Blood Cancers & Disorders Support Group

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Comments (530)

Hi @winniegirl It’s really encouraging that your CML responded so well to the Dasatinib to get...

https://connect.mayoclinic.org/comment/1579026/

Discussion: Chronic Myeloid Leukemia now Myelofibrosis: Anyone had both?

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

My gastro doctor was looking to see why I was having abdominal pain and referred me...

https://connect.mayoclinic.org/comment/871268/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2023

I was diagnosed in 2001 with PV/ jak2 mutated with blood withdrawals until 2012 Myelofibrosis diagnosed...

https://connect.mayoclinic.org/comment/794654/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2023

@tkp22, I can understand you're worried. It sounds like your health care team is being thorough....

https://connect.mayoclinic.org/comment/719785/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

I think steveduke is saying that the people on this forum are not doctors and you...

https://connect.mayoclinic.org/comment/1384972/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2025

Colleen, you had asked me to let you know how my husbands appt went with specialist...

https://connect.mayoclinic.org/comment/1252024/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

Hydroxyurea caused unusual tiredness and weakness. All I wanted to do was sleep or do nothing...

https://connect.mayoclinic.org/comment/1016782/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2024

I was diagnosed with CMML 9 years ago, and after a BMB they added myelofibrosis to...

https://connect.mayoclinic.org/comment/1435240/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2025

Hi @irishnanny3 , I wear sunscreen and a wide brimmed hat daily and have been for...

https://connect.mayoclinic.org/comment/1464513/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

Hi, I was diagnosed with ET January 2025 after routine physical from high platelets in lab...

https://connect.mayoclinic.org/comment/1347917/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2025

Hospital missed Polycythemia Vera Nov 2020 but; Mother/ Wife age 50 Hospitalized for cellulitis 2x (same...

https://connect.mayoclinic.org/comment/795964/

Discussion: Chronic Myeloid Leukemia (CML)

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

Hi @pamdg, You’re wondering if Jakafi can cause irregular heartbeat. I’m looking at the Drugs.com website...

https://connect.mayoclinic.org/comment/699161/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2022

Good morning Diagnosed in June 2025 with Myelofibrosis. WBC and platelets normal. Hemoglobin between 8 and...

https://connect.mayoclinic.org/comment/1412588/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 10, 2025

Good for you, it is behind you now! I was super anxious for that procedure as...

https://connect.mayoclinic.org/comment/1363654/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2025

I was on Anagrelide for a while as well. I starting on HU in 1992 and...

https://connect.mayoclinic.org/comment/1325199/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 11, 2025

Hi skossaz, I am so glad you are happy and doing well although your platelets are...

https://connect.mayoclinic.org/comment/1267671/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2025

Hello, I took serrapeptase for a while. I really had no idea if it was working...

https://connect.mayoclinic.org/comment/132666/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2020

@1pearl, I found another member diagnosed with MF with the CALR mutation and have put the...

https://connect.mayoclinic.org/comment/1256632/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2025

Hi @cmercer50 So glad you jumped into the ET discussion. Being able to connect with other...

https://connect.mayoclinic.org/comment/1448719/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2025

Like you, I was initially diagnosed with PV about 6 years ago. My Doctor, at the...

https://connect.mayoclinic.org/comment/1262661/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2025

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