Blood Cancers & Disorders Support Group

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Comments (254)

Are there any Waldenstroms patients on an immunotherapy first line inhibitor (e.g. Ibrutinib) who have experienced...

https://connect.mayoclinic.org/comment/936360/

Discussion: With Waldenstrom, what side effects did you have with ibrutinib?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

Hi, I have had Waldenstroms for 19 years and have always had flu shots. I was...

https://connect.mayoclinic.org/comment/924119/

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

Hello @mike02041950 @barbdk @lesliemont. Because WM is a type of blood cancer where your bone marrow...

https://connect.mayoclinic.org/comment/922967/

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2023

My Dad had Waldenstroms Macroglobulinemia (rarer than amyloidosis) for 10 years from age 63 to 73....

https://connect.mayoclinic.org/comment/879943/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

My knee has a dent in it if I kneel on it are my bones soft...

https://connect.mayoclinic.org/comment/840192/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

My mother-in-law was diagnosed with Waldenstrom's in 1981. She was living here in Arizona and Toledo,...

https://connect.mayoclinic.org/comment/829063/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

Waldenstrom’s Husband diagnosed two years ago and has tried four different oral meds but can’t get...

https://connect.mayoclinic.org/comment/815772/

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

Is there a group / physician currently working on treatments for MYD88 - wild type in...

https://connect.mayoclinic.org/comment/801167/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2023

My last sed rate in May was 23 but my MGUS (blood disorder) is progressing into...

https://connect.mayoclinic.org/comment/748762/

Discussion: Should I be concerned about Blood Cancer or other disease?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2022

Hi Mitten, sorry to hear your diagnosis, my brother died from MM he developed from being...

https://connect.mayoclinic.org/comment/733924/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2022

To all those reading my other post, let me explain in more detail what’s going to...

https://connect.mayoclinic.org/comment/733543/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2022

You may also want to check out the publications and resources in the website of the...

https://connect.mayoclinic.org/comment/722325/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2022

Considering where you had your blood drawn, not knowing your age, I don’t want to scare...

https://connect.mayoclinic.org/comment/715743/

Discussion: Elevated C4, elevated immunoglobulin, and positive ANA?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2022

I have WM and was on Bactrim during treatments but taken off 17 months after my...

https://connect.mayoclinic.org/comment/673115/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2022

I was diagnosed with WM in 2014. Since then, data shows that certain mutations, MYD88 and...

https://connect.mayoclinic.org/comment/662308/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

Hello (my 1st post) - I have Waldenstrom's - diagnosed 2007 or so. Had bad neuropathy...

https://connect.mayoclinic.org/comment/661646/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2021

Hi @ejrquast and welcome to you too! I love that you are an International Waldenstrom’s Macroglobulinemia...

https://connect.mayoclinic.org/comment/624441/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2021

Welcome JProctor. How long ago was your husband diagnosed with Waldenstrom macroglobulinemia (WM)? What treatment has...

https://connect.mayoclinic.org/comment/624191/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2021

Hi @svend, I see you are inquiring about Waldenstrom's and treatment. You will notice that I...

https://connect.mayoclinic.org/comment/284540/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2021

Anyone have experience with recurring waldenstroms? And treatment?

https://connect.mayoclinic.org/comment/284539/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2021