Blood Cancers & Disorders Support Group

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Comments (1,386)

Hi - My name is Ginger - I am 77 and was recently diagnosed with ET...

https://connect.mayoclinic.org/comment/778995/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2022

Hi, my Mom was diagnosed with Polycythemia Vera after her labs went crazy. They did not...

https://connect.mayoclinic.org/comment/718613/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2022

@jewelfaux and @nypara66, You’re both correct. It is possible to determine if a patient has the...

https://connect.mayoclinic.org/comment/1023538/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2024

Thank you for the responses. My doctor at Kaiser ordered the JAK2 test, but I freaked...

https://connect.mayoclinic.org/comment/941863/

Discussion: Worried about slightly elevated platelet count

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2023

Hi! Welcome to the group! I also have ET with positive JAK2. When I was first...

https://connect.mayoclinic.org/comment/1490356/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 25 1:30pm

Hi @jeanette1954 A diagnosis of Polycythemia Vera (PV) usually indicates that the person has an underlying...

https://connect.mayoclinic.org/comment/1494793/

Discussion: 71 year old female diagnosed 6 month ago with PV

Support Group: Blood Cancers & Disorders

Posted: Jan 31 9:33am

The International Myeloma Foundation is at myeloma.org. Your link took me to the International Monetary Fund....

https://connect.mayoclinic.org/comment/740005/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2022

@1995victoria The Cancer Genome Atlas program (TCGA) was a multi center project to sequence the DNA...

https://connect.mayoclinic.org/comment/1419868/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 20, 2025

Hi @shree, I know you are concerned that most of the discussions you’ve found on ET...

https://connect.mayoclinic.org/comment/1269512/

Discussion: Up to date info

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2025

I have had ET, JAK2 positive, for 12 years. Received no treatment until 20 months ago...

https://connect.mayoclinic.org/comment/997147/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2024

I have had CLL/SLL for many years and have not had much treatment, but have found...

https://connect.mayoclinic.org/comment/908921/

Discussion: Had CLL for about 2 years, Dr is now thinking of treatment

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2023

Welcome @zinsam, I moved your message to this existing discussion about thrombocythemia so you can connect...

https://connect.mayoclinic.org/comment/893506/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Actually my Dr just ordered the EPO bloodwork for me. I have MDS/MPN-RS-T with jak2 mutation....

https://connect.mayoclinic.org/comment/595082/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2021

I'm 19 years old, male. I have noted my elevated Hb level since three years ago,...

https://connect.mayoclinic.org/comment/1008041/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2024

Good morning! Having never heard of Ozone Therapy and having PV/JAK2 and taking 1000 mg of...

https://connect.mayoclinic.org/comment/1353881/

Discussion: Polycythemia: Are you asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2025

@loribmt Yes, that makes total sense. I'm interested in exploring what that familial lineage is, which...

https://connect.mayoclinic.org/comment/1272673/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2025

https://www.mpnresearchfoundation.org/understanding-mpns/ The MPN Reasearch Foundation is a good information resource tostart with. Also try Googling Myeloproliferative...

https://connect.mayoclinic.org/comment/978550/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2023

My daughter was diagnosed wit JAK2 October 2020 She hasn’t had any clotting yet so praying...

https://connect.mayoclinic.org/comment/194377/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 10, 2021

@1995victoria, I added your question to both the Blood Cancer & Disorders support group as well...

https://connect.mayoclinic.org/comment/1417068/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 16, 2025

My hematologist just prescribed 500 mg of Hydrea every other day for me. My bone marrow...

https://connect.mayoclinic.org/comment/1305749/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 16, 2025