Blood Cancers & Disorders: Discussions | Page 2

Waldenstroms for goin on two years Imbruvica and prednisone with rituxin stripped working. Bad numbers up...

https://connect.mayoclinic.org/comment/1293434/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Apr 30 11:00am

I was diagnosed with MGUS approximately 20 years ago and was being regularly monitored every 3...

https://connect.mayoclinic.org/comment/1232582/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 8 8:03pm

To all those reading my other post, let me explain in more detail what’s going to...

https://connect.mayoclinic.org/comment/733543/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2022

I'm new to the world of Waldenström's Macroglobulinemia - having been diagnosed last month. I'm on...

https://connect.mayoclinic.org/comment/1246861/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Feb 27 5:21pm

Oncologist sent me to cardiologist for a ton of tests to make sure my heart wasn’t...

https://connect.mayoclinic.org/comment/1216467/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 19 11:00am

Sorry I also see a cardiologist and dermatologist because of possible side effects of Waldenstroms. Also...

https://connect.mayoclinic.org/comment/1375341/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: Aug 20 5:29pm

@breathernow Hi Michael and welcome to Connect. Shoulder shrugging sure isn’t much of an answer when...

https://connect.mayoclinic.org/comment/1346952/

Discussion: Lymphoma doc at Mayo Rochester

Support Group: Blood Cancers & Disorders

Posted: Jul 13 7:50am

Hi @lynnstefanik89, Welcome to the community! (and sorry you need to be here) I started my...

https://connect.mayoclinic.org/comment/1203242/

Discussion: Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?

Support Group: Blood Cancers & Disorders

Posted: Jan 3 2:38pm

Waldenstrom’s Husband diagnosed two years ago and has tried four different oral meds but can’t get...

https://connect.mayoclinic.org/comment/815772/

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

Is there a group / physician currently working on treatments for MYD88 - wild type in...

https://connect.mayoclinic.org/comment/801167/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

My last sed rate in May was 23 but my MGUS (blood disorder) is progressing into...

https://connect.mayoclinic.org/comment/748762/

Discussion: Should I be concerned about Blood Cancer or other disease?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2022

Hi Mitten, sorry to hear your diagnosis, my brother died from MM he developed from being...

https://connect.mayoclinic.org/comment/733924/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2022

You may also want to check out the publications and resources in the website of the...

https://connect.mayoclinic.org/comment/722325/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2022

Considering where you had your blood drawn, not knowing your age, I don’t want to scare...

https://connect.mayoclinic.org/comment/715743/

Discussion: Elevated C4, elevated immunoglobulin, and positive ANA?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2022

I have WM and was on Bactrim during treatments but taken off 17 months after my...

https://connect.mayoclinic.org/comment/673115/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2022

I was diagnosed with WM in 2014. Since then, data shows that certain mutations, MYD88 and...

https://connect.mayoclinic.org/comment/662308/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

Hello (my 1st post) - I have Waldenstrom's - diagnosed 2007 or so. Had bad neuropathy...

https://connect.mayoclinic.org/comment/661646/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2021

Hi @ejrquast and welcome to you too! I love that you are an International Waldenstrom’s Macroglobulinemia...

https://connect.mayoclinic.org/comment/624441/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2021

Welcome JProctor. How long ago was your husband diagnosed with Waldenstrom macroglobulinemia (WM)? What treatment has...

https://connect.mayoclinic.org/comment/624191/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2021

Hi @svend, I see you are inquiring about Waldenstrom's and treatment. You will notice that I...

https://connect.mayoclinic.org/comment/284540/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2021

Blood Cancers & Disorders Support Group