Blood Cancers & Disorders Support Group

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Comments (1,035)

Started chemo on June 3 will take my 1st blood test on Friday I had a...

https://connect.mayoclinic.org/comment/1082000/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2024

Yes thanks for getting back to me bone marrow biopsy in 2 weeks an all my...

https://connect.mayoclinic.org/comment/807141/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

I might add that some types of MDS are low risk & those patients are a...

https://connect.mayoclinic.org/comment/1313326/

Discussion: MDS types: How did you find out what type you have?

Support Group: Blood Cancers & Disorders

Posted: May 26, 2025

Thank You for sharing Jean-Pierre! If you don’t mind me asking how long have you had...

https://connect.mayoclinic.org/comment/961009/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2023

Hi I’ve been recently diagnosed with high risk MDS. I have monosomes with 15,18,20,22. Missing chromosomes...

https://connect.mayoclinic.org/comment/1312767/

Discussion: Anyone experienced Bone Marrow Transplant with TP53 mutation?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 25, 2025

@asarnesejr I wish I could put my arm around you and try to get you to...

https://connect.mayoclinic.org/comment/1365507/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

Hi, @statmatics and husband! You are a united team in your wife’s diagnosis of MDS. I...

https://connect.mayoclinic.org/comment/1327606/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2025

Lori, Thank you for your input. As many have said on the site, you are amazing....

https://connect.mayoclinic.org/comment/1301976/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2025

@shoch1957 I do find myself more concerned wrt IO than the MDS as my iron saturation...

https://connect.mayoclinic.org/comment/1464494/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

@shmerdloff I also had/have HCL which has been in remission for 9 years now. Cladribine was...

https://connect.mayoclinic.org/comment/1471515/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2025

Good morning, @jrwilli1 There can be a certain comfort in having a huge decision made for...

https://connect.mayoclinic.org/comment/774222/

Discussion: Anyone have bone marrow transplant for aplastic anemia?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 17, 2022

Oops, sorry about that. I saw the Enasidenib and jumped to the conclusion of AML. MDS...

https://connect.mayoclinic.org/comment/876785/

Discussion: Any suggestions to alleviate Bone Pain from Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2023

Welcome to Mayo Connect, @golddust With your history of MDS and hemochromatosis seeking care with a...

https://connect.mayoclinic.org/comment/1421644/

Discussion: Anyone have MDS + Hemochromatosis? Who specializes in both?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2025

I was diagnosed with Pancytopenia on January 29th. Got to see a hematologist on March 19th,...

https://connect.mayoclinic.org/comment/1097692/

Discussion: I am newly diagnosed with AML. with the inv(3) mutation,

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2024

I use aranesp injections when I red blood count goes way low I also have mds-rs-sld...

https://connect.mayoclinic.org/comment/667437/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2022

Hi Cindy, not every comment here will be relevant to your husband’s case. But those of...

https://connect.mayoclinic.org/comment/1284004/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Apr 17, 2025

You need to address this and I tell you why. 2021 my platelets were 110, then...

https://connect.mayoclinic.org/comment/1407548/

Discussion: Platelets dropping

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2025

@sonieaml I started this journey in 2017 (although, as I said, it was going on for...

https://connect.mayoclinic.org/comment/1473417/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Jan 3 8:45am

Hi Brenda, IPSS-R are the initials for International Prognostic Scoring System - Revised. I know this...

https://connect.mayoclinic.org/comment/962588/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

I have been diagnosed with MDS with platelets running in the low 30 even down to...

https://connect.mayoclinic.org/comment/867472/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: May 27, 2023