Blood Cancers & Disorders Support Group

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Comments (1,103)

Hi, I have t seen anyone on this site mention a repeat JAK2 test. I think...

https://connect.mayoclinic.org/comment/900589/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2023

@margrethe Wow your numbers aren’t that high so I will think positively that you wind up...

https://connect.mayoclinic.org/comment/873147/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

Well, I think I fall into the high risk category, as I'm older than 60, have...

https://connect.mayoclinic.org/comment/782573/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Thanks for the question. If the diagnosis is clear without punching around in the marrow, the...

https://connect.mayoclinic.org/comment/593688/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2021

really, no one wants plts with JAK2..and they rebuild so fast, it doesn't really help to...

https://connect.mayoclinic.org/comment/1047269/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2024

Erikaerika, I just looked at NIH.gov and as of 2020 the median survival age of people...

https://connect.mayoclinic.org/comment/799775/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

Hi, I was do with ET 3 years ago, + JAK2 via BM bx. I am...

https://connect.mayoclinic.org/comment/855293/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2023

MJPM- Many thanks for your epistle and distinct definitions. I have suffered from ET for about...

https://connect.mayoclinic.org/comment/328599/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

So glad to hear you are not having symptoms and it has not morphed into leukemia....

https://connect.mayoclinic.org/comment/203949/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2019

Welcome to Connect, @eferret. Polycythemia vera is from a group of blood conditions called myeloproliferative neoplasms....

https://connect.mayoclinic.org/comment/1125122/

Discussion: How much of a risk factor is high white blood cell count with pv?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2024

A year and a half ago, I presented a hemoglobin of 7g with no evidence of...

https://connect.mayoclinic.org/comment/915865/

Discussion: Iron deficiency anemia without an apparent cause

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2023

Hi @casevin7 JAK2 is an acquired mutation so it is possible to develop it in the...

https://connect.mayoclinic.org/comment/870437/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Remember to breathe and stay connected to others on this site more than searching the internet...

https://connect.mayoclinic.org/comment/1162735/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

A hematologist should follow IPSET guidelines for ET clot prevention: JAK2+ and over 60 = platelet...

https://connect.mayoclinic.org/comment/796537/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2023

@apr931 Hi there! I wanted to chime in on your question regarding the number 32. I...

https://connect.mayoclinic.org/comment/231785/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2019

When I first started with ET JAK2 in 2022 I was given 500 mg HU daily....

https://connect.mayoclinic.org/comment/1180620/

Discussion: Lightheadedness, Brain fog, Itchy: Side effects of HU or ET itself?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2024

I was diagnosed in Jan 2023 with PV I was 56 and no health issues or...

https://connect.mayoclinic.org/comment/1073615/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 24, 2024

now into my 4th year of HU for ET Jak2. My platelets rose for 3 years...

https://connect.mayoclinic.org/comment/1044045/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2024

Good Morning. I have the Jak2 mutation and diagnosed with ET. I have been on Hydroxyuria...

https://connect.mayoclinic.org/comment/856246/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

I was diagnosed just about a year ago with PV. Been on Hydrea since May. My...

https://connect.mayoclinic.org/comment/842778/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023