Blood Cancers & Disorders Support Group

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Comments (915)

I too had a recent lab test which revealed an elevated light chain issue, and the...

https://connect.mayoclinic.org/comment/830335/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2023

There are numerous blood and urine tests which will be done to diagnose Multiple Myeloma. There...

https://connect.mayoclinic.org/comment/811299/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2023

Hi my brother was diagnosed of MM Jan 2022.He is 37. He underwent 4 cycles of...

https://connect.mayoclinic.org/comment/805718/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2023

Hi everybody. Recently dx’d with MGUS. My hematologist did not mention diet. M protein in blood...

https://connect.mayoclinic.org/comment/658697/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2021

I was diagnosed with multiple myeloma in March 2025. I've undergone 5 sessions of radiation and...

https://connect.mayoclinic.org/comment/1456437/

Discussion: Anyone had cataract surgery living with MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2025

Welcome to Connect @ozys. You'll notice that I moved your message to this forum where other...

https://connect.mayoclinic.org/comment/109631/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2016

@angiew Welcome to the Mayo Clinic Connect. You’ve had a lot to deal with health-wise. It’s...

https://connect.mayoclinic.org/comment/1053687/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2024

@tristram A very common side effect of Revlimid is indeed the rash. I have been on...

https://connect.mayoclinic.org/comment/925412/

Discussion: Drug Options when Revlimid causes a rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 6, 2023

Good morning. It’s a relief to hear your husband is improving with his treatment. I know...

https://connect.mayoclinic.org/comment/873338/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2023

@rhunt47, I'm tagging a few members who have experience with cardiac amyloidosis like @mookiencoco @judithh580 @naiviv...

https://connect.mayoclinic.org/comment/1478473/

Discussion: Cardiac Amyloidosis Anyone else diagnosed with this disease?

Support Group: Heart & Blood Health

Posted: Jan 9 8:22pm

Welcome to Connect, @wefarm2. Thank you for sharing your challenging story about your two transplants. Multiple...

https://connect.mayoclinic.org/comment/1127542/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 20, 2024

@mitten People can go for many years with MGUS. While the monitoring can be a chore,...

https://connect.mayoclinic.org/comment/728064/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2022

My husband has Multiple Myeloma (in remission) and Myelodysplastic Syndrome which he is under going current...

https://connect.mayoclinic.org/comment/325268/

Discussion: Bone Marrow Aspiration - Long Term Pain Expecations

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2020

I agree. I am going in for first appointment with oncology because my rheumatologist noticed higher...

https://connect.mayoclinic.org/comment/1106062/

Discussion: Stopping Myeloma at the MGUS Stage

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2024

Hi MZ- I would most definitely get a second opinion. My husband's brother has multiple myeloma,...

https://connect.mayoclinic.org/comment/109714/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2019

Welcome to Connect @eldernan76. It’s understandable to be overwhelmed when you get a new diagnosis. Most...

https://connect.mayoclinic.org/comment/965171/

Discussion: High risk smoldering myeloma protocol after 24 cycles of Revlimid?

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2023

I found this 5 minute video worth the time. Quote: "Just because something is natural and...

https://connect.mayoclinic.org/comment/848523/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

@allu First, welcome to Mayo Clinic Connect. It certainly can be overwhelming to receive a diagnosis...

https://connect.mayoclinic.org/comment/698681/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2022

@mitten Good afternoon, and welcome to Mayo Clinic Connect! I'm glad you found us, and look...

https://connect.mayoclinic.org/comment/695399/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2022

@mattymatilda I think that’s because there are several variables involved. It’s not a static number. I...

https://connect.mayoclinic.org/comment/1118802/

Discussion: Stopping Myeloma at the MGUS Stage

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2024