Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

516 total results

Comments (487)

When I got the results from my annual Medicare checkup last year my platelet count was...

https://connect.mayoclinic.org/comment/941515/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

@cec2 Hi, if you don't mind, I'll add my information here. I am ET with JAK2...

https://connect.mayoclinic.org/comment/1421116/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2025

Hi @careydm! These TKI's sure work differently for different people. I started out on Dasatinib and...

https://connect.mayoclinic.org/comment/743399/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2022

Thank you kindly for your reply. To give you some background: The lung disease I had...

https://connect.mayoclinic.org/comment/1108569/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2024

Hello, first I’m sorry if they are mistakes in the text since my first language is...

https://connect.mayoclinic.org/comment/194290/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2019

Hi all. I’m a 60 y/o female. I have had consistently above normal RBC, HCT, and....

https://connect.mayoclinic.org/comment/49171/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Mar 2, 2021

I have PV with the JAK22 postive mutation. I Noticed over time that my Hemoglobin and...

https://connect.mayoclinic.org/comment/1402845/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2025

Well Jackie, if you’ve ever read about me and my various post, I must have the...

https://connect.mayoclinic.org/comment/728920/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2022

I was diagnosed with Waldenstrom macroglobulinemia July of 2021. I went to the emergency room for...

https://connect.mayoclinic.org/comment/663018/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

Hi @caregiverx2. I know the stress level is high right now for both you and your...

https://connect.mayoclinic.org/comment/1117361/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 3, 2024

Yes Colleen. My hematologist/oncologist, Dr. Monte Martin (associated with Norton Cancer Center,) told me to go...

https://connect.mayoclinic.org/comment/752232/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2022

Posted by dmiles @dmiles, I have 9 rare disease (few since birth), I Just have symptoms...

https://connect.mayoclinic.org/comment/802779/

Discussion: Newly Diagnosed CLL Patients: Do you struggle with symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2023

I am so sorry for all your problems. But don't be devasated. It is a very...

https://connect.mayoclinic.org/comment/74585/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2018

I had long-term issues, too, that no one addressed. First, I had very low platelets (60-ish)...

https://connect.mayoclinic.org/comment/1473346/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Jan 3 7:15am

It took me several days, but finally found good questions for my PV and Myelofibrosis (9...

https://connect.mayoclinic.org/comment/802843/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Jan 28, 2023

Hi doreen78, First off, no, I have not been told I am in remission from any...

https://connect.mayoclinic.org/comment/1292137/

Discussion: Has anyone told they went into remission without treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2025

Hello @momoffivetoo. I’m 77 now and was diagnosed with PV in 1/2020. It was discovered by...

https://connect.mayoclinic.org/comment/1277135/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2025

I have had serious abdominal pain since childhood, urticarias, cough problems, and other symptoms that match...

https://connect.mayoclinic.org/comment/134292/

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: May 3, 2017

Last November, I fell backwards into my wheelchair & hit screws at L5S1. I went to...

https://connect.mayoclinic.org/comment/1394155/

Discussion: Symptoms of non Hodgkin's Lymphoma ?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2025

Hi @rivermaya34. So sorry to hear you have been diagnosed with HNPP. This is such a...

https://connect.mayoclinic.org/comment/1070799/

Discussion: Chronic lymphocytic leukemia and Hereditary Nerve Pressure Palsey

Support Group: Blood Cancers & Disorders

Posted: May 19, 2024