Blood Cancers & Disorders Support Group

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Comments (847)

Hi @janetlen, I just read your first post regarding your diagnosis with MDS this summer and...

https://connect.mayoclinic.org/comment/986040/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

Welcome to Connect, @vng. It’s wonderful that your husband is doing so well on Vidaza for...

https://connect.mayoclinic.org/comment/1398785/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: 1 day ago

I will be having a BMT in a few months for MDS. Is there any advice...

https://connect.mayoclinic.org/comment/1001115/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 21, 2024

I also have MDS/MPN with RS and T. My platelets shot up to 1,100 in March....

https://connect.mayoclinic.org/comment/863279/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 20, 2023

Where do you get your energy? 😅 Working with 3-5 year olds would drain me completely...

https://connect.mayoclinic.org/comment/1259235/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 16 8:48am

Good morning, @kgerbitz Myelodyplastic syndrome is a group of blood disorders that can occur when the...

https://connect.mayoclinic.org/comment/856307/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

Diagnosed in may 2023 with MDS/AML blasts of 26% forced me into hospital for first treatment...

https://connect.mayoclinic.org/comment/1206679/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Jan 8 10:12am

Welcome to Connect, @cancerwarrior. There are quite a few conversations in the forum for situations just...

https://connect.mayoclinic.org/comment/1015517/

Discussion: Myelodysplastic Syndrome and Sjogren's

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2024

Thanks @katgob. The second link article does show a strong connection between anemia and cognitive decline....

https://connect.mayoclinic.org/comment/1202026/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jan 1 8:16pm

My mom is soon to be 88 with MDS, diagnosed 5-6 months ago… she is choosing...

https://connect.mayoclinic.org/comment/1266406/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 25 10:14am

Hi sue, Thankyou for your reply. I have had MDS for about 18 months, my specialist...

https://connect.mayoclinic.org/comment/755789/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2022

I had a platelet count of 847,000 a d was told I had ET and was...

https://connect.mayoclinic.org/comment/252023/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2019

@shels93, You’re most certainly not a hypochondriac. You saw the urgency in your husband’s condition and...

https://connect.mayoclinic.org/comment/758623/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2022

Hi I am new to this site, but I was diagnosed with MDS, specifically RARS in...

https://connect.mayoclinic.org/comment/253117/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2019

I have mds... leukocytosis and have been taking ydroxyurea since sept.of 2003 to keep my white...

https://connect.mayoclinic.org/comment/50501/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2011

I was misdiagnosed at the VA Hospital on Long Island with ET in early 2018. I...

https://connect.mayoclinic.org/comment/865740/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

Howard, Inqovi is a relatively new drug on the market for a few years, targeted for...

https://connect.mayoclinic.org/comment/829780/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2023

My husband had low white counts since 2017 and we had no idea about MGUS and...

https://connect.mayoclinic.org/comment/962551/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

I too believe toxic exposure in the military leads to some of the blood cancers. I...

https://connect.mayoclinic.org/comment/1100958/

Discussion: Contracting/developing polycythemia vera

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2024

I've had similar success with my MDS and MF. After years of decline I had a...

https://connect.mayoclinic.org/comment/1032154/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2024