Blood Cancers & Disorders: Discussions | Page 20

I have had MDS low risk for for 7 years on a watch and see. It’s...

https://connect.mayoclinic.org/comment/821161/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2023

My husband has MDS, been tired for a long time. He just stated his Arenesp shots...

https://connect.mayoclinic.org/comment/1193392/

Discussion: Can anything help ongoing fatigue from myelodysplastic syndromes (MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

Thank you for this story of good outcomes and hope! You are back at work 63...

https://connect.mayoclinic.org/comment/1085668/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 12, 2024

As far as I know, ET with a positive JAK2 mutation normally suggests you have a...

https://connect.mayoclinic.org/comment/284525/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2019

Hi Sharyn, with your MDS, your immune system is weakened. So, having an abscess and a...

https://connect.mayoclinic.org/comment/756028/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

I'm 80 with 5 mutated chromosome s. Diagnosed initially with JAK2 rhen Runx1 etc. MDS/AML ....

https://connect.mayoclinic.org/comment/1260920/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 18 8:15am

My wife(75 years) was diagnosed CNS lymphoma 2.5 years ago and treated with M-RVP plus Cytarabine...

https://connect.mayoclinic.org/comment/895063/

Discussion: Any survivors of Non-Hodgkin's lymphoma out there?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

I was diagnosed with myelofibrosis, mds & mpn in March 2025. Im waiting for a donor...

https://connect.mayoclinic.org/comment/1368766/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 12 2:42am

I'm just trying to grasp all of it right now. I was up most of the...

https://connect.mayoclinic.org/comment/1365429/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 7 6:35am

I do agree that only your medical team can get you what you need for diagnosis...

https://connect.mayoclinic.org/comment/1385673/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Sep 3 10:45am

My Onco/haema-tologist refuses to admit that Vexas is real. Only one.I have more diseases and disorders...

https://connect.mayoclinic.org/comment/1062004/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

Hi @mkt24 There are several discussions about cancer of the blood in this Blood Cancer and...

https://connect.mayoclinic.org/comment/1071669/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2024

I was originally misdiagnosed with Essential Thrombocythemia in 2018 by a hematologist at the VA Hospital...

https://connect.mayoclinic.org/comment/328598/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

I talked to my Hematologist today instead of Aug 11th. He has diagnosed me with Low...

https://connect.mayoclinic.org/comment/1365138/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 6 3:01pm

Hi Lori and thank you for your response. I was diagnosed with MDS about 3 months...

https://connect.mayoclinic.org/comment/1257092/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 13 1:04pm

I was misdiagnosed at the VA Hospital with ET in December of 2018. Didn't believe a...

https://connect.mayoclinic.org/comment/57939/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2020

I’m interested in this discussion. I had been diagnosed with ITP years ago, no treatment, well...

https://connect.mayoclinic.org/comment/750627/

Discussion: Mantle Cell Lymphoma and MDS (RARS)

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

@ray666 MDS is incurable. When I was taking Revlimid, my HGB went into high normal readings....

https://connect.mayoclinic.org/comment/1382764/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 30 1:10pm

Pixiesusan, so good to hear back from you. My first bone biopsy in Oct. of 21...

https://connect.mayoclinic.org/comment/1151293/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2024

The Government has acknowledged that the drinking water at Camp Lejeune was contaminated from 1954 to...

https://connect.mayoclinic.org/comment/194350/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2019

Blood Cancers & Disorders Support Group