Blood Cancers & Disorders: Discussions | Page 22

I am 77 and was recently diagnosed with JAK2 ET in September of this year and...

https://connect.mayoclinic.org/comment/777821/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2022

I didn't like varying my HU dosage from 500mgs to 1000mgs from day to day; I...

https://connect.mayoclinic.org/comment/1148733/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 28 12:31pm

Sorry for rambling, but by sharing my experience I hope to provide some insight and respond...

https://connect.mayoclinic.org/comment/684686/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2022

I think in the United States some insurance companies make you do step therapy…hydroxyurea first before...

https://connect.mayoclinic.org/comment/790422/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2022

@ettap , Great comment. Most importantly, because it pertains to me, as well!(!) Anyway, I have...

https://connect.mayoclinic.org/comment/652790/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2021

When they do the bone marrow (BM) procedure they should do a molecular panel which looks...

https://connect.mayoclinic.org/comment/328591/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

Thank you for responding…after about a month of fighting with h the insurance company to approve...

https://connect.mayoclinic.org/comment/886301/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

Hi there I'm Jola 67 I have just been diagnosed with ET JAK2 have just started...

https://connect.mayoclinic.org/comment/887506/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2023

I am suspecting I'll be soon officially diagnosed with PV. I'm JAK2 and blood numbers trending...

https://connect.mayoclinic.org/comment/193900/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2019

Your "acceptable" number may vary depending on age, clot history, and driver mutation. If you are...

https://connect.mayoclinic.org/comment/1134086/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Aug 31 5:00pm

Hi @remo1110 Blood conditions and blood cancers can be confusing. You’ve been diagnosed with Essential Thrombocytosis...

https://connect.mayoclinic.org/comment/980332/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2023

I was just diagnosed two weeks ago. Am 46 years old. Jak2 positive. Have just started...

https://connect.mayoclinic.org/comment/999753/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Jan 18 8:17pm

Hello everyone! I was diagnosed 3 months ago with pv and secondary eryth(not sure how to...

https://connect.mayoclinic.org/comment/795080/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2023

My husband was diagnosed at 69, a year ago, with Primary Myelofibrosis including Jak2 mutation. A...

https://connect.mayoclinic.org/comment/693147/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2022

I was diagnosed low risk MDS two years ago. My platelets have been steadily rising since...

https://connect.mayoclinic.org/comment/827434/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

Hi Mortysdad… I am very interested in your progress with Pegasys for ET JAK2. I was...

https://connect.mayoclinic.org/comment/807054/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

The meds will work but takes a while to get the dosage correct. My platelets were...

https://connect.mayoclinic.org/comment/1064057/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: May 8 6:39am

I am so grateful for all the information I have received from the members of this...

https://connect.mayoclinic.org/comment/1097432/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jul 1 10:35am

There are foods which can help raise platelets. But when you have a JAK2 mutation, that...

https://connect.mayoclinic.org/comment/1083483/

Discussion: Which specific kind of doctor looks into thrombocytopenia?

Support Group: Blood Cancers & Disorders

Posted: Jun 9 9:37am

Do you know if you have any acquired gene mutations that have caused you to have...

https://connect.mayoclinic.org/comment/1091461/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 22 2:42am

Blood Cancers & Disorders Support Group