mayo Clinic, Rochester,...

https://connect.mayoclinic.org/comment/1444310/

Discussion: 79 year old male with MDS: Worried about increasng fatigue

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2025

Hello @momz @nbadry @rrivory @honeymae. I know that you’ve all been diagnosed with a blood condition...

https://connect.mayoclinic.org/comment/925760/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2023

Went today (Monday) for my bi-monthly visit to my hematologist along with routine bloodwork. My platelets...

https://connect.mayoclinic.org/comment/1528442/

Discussion: MDS diagnosis with DDX41 Germline and Somatic

Support Group: Blood Cancers & Disorders

Posted: Mar 16 3:37pm

Hi @katanaguy, You’ve been through the wringer the past couple of months! With your very low...

https://connect.mayoclinic.org/comment/1177377/

Discussion: Retacrit + Venofer for B-thalassemia

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2024

Hi Brenda, I was very interested in your comments about your husband’s response to your MDS....

https://connect.mayoclinic.org/comment/961219/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2023

Hi @1pearl, There are a number of different blood conditions and cancers with subsets to each....

https://connect.mayoclinic.org/comment/1348374/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2025

My Neutrophil count was only half of the previous months count at 0.17. The doctor has...

https://connect.mayoclinic.org/comment/1230666/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2025

Thanks for sharing the positive experience. Can I ask what Mayo campus is he being treated...

https://connect.mayoclinic.org/comment/1180667/

Discussion: MDS in a 75 year old male

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2024

@gingerw I have MGUS since I had a broken hip and replacement last year. M spike...

https://connect.mayoclinic.org/comment/1505563/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 14 11:17am

Hi LindySue, individualized cancer treatments have come so far. What a relief that a bone biopsy...

https://connect.mayoclinic.org/comment/657566/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2021

Yes, I have MDS and I don’t always smell odd scents but occasionally I smell weird...

https://connect.mayoclinic.org/comment/1469182/

Discussion: Anyone with myeloma experience a change in their sense of smell?

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2025

Thank you so much for taking the time to share your experience with chelation for your...

https://connect.mayoclinic.org/comment/1397986/

Discussion: Chelation therapy

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2025

Hi. My husband was just diagnosed with MDS (and POEMS syndrome simultaneously - which is very...

https://connect.mayoclinic.org/comment/927224/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2023

Hi Sherri! It’s been a bit since we’ve chatted. I wanted to drop by this morning...

https://connect.mayoclinic.org/comment/1300929/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 10, 2025

I have MDS IB2. My blast count was 10% when diagnosed. After 3 rounds of vidaza...

https://connect.mayoclinic.org/comment/1273246/

Discussion: I'm about to begin treatments with Vidaza, what should I know?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2025

Good morning, Diane! You are literally just a couple days post BMT for MDS! So happy...

https://connect.mayoclinic.org/comment/1380410/

Discussion: My MDS does not respond to treatments. What's next?

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2025

My MDS was discovered in a bone marrow biopsy I had done last March. I was...

https://connect.mayoclinic.org/comment/1014274/

Discussion: Myelodysplastic Syndrome and Sjogren's

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2024

drawlings- Come back and post here their plan. Lori will let you know how it matches...

https://connect.mayoclinic.org/comment/1262245/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 19, 2025

Hi @statmatics The causes of Blood cancers and conditions can be difficult to pinpoint. Many are...

https://connect.mayoclinic.org/comment/1311763/

Discussion: What Caused MDS in My Case?

Support Group: Blood Cancers & Disorders

Posted: May 24, 2025