Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

442 total results

Comments (417)

Just wondering about intense itchiness along with all the other things? It happens mostly at night...

https://connect.mayoclinic.org/comment/906937/

Discussion: Looking for advice: Could this be MGUS, because of low m-spike?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2023

I wish I had good advise about the itchy. My itch is after I shower, my...

https://connect.mayoclinic.org/comment/895756/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2023

I was diagnosed with this a year ago, I kept getting merous ulcers on my legs...

https://connect.mayoclinic.org/comment/817362/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

Do you take it everyday or just when you feel the itch come on ?

https://connect.mayoclinic.org/comment/790875/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2022

Went through this after having my daughter. Bone marrow ruled out cancers, went on high doses...

https://connect.mayoclinic.org/comment/749257/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2022

Hi Lori, I've been doing some research and have read in several places that these targeted...

https://connect.mayoclinic.org/comment/747457/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2022

Hi @talmadge81 This itchy scalp and rash must really be all encompassing, especially since you glossed...

https://connect.mayoclinic.org/comment/743159/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2022

Yes, but I itch random times of the day. It’s really frustrating. I find antihistamines help...

https://connect.mayoclinic.org/comment/1088958/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

I usually itch right after my bath, I use dove soap and will use various oils...

https://connect.mayoclinic.org/comment/946592/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2023

I have had great success using CereVe Itch Relief which contains pramoxine hydrocholoride and three essential...

https://connect.mayoclinic.org/comment/1248047/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Mar 1 11:46am

Re peppermint oil: I have a mentholated gel I use on legs for restless leg. Vicks...

https://connect.mayoclinic.org/comment/1302268/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: May 12 7:49am

I developed a rash when I began taking 10 mgs Revlimid. It covered my arms and...

https://connect.mayoclinic.org/comment/1160031/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2024

After I was diagnosed with Cutaneous T Cell Lymphoma, Mycosis Fungoides in November 2022, my dermatologist...

https://connect.mayoclinic.org/comment/1098081/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2024

@remainanonymous Welcome to Connect. Neuropathy is a frequent topic among the MGUS members so there is...

https://connect.mayoclinic.org/comment/1051082/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024

Two years ago I was started on Sprycel for first 4 months after diagnosis. I lost...

https://connect.mayoclinic.org/comment/1001983/

Discussion: CML Sprycel side effects

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2024

Good Morning. I itch intermittently all day. Scalp, hands, legs and feet. I was trying different...

https://connect.mayoclinic.org/comment/820598/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

What is polycythemia Vera and what are the other symptoms? Mine is more of a tickling...

https://connect.mayoclinic.org/comment/818925/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2023

I took it twice every day for 5 years, afraid the itch would return. Finally then...

https://connect.mayoclinic.org/comment/790938/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2022

@veryoldman, I appreciate your posting about the relief you found. I number of members have had...

https://connect.mayoclinic.org/comment/769062/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2022

Good morning talmadge81! Thank you for sharing your journey. I’m so sorry you had to go...

https://connect.mayoclinic.org/comment/743790/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2022