Blood Cancers & Disorders Support Group

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Comments (525)

Agree regarding the itching - tops of hands, chest, back (where I cannot reach!), and arms....

https://connect.mayoclinic.org/comment/1316060/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 29, 2025

Hello, I am new here but wanted to ask a few questions. I am waiting on...

https://connect.mayoclinic.org/comment/1276146/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2025

Lori: My reply was somewhat in jest, but not entirely. But, yes, for several years I...

https://connect.mayoclinic.org/comment/1081863/

Discussion: Why doesn't a Mayo Wellness Checkup Include a Blood Test?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2024

I have diagnosis found during normal blood screen prior to procedure. Seen two hematologist both specialist...

https://connect.mayoclinic.org/comment/912113/

Discussion: Male 65 year old farmer with thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

I have PV JAK2 diagnosis in fact I changed hematologists and the second Hematologist asked if...

https://connect.mayoclinic.org/comment/1095124/

Discussion: I was diagnosed with Polycythemia vera last Sept. Is pain normal?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2024

Good evening. Welcome to Connect and Happy New Year. When I read your very recent post...

https://connect.mayoclinic.org/comment/991075/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Jan 3, 2024

I am 59, male, oficially diagnosed with PV w/Jak2 November 2024. Phlebotomies every week until I...

https://connect.mayoclinic.org/comment/1464522/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

@vivoconte It amazes me far reaching this disease can occur. I am glad you connected with...

https://connect.mayoclinic.org/comment/1414942/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2025

dodgegirl2 First time for me to post on here. Like many of you, we have multiple...

https://connect.mayoclinic.org/comment/1102565/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

I find your post interesting because back in 2019 when I first discovered something was wrong...

https://connect.mayoclinic.org/comment/738066/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2022

So sorry you are dealing with this. It is overwhelming. I can relate. In January, was...

https://connect.mayoclinic.org/comment/1520149/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 5 9:18am

I have MDS and before I was diagnosed I started having joint pain, Ankle, hip, knees...

https://connect.mayoclinic.org/comment/1598057/

Discussion: How can I tell what is causing joint pain? Age, HU, ET?

Support Group: Blood Cancers & Disorders

Posted: Jun 14 4:56pm

Newly diagnosed with PV JAK2 mutation 12/12/25. Started hydrea that day and stopped 1/29/2026. My labs...

https://connect.mayoclinic.org/comment/1604627/

Discussion: Hydroxyurea: what side effects were so bad you had to stop taking it?

Support Group: Blood Cancers & Disorders

Posted: Jun 23 12:06pm

Hi Judy! Your research touched on a topic that bothered me from the get-go with some...

https://connect.mayoclinic.org/comment/747574/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2022

When I got the results from my annual Medicare checkup last year my platelet count was...

https://connect.mayoclinic.org/comment/941515/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

@cec2 Hi, if you don't mind, I'll add my information here. I am ET with JAK2...

https://connect.mayoclinic.org/comment/1421116/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2025

Hi @careydm! These TKI's sure work differently for different people. I started out on Dasatinib and...

https://connect.mayoclinic.org/comment/743399/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2022

Thank you kindly for your reply. To give you some background: The lung disease I had...

https://connect.mayoclinic.org/comment/1108569/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2024

Hello, first I’m sorry if they are mistakes in the text since my first language is...

https://connect.mayoclinic.org/comment/194290/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2019

Hi all. I’m a 60 y/o female. I have had consistently above normal RBC, HCT, and....

https://connect.mayoclinic.org/comment/49171/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Mar 2, 2021

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