Blood Cancers & Disorders Support Group

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Comments (867)

@mattymatilda I think that’s because there are several variables involved. It’s not a static number. I...

https://connect.mayoclinic.org/comment/1118802/

Discussion: Stopping Myeloma at the MGUS Stage

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2024

I’m interested in this topic I know little about. I do have smoldering multiple myeloma and...

https://connect.mayoclinic.org/comment/1468048/

Discussion: Anyone have idiopathic pancytopenia?

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2025

@allu First, welcome to Mayo Clinic Connect. It certainly can be overwhelming to receive a diagnosis...

https://connect.mayoclinic.org/comment/698681/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2022

@mitten Good afternoon, and welcome to Mayo Clinic Connect! I'm glad you found us, and look...

https://connect.mayoclinic.org/comment/695399/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2022

I found this 5 minute video worth the time. Quote: "Just because something is natural and...

https://connect.mayoclinic.org/comment/848523/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

@deborahjb Any of the three places you mentioned are stellar. Personally, I am not a Mayo...

https://connect.mayoclinic.org/comment/836432/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

Helchen, I hope you can first recognize your testing as positive opportunity with caring professionals. Second,...

https://connect.mayoclinic.org/comment/172467/

Discussion: Waiting on Multiple Myeloma testing

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2019

Thank you so much! We are quite similar with history of autoimmune disease. My GfR varies...

https://connect.mayoclinic.org/comment/1188612/

Discussion: I have polycythemia: Your thoughts on new test results?

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2024

@sunsetchris As @pmm Patty mentioned, MGUS usually is asymptomatic, so our doctors take a more laid...

https://connect.mayoclinic.org/comment/1224083/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2025

@brushanson Hi Bruce! The information you received from your doctor is spot-on. With any blood cancer...

https://connect.mayoclinic.org/comment/1473020/

Discussion: A Summary of My Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Jan 2 3:23pm

Most MGUS' do not progress any further. Some, of course, do to Smoldering (Asymetric) Myeloma (SM)...

https://connect.mayoclinic.org/comment/1170956/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2024

@shorelady Welcome to Mayo Clinic Connect. I see you have been here a few months and...

https://connect.mayoclinic.org/comment/807058/

Discussion: Amyloidisis of the mouth and myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

@jrsav So, I'll say "thank you" in lieu of a picture! I have been on a...

https://connect.mayoclinic.org/comment/954992/

Discussion: Revlimid and colonoscopy.

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2023

@jeannie215 hi Jeannie, welcome to the forum. Even though they tell you that MGUS is low...

https://connect.mayoclinic.org/comment/1008265/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2024

Thank you- much appreciated. I have some bone pain, but nothing to scream about. Multiple myeloma...

https://connect.mayoclinic.org/comment/728026/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2022

Hi Gmill, Sorry to hear about your problems post the bone marrow biopsy. I’ve had 3...

https://connect.mayoclinic.org/comment/325262/

Discussion: Bone Marrow Aspiration - Long Term Pain Expecations

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2020

Good morning I am new to this but share much frustration. I have recently got blood...

https://connect.mayoclinic.org/comment/987128/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2023

Don't fixate too much on this at this point. I went to neurologist for tingling toes....

https://connect.mayoclinic.org/comment/898502/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2023

Don't forget to ask the doctor about whether simple measures could help. We dealt with DVTs...

https://connect.mayoclinic.org/comment/975089/

Discussion: Superficial blood clots, what do I need to know?

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2023

I don’t have answers, just prayers. But I do have experience with my husband and compression...

https://connect.mayoclinic.org/comment/264600/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2019